Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Joe, My son was on TOBI for about 3 - 4 years and just a little over a month ago he became resistant to it. They now have him on Colistin, another inhaled antibiotic. from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Kim, thanks for the info. I had read about Mg and it's effects on PA but had never heard from someone with experience with it. I must say that is impressive. I laughed when I read what you wrote about what the doctors would say because I KNOW ours will say or do all of those things. Of course I still plan to discuss it with them but also plan to look into a Mg supplement. Abby is on Cipro and Tobi now. She gets Cipro about 8 am & pm and Tobi about 9am & pm so I guess 3pm would be the best time. Wouldn't the Mg have to go into the bloodstream from the gut to get to the lungs? If the blood represents such a small % of total Mg it seems like there would be a more efficient way to deliver it - neb? - if it could be made safe. Have y'all checked your Mg levels and was there much change after you started taking it? That was an awesome story and I'm trying to save it on disk. Thanks. Joe (Dad of Kelsi,6; Chloe,2; and Abby 9mos.w/cf) Quote Link to comment Share on other sites More sharing options...
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