EFA & EPA / kiddietalk

[Guest guest]

Dear Kiddietalk:

Thank you for the exhaustive information....as I am dealing with 4 children,

3 with needs, some more than others...I sure do like when things are simple.

So if I may, can you suggest, exactly what EPA and EFA I should purchase and

then how to dose them for a 13 year old 70 pounder, a 6 year 42 pounder and

a 2 year old 30 pounder? My 6 year old is tube fed and already takes a good

size dose of Flax seed - which has help tremendously. But the other two are

very picky oral eaters...yeah, good luck. I have detoxed the youngest two

and in the two year old I have seen TREMENDOUS change...I have no doubt that

he will " loose " his autistic disorder dx before he starts school (this is

when he is to be reevaluated) and although I know he is still apraxic, he is

making huge strides....amazing.

Oh and why pomegranate juice?

Thanks in advance....

Re: Question about Fish oils

>

>

> Hi Sara -use the liquid if you have it. Also the shelf life isn't

> long so use it quick anyway (if your child doesn't mind the taste of

> it-mine does) Some here may like the liquid -but the capsules are

> better in my opinion for various reasons.

>

> from a recent post:

> And if taste is an issue -you may want to try capsule. My son and

> others here do taste the difference between capsule and liquid.

> Could have to do with exposure to oxygen?

>

> " Liquid vs. capsule? Hands down my vote is capsule because it lasts

> way longer, easy to control dosage, easy to travel with, not a big

> deal if you spill the bottle over. Passed Tanner taste test (liquid

> didn't)

>

> And..yes...you can just use a pin and " poof " like magic the capsule

> is 'oil' but the oil without a capsule -can't turn it into a capsule.

> resources for EFAs

>

> 'Hi !

>

> That is great news about the surges you are seeing so far in your

> child within the typical one to three week period. Because you are

> new to the group, and there are many other new people here too -I

> wanted to once again share a view on the 'new' ProEFA liquid you may

> not have thought of from a cut from an archived post which cleared

> up a confusing thread of posts about accurate supplementation of

> EFAs using liquid vs capsules:

>

> " Due to the confusion of what dosage of the oils since the

> introduction of the ProEFA oil in the bottle about a month or so ago

> (vs. the capsules which are what most of us have used for years up

> to the bottle oil) below is a reply about dosage of straight oil

> from developmental pediatrician Dr. Marilyn Agin

> http://www.cherab.org/information/speechlanguage/advisoryagin.html

>

> ..Around just 1/4 a teaspoon of ProEFA oil will be around the same

> as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is

> close to the equivalent of about 2 capsules of ProEFA "

>

> Sadly -it still does appear that unless NN offers a dropper that

> clearly has lines that state " one capsule " " two capsules " or

> something like that as a guide as I suggested -that with use of the

> oils -those of you using the straight oil will no longer be able to

> share with all of us accurately -or even know yourself - what dosage

> you are giving your child you are finding to be " too high " " too

> low " or " perfect! " You will only be able to estimate. The best we

> can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is

> close to the equivalent of about 2 capsules of ProEFA "

>

> As I always say -brand name does NOT matter -only

> Formula

> Dosage

> Quality

>

> However we can use brand names as an easy to understand guide.

>

> In our group we have found ProEFA -Efalex and EyeQ to be the three

> best Omega 3 -6 oils, with ProEFA being the best so far overall due

> to " it works best at low dosage " . With ProEFA -here is the dosage

> which we as a group have found to be effective over the past number

> of years with hundreds and thousands of children, and that has been

> posted over and over at the CHERAB list. If any of you can figure

> out a great way to translate this to the use of straight oil without

> the capsules as a guide -please let us all know. In the meantime -

> will one of the pharmaceutical R & D people in this group design an

> EFA patch already so we can just slap that on our children instead

> of all of this?!!

> To start:

> DHA -around 100 mg

> EPA -around 150 -250 mg

> GLA -around 30-50 mg

>

> The only dosage we as a group know to be effective is to start with

> one capsule of ProEFA a day -then go to two capsules of ProEFA a day

> when you see a plateau in about 6 months to a year -then instead of

> going to three capsules of ProEFA a day when you see a plateau again

> in a year or more -you stay with the two ProEFA capsules a day and

> add one capsule of ProEPA.

>

> Just a reminder that the ProEFA oil needs to be refrigerated once

> opened. Also once opened it has a shelf life of 2 months. ProEFA

> capsules have a shelf life of almost 4 years -do not have to be

> refrigerated once opened -and can be carried in your pocket if you

> want. You can do this with the oil but you will smell funny.

>

> I chose the ProEFA capsules over the liquid. As always -they work

> the best at the lowest dosage. "

>

> EFA tips and sources

> http://www.cherab.org/information/dietaryeffects/efatips.html

>

> http://www.cherab.org/information/dietaryeffects/efabasics.html

>

> =====

>

[Guest guest]

Hi !

Did you read The Late Talker book? There is an entire chapter in

there as to why the EFAs for speech -and more here

http://www.cherab.org/information/dietaryeffects/Englemed.html

http://www.cherab.org/information/indexinformation.html#diet

Here's my son Tanner's story

http://www.cherab.org/information/familiesrelate/letter.html

Here's Tanner's story on EFAs from Dr. Stordy and Malcolm Nicholl's

book The LCP Solution (another good book to read -and Malcolm is

also one of my co authors of The Late Talker book)

3rd story down here

http://www.drstordy.com/stories.html or here

http://www.cherab.org/information/dietaryeffects/LCPbook.html

As it said in the archives all that matters are formula, dosage, and

quality of the oils. Once you get the " right " EFAs in your child

you'll probably want to stop the flax because it will change the

ratios -and besides flax is pretty useless for what we are looking

for even though it's helped already. It's healthy -but we are not

just looking for healthy -we are looking for healthy and right

formula to help the best. Let us know how much more you see in

surges once you switch EFA formulas. Right formula anecdotally is

higher Omega 3 then Omega 6 typically a 5 to 1 ratio...and higher

EPA then DHA (both are Omega 3s but you want the EPA to be higher)

Three brands over the years people have used with good results have

been ProEFA -Nordic Naturals, Efalex -used to be by Efamal -Dr.

Stordy's formula but now manufactured by Nutricia which owns GNC -

and EyeQ by Equazen.

Here's a list of sources for those EFAs people mainly use

http://www.cherab.org/information/dietaryeffects/efabasics.html

Why POM? With apraxia you have to look outside the box because

there's so little research (or caring) about " late talker "

children. EFAs are not the only things good for the heart....Pom is

too. Dr. Renai Jonas Tanner's SLP recommended we try it knowing of

Tanner's constipation because she said it's known as the " wonder

drink " I really love it and keep bottles of it in our fridge and

make sure that Tanner drinks it each day -so do I.

If you check the archives when last year we flew into NYC for the Holidays

Tanner missed a few days and became constipated again...MOM worked.

Since then will not travel without POM so we don't need MOM)

Why does it work?...only theories, there's no research on it.

Dr. Jonas is also the one that is trying the Vital Stim with Tanner

right now and she is also the one that told me about the Green

Goodness by Bolthouse Farms I posted about...doesn't 'anyone' else

here use that?! It's awesome stuff and I mean they sell it even in

Wal-Mart now. Dr. Jonas is also a DAN! Healthcare Practitioner

according to this site...Go figure! I never knew that!

http://www.autismlink.com/services_search.php?zipcode=33430

Anyone in Florida -don't know about her DAN skills since that's not

what we've been doing -but one awesome SLP that's for sure!

Renai K. Jonas, Ed.D., CCC/SLP

Jonas Therapy Associates

199 W. Palmetto Park Rd., Suite 3

Boca Raton, FL 33432

Telephone: 561-361-0307

Fax: 561 -393-6903

Email: DrJonas@...

Here's the clip of an archive I posted on Green Goodness from last

month

Not being able to take EFAs has meant rare and typically life

threatening metabolic disorders....and even then those are being

treated with pure DHA

http://www.martinezfoundation.org/

Tanner's SLP Dr. Jonas for example has a patient right now with

Leigh's Disease which is " a rare inherited neurometabolic disorder "

that is degenerative.

http://www.ninds.nih.gov/disorders/leighsdisease/leighsdisease.htm

The child isn't allowed to take fish oils (I told her about Dr.

ez's work to share with these parents) -but was allowed to

take Bolthouse Farms " Green Goodness " and apparently she is

improving! Now that's interesting because she is supposed to be

regressing. She said the ingredients of Green Goodness may help with

DNA. Anyone else use this stuff? I've been buying Green Goodness

for awhile now because I drink it, but no way can I get my family to

drink it...but just figured out I can trick them by adding it to

fruit smoothies! (and add Pom Wonderful too!)

GG's made of polyphenol and phytonutrient-rich plant extracts, and

contains

spirulina, open cell chlorella, broccoli, green tea, spinach,

barley, wheat

grass, blue green algae, and an array of other healthy ingredients.

http://www.bolthouse.com/html/cs_green_juice_n.html

To find it at a " store near you "

http://www.bolthouse.com/store_locator.html

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