Great Strides Ribbons

[Guest guest]

Hello, everyone -

This is my first post (in fact, I can't even figure out how to get back to the

website!), but I've been reading the Digests that come into my inbox. I have 2

boys with CF - Gavin, 3 1/2 and Jake 10months. They were dx a year ago - Jake

through amnio after Gavin was dx. Anyway, I am the chairperson of the Great

Strides Walk in Atlanta and remember reading that someone on here uses ribbons

for its CF walkers for identifying purposes and to avoid cross contamination.

I've been working on getting them for our walk (on May 3rd), because it's such a

great idea. My questions to those of you who use them: what do they consist

of? How are they perceived by those with CF? Does it seem to honor the

patients or set them apart? How are they distributed? Any help would be

greatly appreciated!

Thanks,

Pam mother of Gavin 3 1/2 wcf and Jake 10m wcf

[Guest guest]

Hi,

that was me talking about the ribbons.

We were asked at the registration table if we had anyone with CF with us and

were handed a small purple ribbon tied to a small pin and they asked us to put

it somewhere visible on our daughter's shirt.

being such a girly-girl thought it was pretty and wanted another. They

told us to avoid cross contamination, just keep her away (3 ft. rule) from the

kids and adults with the ribbons.

No big deal was made of it. It was just like here gets to wear a ribbon

because she has CF.

I suppose that some people may not have worn their ribbons, I don't know. I

wasn't too worried about it because we keep with people from our group

all the time since she is only 4 now and last year and the year before she was

in the stroller most of the time anyway.

I am a bit more concerned this year about the cross contamination so I hope that

they do this again this time. I'll be calling the local foundation branch today

to find out if they are. I'll tell them that you all liked the idea...

Great Strides Ribbons

Hello, everyone -

This is my first post (in fact, I can't even figure out how to get back to the

website!), but I've been reading the Digests that come into my inbox. I have 2

boys with CF - Gavin, 3 1/2 and Jake 10months. They were dx a year ago - Jake

through amnio after Gavin was dx. Anyway, I am the chairperson of the Great

Strides Walk in Atlanta and remember reading that someone on here uses ribbons

for its CF walkers for identifying purposes and to avoid cross contamination.

I've been working on getting them for our walk (on May 3rd), because it's such a

great idea. My questions to those of you who use them: what do they consist

of? How are they perceived by those with CF? Does it seem to honor the

patients or set them apart? How are they distributed? Any help would be

greatly appreciated!

Thanks,

Pam mother of Gavin 3 1/2 wcf and Jake 10m wcf

[Guest guest]

Welcome to our list Pam.

Dawn mom of 4, 7 and under, the youngest wcf