Re: E-mailing Oprah about CF

April 15, 2003

In a message dated 4/15/2003 4:45:04 PM Central Daylight Time,

drea@... writes:

> Hi everyone,

> I have been trying raise awareness by getting Oprah Winfrey to do a show on

> CF. I have been e-mailing her about once a week for the last four or five

> months. I have been told that it is useless to e-mail her but I have also

> heard that it is the only way to get her to do a show about it. ??????

> Anyway I was wondering if anyone here would like to go to www.Oprah.com and

> e-mail her. Just tell your story and ask her to do a show on CF. I would

> appreciate it. Maybe mention the CF awareness week in October? She

> reaches so many people and I just thought maybe it would help some family

> figure out what was going on with their child.... or maybe give hope to

> families that are newly diagnosed (Especially if they hear from some of the

> older CFers) Thanks

>

A bunch of us on this list did that last year and didn't get a response but

it can't hurt to keep trying. Maybe if we bug her enough she will do a show

on us. Deb A

April 15, 2003

Count us in!!!!

Deana

Mom to 12 ncf, and 6 wcf

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E-mailing Oprah about CF

Hi everyone,

I have been trying raise awareness by getting Oprah Winfrey to do a show on

CF. I have been e-mailing her about once a week for the last four or five

months. I have been told that it is useless to e-mail her but I have also heard

that it is the only way to get her to do a show about it. ?????? Anyway I was

wondering if anyone here would like to go to www.Oprah.com and e-mail her. Just

tell your story and ask her to do a show on CF. I would appreciate it. Maybe

mention the CF awareness week in October? She reaches so many people and I

just thought maybe it would help some family figure out what was going on with

their child.... or maybe give hope to families that are newly diagnosed

(Especially if they hear from some of the older CFers) Thanks

April 16, 2003

I just emailed my story to Oprah. I've been thinking about doing this for a

long time... Thank you for getting this going!

E-mailing Oprah about CF

> Hi everyone,

> I have been trying raise awareness by getting Oprah Winfrey to do a show

on CF. I have been e-mailing her about once a week for the last four or

five months. I have been told that it is useless to e-mail her but I have

also heard that it is the only way to get her to do a show about it. ??????

Anyway I was wondering if anyone here would like to go to www.Oprah.com and

e-mail her. Just tell your story and ask her to do a show on CF. I would

appreciate it. Maybe mention the CF awareness week in October? She

reaches so many people and I just thought maybe it would help some family

figure out what was going on with their child.... or maybe give hope to

families that are newly diagnosed (Especially if they hear from some of the

older CFers) Thanks

>

April 16, 2003

We were doing this on another site a while ago but not too many people are still

doing it. I had hoped that maybe between this site and a few others we might be

heard. Thanks for sending your story!