Re: fecal fat test questions

[Guest guest]

Hi ,

> Has anyone done a fecal fat test? ANyone done it and did you get

any good information out of it or was it a waste of time collecting

poop??

We have done it two times for . But let say Elastase 1 stool test

is not available yet in Canada. Otherwise, We would have go for it. A

good, precise, easy to do test. So, think about it if you live in

US...

Marie-JOsée (mom of , 18 months)

[Guest guest]

In a message dated 2/23/03 9:30:55 AM Eastern Standard Time,

jeninca1010@... writes:

> Has anyone done a fecal fat test?

Hi , did this and they found out that she is pancreatic

sufficient, therefore no more enzymes. So for us it was well worth all that

poop!!!

- Sally -

Mom of :

Bri--14--JV cheerleader

--12--w/asthma

--9--w/cf & ds

[Guest guest]

I had to collect stool for something, not sure what exactly.

[Guest guest]

>

> > Has anyone done a fecal fat test?

>

Hi I have been " A reader " lately as my life is always hectic.

Yes, our Cf center had us participate in a CF study. My sons test came back

like <0, the lowest on the scale. I was concerned as that was the lowest

and he takes enzymes. I guess that is normal for a double Delta F508 gene.

This just means that he is pancreatic insufficient. I have been very blessed

as his weight has been on the 100th percentile for several years. (90 lbs)

He had Meconium Illius at birth and was so thin. We have worked very hard

to get his weight up.

Now for the funny part. You had to get a sample of their stool and send it

in the mail to NY. I took the sample, sealed it in the container and bag,

and taped the package shut to mail later that day.

I had it on the counter and about an hour later I could not pinpoint what

that smell was. Well, you guessed it!! We all had a laugh as we all know

how stinky it is. Even said what about the mail man.

Darci

mother of 8wcf, Brayden 4 wocf, and Mackenzie 17 mo. wocf

[Guest guest]

We also participated in a CF study for the fat content but we had to

collect the stool for a period of time put it in a paint can (new one of

course) and keep it in the freezer till we were done (about a 2 weeks i

think) I do not remember what the out come was but i know that the kids got

paid to participate in the study and the parents did all the dirty work

but that is ok with me if it helps our kids that is all that matters to

me. DJ has since participated in many more studies.

mother of DJ 17 wcf

At 01:37 PM 2/27/2003, you wrote:

> >

> > > Has anyone done a fecal fat test?

> >

>Hi I have been " A reader " lately as my life is always hectic.

>

>Yes, our Cf center had us participate in a CF study. My sons test came back

>like <0, the lowest on the scale. I was concerned as that was the lowest

>and he takes enzymes. I guess that is normal for a double Delta F508 gene.

>This just means that he is pancreatic insufficient. I have been very blessed

>as his weight has been on the 100th percentile for several years. (90 lbs)

>He had Meconium Illius at birth and was so thin. We have worked very hard

>to get his weight up.

>

>Now for the funny part. You had to get a sample of their stool and send it

>in the mail to NY. I took the sample, sealed it in the container and bag,

>and taped the package shut to mail later that day.

>

>I had it on the counter and about an hour later I could not pinpoint what

>that smell was. Well, you guessed it!! We all had a laugh as we all know

>how stinky it is. Even said what about the mail man.

>

>Darci

>mother of 8wcf, Brayden 4 wocf, and Mackenzie 17 mo. wocf

>

>

>

>

>

>

>-------------------------------------------

>The opinions and information exchanged on this list should IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

>------------------------------------

>

>

>

[Guest guest]

I seldom answer anyone's ?s here, but yours I can cause I have had the

experience. I had to collect the poop for 24 hrs on my daughter. She too

wan on enzymes (pancrease, 18 tablets per day) and her fecal fat study showed

an exhorbitant amount of fat still in her stools despite the enzyme therapy.

The dr subsequently did further tests and found that she also suffers with

celiac disease and she has been placed on a gluten and lactose free diet.

Unfortunately, she isn't doing well at the moment. But, to answer your ?,

YES, by all means, let the Dr. do the test. It IS worth the trouble and

effort! I wish you and your family ALL the best. Be blest...With love,

Deranda (mom of four, 1 w/ suspected cf)

[Guest guest]

This is VERY interesting. Myd aughter was first diagnosed with celiac

disease 1 year before she was diagnosed with CF. I can't stand the doctors

that diagnosed her with the celiac. It was a terrrible, horrible and

yadayadayada......and like your child, she didn't do much better. She

needed Enzymes and lots of them. She takes 9 ultrase MT 20's with each

meal. CF and its treatments were the answer for her. I did have one ENT

tell me to keep her away from milk and wheat products as much as possible

because they weren't good for things CF does to the body, like sinus, lung

infections and intestinal troubles.

G

mom of Sam 14 w/cf, matty and bobby no cf

Re: fecal fat test questions

> I seldom answer anyone's ?s here, but yours I can cause I have had the

> experience. I had to collect the poop for 24 hrs on my daughter. She too

> wan on enzymes (pancrease, 18 tablets per day) and her fecal fat study

showed

> an exhorbitant amount of fat still in her stools despite the enzyme

therapy.

> The dr subsequently did further tests and found that she also suffers with

> celiac disease and she has been placed on a gluten and lactose free diet.

> Unfortunately, she isn't doing well at the moment. But, to answer your ?,

> YES, by all means, let the Dr. do the test. It IS worth the trouble and

> effort! I wish you and your family ALL the best. Be blest...With love,

> Deranda (mom of four, 1 w/ suspected cf)

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>