MY STORY

[Guest guest]

HI THANKS FOR THOSE THAT ANSWERED ME, IT HELPS TOKNOW THAT THERE ARE

OTHERS OUT THERE WITH THE SAME PROBLEMS. MY STORY IS LENGTHY, BUT

ILL TRY TO MODIFY IT. I HAD GALL BLADDER SURGERY 5 YRS AGO AND MY

PANCREATITIS STARTED IMMDEIATLEY FOLLOWING THAT. BUT IT WASN T

DIAGNOSED UNTIL 2YRS LATER AND THEN IT TOOK ME ANOTHER YEAR TO FIND A

DOC THAT WAS VERY KNOWLEDGEABLE. I HAVE HAD NUMEROUS ERCP, SOME

PUTTING IN A STENT, BUT NONE WERE SUCCESSFUL TO KEEP MY PANCREATIC

DUCT OPEN AND DRAINING. THUS THE WHIPPLE, WHICH WITHIN 6 MO IT WAS

COMPLETELLY SCARRED CLOSED--THE DUCT--. SO THEY DID A WHIPPLE

REVISION WHICH HAS THE DUCT OPEN AND DRAINING BUT IT HAS FAILED TO

SLOW DOWN THE CHROONIC PANCREATITIS. I AM SCHEDULED FOR AN EUS TO DO

A CELIAC BLOCK---NOT SURE OF SPELLING-- ON AUG 18 2003. I HAVE A LOT

OF PAIN AND WEIGHT PROBLEMS. I HAD A FEEDING TUBE IN MY NOSE FOR 8

WKS LAST FALL TO PUT SOME WEIIGHT ON ME, BUT I HAVE GRADUALLLY LOST

ALL OF THAT, IM 5FT 7IN AND 100 LBS. I LIVE IN KLAMATH FALLS OR, ONLY

3 MILES FROM THE CALIF BORDER, BUT I SEE A DR IN SEATTLE, ALMOST 500

MILES AWAY. HE IS DR KOZARECK AT THE VIRIGINIA MASON MEDICAL CENTER,

AND THE SURGEON IS DR TRAVERSO AT THE SAME FACILITY. THEY BOTH SEEM

VERY KNOWLEDGEABLE AND CARING. THEY SPEAK AT MANY CONFERENCES AND

MEETING SO I THINK THEY ARE UP TO DATE ON ALL THAT IS OUT THERE. DOES

ANYONE ELSE SEE THESE DRS?? I REALLY HAVE CONFIDENCE IN DR KOZARECK,

A GI DOC, BUT OF COURSE THERE IS ALWAYS THAT SEED OF DOUBT WHEN IT

SEEMS NOTHING THEY HAVE DONE HAS REALLY HELPED THAT MUCH. IF ANYONE

HAS ANY SUGGESTIONS FOR ME MY EARS ARE OPEN! NANCY