Re: One reason for joint pain

[Guest guest]

Margo,

I understand the dilemma about spacing meds. I remember times when

my son was younger, thinking " No one told me I had to become a

mathematical wizard to me a mom! " But boy, I should got good at

creating charts.

Anyway, even though some TOBI gets out of the lungs via the blood

stream and can deplete total body magnesium, I would not worry about

taking a multivitamin/mineral or magnesium supplements along with the

TOBI.

TOBI is meant to work IN the lungs so it's doing it's job there. And

if you take oral magnesium around the same time as inhaling TOBI, then

the magnesium is going into the blood to do it's job there. Sure, the

oral magnesium in the blood will circulate through the lungs but we

have magnesium in our body anyway so I don't think this is much a

concern.

It's just that over time, I firmly believe that since TOBI escapes the

lungs via the blood and can deplete total body magnesium, then a

deficiency is created.

And if you don't put back the missing magnesium then you're going to

suffer the consequences: and in CF the consequences can be aches,

pains, cramps, osteoporosis, impaired glucose regulation, increased

lung lung pH imbalance which leads to increased funky bacteria and

fungus infections, decreased PFTs, decreased stamina, headaches,

insomnia, irritability, depression -- you get the idea.

However, if we were talking about taking IV tobramycin or IV

gentamycin or any oral antibiotic, then I would definitely space the

doses of minerals so they don't compete for the same receptor site.

I know it's tricky spacing doses but the end result is so worth it.

Just two months after my son began taking magnesium along with

inhaling tea tree essential oil (not in his nebulizer!), he no longer

cultured aspergillus or Stenotrophomonas -- and the mucoid form of PA

that he'd cultured since 1998 was finally sensitive to ALL

antibiotics. And 10 months later, he no longer cultured the mucoid PA.

And he accomplished all this without resorting to IV antibiotics.

Several months ago, quite a few people on the Cystic-L wrote asking

for the information that helped . After I sent it to them, many

wrote back saying they finally felt better than they have in a long

time, and I'm so grateful they're feeling better. If you want copies

of what I sent them, please let me know. You might find something

useful there.

Kim

> > Hey Deb,

> >

> > I also meant to comment on the joint pain. Yes, Cipro can cause

> pain,

> > especially leg pain. Quinolone antibiotics, such as Cipro, can

> cause

> > tendon weakening and rupture. There have been cases reported in

> which

> > achilles tendon rupture occured months after using Cipro because

> the

> > tendon was weakend by the antibiotic.

> >

> > I remember the first time a friend of mine gave Cipro to her

> daughter

> > (with CF). This was maybe 1999, so she would have been around 12

> years

> > old.

> >

> > Her legs hurt so bad that she'd cry in pain; she couldn't walk --

> they

> > had to carry her to the bathroom (she was a tiny girl then and is

> tiny

> > teen now -- but then, her parents are both quite small too!).

> They'd

> > give her Tylenol 'round the clock but it didn't help.

> >

> > If there is joint/bone pain and you're not using a quinolone

> > antibiotic, please be sure they're getting enough magnesium in

> their

> > diets. This is so crucial, Deb.

> >

> > Magnesium is necessary for keeping calcium IN the teeth and bones

> > where most of it belongs. When you're low on magnesium, then

> calcium

> > leaches out of teeth and bones and deposits in joints and tissues,

> > causing arthritic pain.

> >

> > I believe the reason we're seeing a rise in " CF-related diabetes "

> and

> > " CF-related arthritis " is because many (many, many!) of the meds

> we

> > take deplete the body of magnesium.

> >

> > Additionally, our soils are now so depleted of minerals that our

> > foods are inferior. And if you have a water softener in your

> house,

> > then you're not getting minerals in your drinking water -- all the

> > minerals have been removed to make the water soft.

> >

> > Aside from the cellular importance of magnesium (regulates ATP,

> cell

> > signaling, etc.,) magnesium is crucial for regulating glucose and

> > maintaining calcium in bone.

> >

> > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > magnesium work together so you need a balance. Calcium contracts

> the

> > muscle, magnesium relaxes muscle. You can drink milk until the

> cows

> > come home, but if you're not getting enough magnesium then all

> that

> > calcium in dairy products is just wasted.

> >

> > If you or family members have digestive and malabsorption

> problems,

> > severe menstrual cramps, migraine or vascular headaches, asthma,

> heart

> > disease, hypertension, diabetes -- then you need to increase your

> > magnesium.

> >

> > Most magnesium sold today is magnesium oxide. Look at your

> > multivitamin/mineral label. If it's magnesium oxide don't count on

> it

> > working well; magnesium oxide is the least bioavailable form of

> all

> > magnesiums.

> >

> > You have to be careful to get the right type. Some magnesium are

> > magnesium salts, such as magnesium gluconate and magnesium

> citrate,

> > etc. These can cause loose stools, which further depletes the body

> in

> > minerals.

> >

> > After I discovered a magnesium deficiency in my son in January

> 2002

> > (no thanks to his doctor!), I started him on magnesium chloride.

> He

> > did fine with this. I also started taking it but didn't notice an

> > improvement. I switched to magnesium citrate but still wasn't

> seeing

> > improvement that I hoped for, so last August I switched to

> magnesium

> > glycinate. In TWO days I noticed a huge difference! I can now fall

> > asleep as soon as my head hits the pillow and I sleep restfully

> all

> > night and wake up well rested. I still get migraines but frequency

> > has decreased again.

> >

> > One big thing I learned is that I can't take magnesium after 5:00

> pm

> > or it peps me up so much that I'm up working until 2:00 am. So

> don't

> > give it to your kids in the evening if you expect them to sleep

> >

> > Since August, has been taking 200 mg. magnesium oxide (it

> was in

> > his GNC multivitamin/mineral) and another 200 mg. magnesium

> glycinate.

> > We use Solgar's " amino acid chelate, magnesium glycinate. "

> >

> > But last month (Jan. 18), he switched to a different

> > multi-vitamin/mineral (Glycentials by Mannatech). It has 500 mg.

> > magnesium oxide and magnesium glycinate (I don't know the break

> down

> > of how much of each). And he still takes an additional 100-200 mg.

> > Solgar magnesium glycinate.

> >

> > If you or your kids are using TOBI, albuterol, theophylline,

> Cipro,

> > Zithromax, etc. -- and drink caffeine beverages -- then you're

> losing

> > magnesium and need to supplement. If you aren't getting a daily

> supply

> > of fish, dried beans, some dark green veggies then you're not

> getting

> > enough magnesium from foods. There are only a couple fruits that

> > contain any good amount of magnesium.

> >

> > The most important thing to remember: DON'T take antibiotics

> within

> > two hours of taking magnesium or vitamin/mineral tablets

> containing

> > magnesium!

> >

> > Antibiotics (including Zithromax and Cipro) and magnesium compete

> for

> > the same receptor site. If you take them together then you cut the

> > potency of the antibiotics by 50%-90%. So if you're giving your

> kids a

> > multivitmain/mineral at the same time as you're giving

> antibiotics,

> > stop now! You MUST space them MINIMUM two hours apart!

> >

> > Many antibiotics shouldn't be taken with calcium either, so it's

> just

> > a good idea to dose antibiotics away from vitamin/mineral

> supplements

> > and antacids (i.e., Tums, Rolaids, etc.). And this is also why you

> > shouldn't drink calcium-fortified juices with your antibiotics!

> >

> > You can go to www.houseofnutrition.com if you're interested in

> buying

> > Solgar magnesium amino acid chelate (magnesium glycinate) at a

> good

> > price. I buy it locally at Whole Foods Store when it goes on sale

> and

> > stock up.

> >

> > Kim

> > Mom of (23 1/2 with cf and asthma) and (20 asthma no

> cf)

[Guest guest]

Margo,

I understand the dilemma about spacing meds. I remember so many times

when my son was younger, I thought " No one told me I had to become a

mathematical wizard to me a mom! " But boy, I sure got good at

creating charts!

Anyway, about the TOBI and minerals -- even though some TOBI gets out

of the lungs via the blood stream and can deplete total body

magnesium, I wouldn't worry so much about taking multivitamin/minerals

or magnesium supplements along with the TOBI.

TOBI is meant to work IN the lungs so it's doing it's job there. And

if you take oral magnesium around the same time as inhaling TOBI, then

the magnesium is going into the blood to do it's job there. Sure, the

oral magnesium in the blood circulates through the lungs but we

have magnesium in our body anyway so I don't think this additional

amount is much a concern.

It's just that continuously using TOBI -- along with other meds

commonly used in pwcf (along with malabsorption issues) -- then I

firmly believe that since TOBI escapes the lungs via the blood and can

deplete total body magnesium, a deficiency is created.

And if you don't put back the missing magnesium then you're going to

suffer the consequences: and in CF the consequences can be aches,

pains, cramps, osteoporosis, arthritis, impaired glucose regulation,

increased lung pH imbalance which leads to increased funky bacteria

and fungal infections, decreased PFTs, decreased stamina, decreased

appetite, increased fat malabsorption, headaches, insomnia,

irritability, depression -- you get the idea.

However, if we were talking about taking IV tobramycin or IV

gentamycin or any oral antibiotic, then I would definitely space the

doses of minerals so they don't compete for the same receptor site.

I know it's tricky spacing doses but the end result is so worth it.

Just two months after my son began taking magnesium along with

inhaling tea tree essential oil (not in his nebulizer!), he no longer

cultured aspergillus or Stenotrophomonas -- and the mucoid form of PA

that he'd cultured since 1998 was finally sensitive to ALL

antibiotics. And 10 months later, he no longer cultured the mucoid PA.

And he accomplished all this without resorting to IV antibiotics.

Several months ago, quite a few people on the Cystic-L wrote asking

for the information that helped . After I sent it to them, many

wrote back saying they finally felt better than they have in a long

time, and I'm so grateful they're feeling better. If you want copies

of what I sent them, please let me know. You might find something

useful there.

Kim

> > Hey Deb,

> >

> > I also meant to comment on the joint pain. Yes, Cipro can cause

> pain,

> > especially leg pain. Quinolone antibiotics, such as Cipro, can

> cause

> > tendon weakening and rupture. There have been cases reported in

> which

> > achilles tendon rupture occured months after using Cipro because

> the

> > tendon was weakend by the antibiotic.

> >

> > I remember the first time a friend of mine gave Cipro to her

> daughter

> > (with CF). This was maybe 1999, so she would have been around 12

> years

> > old.

> >

> > Her legs hurt so bad that she'd cry in pain; she couldn't walk --

> they

> > had to carry her to the bathroom (she was a tiny girl then and is

> tiny

> > teen now -- but then, her parents are both quite small too!).

> They'd

> > give her Tylenol 'round the clock but it didn't help.

> >

> > If there is joint/bone pain and you're not using a quinolone

> > antibiotic, please be sure they're getting enough magnesium in

> their

> > diets. This is so crucial, Deb.

> >

> > Magnesium is necessary for keeping calcium IN the teeth and bones

> > where most of it belongs. When you're low on magnesium, then

> calcium

> > leaches out of teeth and bones and deposits in joints and tissues,

> > causing arthritic pain.

> >

> > I believe the reason we're seeing a rise in " CF-related diabetes "

> and

> > " CF-related arthritis " is because many (many, many!) of the meds

> we

> > take deplete the body of magnesium.

> >

> > Additionally, our soils are now so depleted of minerals that our

> > foods are inferior. And if you have a water softener in your

> house,

> > then you're not getting minerals in your drinking water -- all the

> > minerals have been removed to make the water soft.

> >

> > Aside from the cellular importance of magnesium (regulates ATP,

> cell

> > signaling, etc.,) magnesium is crucial for regulating glucose and

> > maintaining calcium in bone.

> >

> > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > magnesium work together so you need a balance. Calcium contracts

> the

> > muscle, magnesium relaxes muscle. You can drink milk until the

> cows

> > come home, but if you're not getting enough magnesium then all

> that

> > calcium in dairy products is just wasted.

> >

> > If you or family members have digestive and malabsorption

> problems,

> > severe menstrual cramps, migraine or vascular headaches, asthma,

> heart

> > disease, hypertension, diabetes -- then you need to increase your

> > magnesium.

> >

> > Most magnesium sold today is magnesium oxide. Look at your

> > multivitamin/mineral label. If it's magnesium oxide don't count on

> it

> > working well; magnesium oxide is the least bioavailable form of

> all

> > magnesiums.

> >

> > You have to be careful to get the right type. Some magnesium are

> > magnesium salts, such as magnesium gluconate and magnesium

> citrate,

> > etc. These can cause loose stools, which further depletes the body

> in

> > minerals.

> >

> > After I discovered a magnesium deficiency in my son in January

> 2002

> > (no thanks to his doctor!), I started him on magnesium chloride.

> He

> > did fine with this. I also started taking it but didn't notice an

> > improvement. I switched to magnesium citrate but still wasn't

> seeing

> > improvement that I hoped for, so last August I switched to

> magnesium

> > glycinate. In TWO days I noticed a huge difference! I can now fall

> > asleep as soon as my head hits the pillow and I sleep restfully

> all

> > night and wake up well rested. I still get migraines but frequency

> > has decreased again.

> >

> > One big thing I learned is that I can't take magnesium after 5:00

> pm

> > or it peps me up so much that I'm up working until 2:00 am. So

> don't

> > give it to your kids in the evening if you expect them to sleep

> >

> > Since August, has been taking 200 mg. magnesium oxide (it

> was in

> > his GNC multivitamin/mineral) and another 200 mg. magnesium

> glycinate.

> > We use Solgar's " amino acid chelate, magnesium glycinate. "

> >

> > But last month (Jan. 18), he switched to a different

> > multi-vitamin/mineral (Glycentials by Mannatech). It has 500 mg.

> > magnesium oxide and magnesium glycinate (I don't know the break

> down

> > of how much of each). And he still takes an additional 100-200 mg.

> > Solgar magnesium glycinate.

> >

> > If you or your kids are using TOBI, albuterol, theophylline,

> Cipro,

> > Zithromax, etc. -- and drink caffeine beverages -- then you're

> losing

> > magnesium and need to supplement. If you aren't getting a daily

> supply

> > of fish, dried beans, some dark green veggies then you're not

> getting

> > enough magnesium from foods. There are only a couple fruits that

> > contain any good amount of magnesium.

> >

> > The most important thing to remember: DON'T take antibiotics

> within

> > two hours of taking magnesium or vitamin/mineral tablets

> containing

> > magnesium!

> >

> > Antibiotics (including Zithromax and Cipro) and magnesium compete

> for

> > the same receptor site. If you take them together then you cut the

> > potency of the antibiotics by 50%-90%. So if you're giving your

> kids a

> > multivitmain/mineral at the same time as you're giving

> antibiotics,

> > stop now! You MUST space them MINIMUM two hours apart!

> >

> > Many antibiotics shouldn't be taken with calcium either, so it's

> just

> > a good idea to dose antibiotics away from vitamin/mineral

> supplements

> > and antacids (i.e., Tums, Rolaids, etc.). And this is also why you

> > shouldn't drink calcium-fortified juices with your antibiotics!

> >

> > You can go to www.houseofnutrition.com if you're interested in

> buying

> > Solgar magnesium amino acid chelate (magnesium glycinate) at a

> good

> > price. I buy it locally at Whole Foods Store when it goes on sale

> and

> > stock up.

> >

> > Kim

> > Mom of (23 1/2 with cf and asthma) and (20 asthma no

> cf)

[Guest guest]

---Kim thanks for your quick response, this has got me very excitted

and I want to learn more. Would love for you to send me more info on

what helped . By the way Amber takes the inhaled Tobi, and

right now she is taking Prednisone and Sporanox. Do you think those

could have any side affects with magnesium?

Thank you so much.

Margo

In cfparents , " paynekimj <kimpayne@c...> "

<kimpayne@c...> wrote:

> Margo,

>

> I understand the dilemma about spacing meds. I remember times when

> my son was younger, thinking " No one told me I had to become a

> mathematical wizard to me a mom! " But boy, I should got good at

> creating charts.

>

> Anyway, even though some TOBI gets out of the lungs via the blood

> stream and can deplete total body magnesium, I would not worry

about

> taking a multivitamin/mineral or magnesium supplements along with

the

> TOBI.

>

> TOBI is meant to work IN the lungs so it's doing it's job there.

And

> if you take oral magnesium around the same time as inhaling TOBI,

then

> the magnesium is going into the blood to do it's job there. Sure,

the

> oral magnesium in the blood will circulate through the lungs but

we

> have magnesium in our body anyway so I don't think this is much a

> concern.

>

> It's just that over time, I firmly believe that since TOBI escapes

the

> lungs via the blood and can deplete total body magnesium, then a

> deficiency is created.

>

> And if you don't put back the missing magnesium then you're going

to

> suffer the consequences: and in CF the consequences can be aches,

> pains, cramps, osteoporosis, impaired glucose regulation,

increased

> lung lung pH imbalance which leads to increased funky bacteria and

> fungus infections, decreased PFTs, decreased stamina, headaches,

> insomnia, irritability, depression -- you get the idea.

>

> However, if we were talking about taking IV tobramycin or IV

> gentamycin or any oral antibiotic, then I would definitely space

the

> doses of minerals so they don't compete for the same receptor site.

>

> I know it's tricky spacing doses but the end result is so worth

it.

>

> Just two months after my son began taking magnesium along with

> inhaling tea tree essential oil (not in his nebulizer!), he no

longer

> cultured aspergillus or Stenotrophomonas -- and the mucoid form of

PA

> that he'd cultured since 1998 was finally sensitive to ALL

> antibiotics. And 10 months later, he no longer cultured the mucoid

PA.

>

> And he accomplished all this without resorting to IV antibiotics.

>

> Several months ago, quite a few people on the Cystic-L wrote

asking

> for the information that helped . After I sent it to them,

many

> wrote back saying they finally felt better than they have in a

long

> time, and I'm so grateful they're feeling better. If you want

copies

> of what I sent them, please let me know. You might find something

> useful there.

>

> Kim

>

>

>

>

> > > Hey Deb,

> > >

> > > I also meant to comment on the joint pain. Yes, Cipro can

cause

> > pain,

> > > especially leg pain. Quinolone antibiotics, such as Cipro, can

> > cause

> > > tendon weakening and rupture. There have been cases reported

in

> > which

> > > achilles tendon rupture occured months after using Cipro

because

> > the

> > > tendon was weakend by the antibiotic.

> > >

> > > I remember the first time a friend of mine gave Cipro to her

> > daughter

> > > (with CF). This was maybe 1999, so she would have been around

12

> > years

> > > old.

> > >

> > > Her legs hurt so bad that she'd cry in pain; she couldn't

walk --

> > they

> > > had to carry her to the bathroom (she was a tiny girl then and

is

> > tiny

> > > teen now -- but then, her parents are both quite small too!).

> > They'd

> > > give her Tylenol 'round the clock but it didn't help.

> > >

> > > If there is joint/bone pain and you're not using a quinolone

> > > antibiotic, please be sure they're getting enough magnesium in

> > their

> > > diets. This is so crucial, Deb.

> > >

> > > Magnesium is necessary for keeping calcium IN the teeth and

bones

> > > where most of it belongs. When you're low on magnesium, then

> > calcium

> > > leaches out of teeth and bones and deposits in joints and

tissues,

> > > causing arthritic pain.

> > >

> > > I believe the reason we're seeing a rise in " CF-related

diabetes "

> > and

> > > " CF-related arthritis " is because many (many, many!) of the

meds

> > we

> > > take deplete the body of magnesium.

> > >

> > > Additionally, our soils are now so depleted of minerals that

our

> > > foods are inferior. And if you have a water softener in your

> > house,

> > > then you're not getting minerals in your drinking water -- all

the

> > > minerals have been removed to make the water soft.

> > >

> > > Aside from the cellular importance of magnesium (regulates

ATP,

> > cell

> > > signaling, etc.,) magnesium is crucial for regulating glucose

and

> > > maintaining calcium in bone.

> > >

> > > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > > magnesium work together so you need a balance. Calcium

contracts

> > the

> > > muscle, magnesium relaxes muscle. You can drink milk until the

> > cows

> > > come home, but if you're not getting enough magnesium then all

> > that

> > > calcium in dairy products is just wasted.

> > >

> > > If you or family members have digestive and malabsorption

> > problems,

> > > severe menstrual cramps, migraine or vascular headaches,

asthma,

> > heart

> > > disease, hypertension, diabetes -- then you need to increase

your

> > > magnesium.

> > >

> > > Most magnesium sold today is magnesium oxide. Look at your

> > > multivitamin/mineral label. If it's magnesium oxide don't

count on

> > it

> > > working well; magnesium oxide is the least bioavailable form

of

> > all

> > > magnesiums.

> > >

> > > You have to be careful to get the right type. Some magnesium

are

> > > magnesium salts, such as magnesium gluconate and magnesium

> > citrate,

> > > etc. These can cause loose stools, which further depletes the

body

> > in

> > > minerals.

> > >

> > > After I discovered a magnesium deficiency in my son in January

> > 2002

> > > (no thanks to his doctor!), I started him on magnesium

chloride.

> > He

> > > did fine with this. I also started taking it but didn't notice

an

> > > improvement. I switched to magnesium citrate but still wasn't

> > seeing

> > > improvement that I hoped for, so last August I switched to

> > magnesium

> > > glycinate. In TWO days I noticed a huge difference! I can now

fall

> > > asleep as soon as my head hits the pillow and I sleep

restfully

> > all

> > > night and wake up well rested. I still get migraines but

frequency

> > > has decreased again.

> > >

> > > One big thing I learned is that I can't take magnesium after

5:00

> > pm

> > > or it peps me up so much that I'm up working until 2:00 am. So

> > don't

> > > give it to your kids in the evening if you expect them to

sleep

> > >

> > > Since August, has been taking 200 mg. magnesium oxide

(it

> > was in

> > > his GNC multivitamin/mineral) and another 200 mg. magnesium

> > glycinate.

> > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > >

> > > But last month (Jan. 18), he switched to a different

> > > multi-vitamin/mineral (Glycentials by Mannatech). It has 500

mg.

> > > magnesium oxide and magnesium glycinate (I don't know the

break

> > down

> > > of how much of each). And he still takes an additional 100-200

mg.

> > > Solgar magnesium glycinate.

> > >

> > > If you or your kids are using TOBI, albuterol, theophylline,

> > Cipro,

> > > Zithromax, etc. -- and drink caffeine beverages -- then you're

> > losing

> > > magnesium and need to supplement. If you aren't getting a

daily

> > supply

> > > of fish, dried beans, some dark green veggies then you're not

> > getting

> > > enough magnesium from foods. There are only a couple fruits

that

> > > contain any good amount of magnesium.

> > >

> > > The most important thing to remember: DON'T take antibiotics

> > within

> > > two hours of taking magnesium or vitamin/mineral tablets

> > containing

> > > magnesium!

> > >

> > > Antibiotics (including Zithromax and Cipro) and magnesium

compete

> > for

> > > the same receptor site. If you take them together then you cut

the

> > > potency of the antibiotics by 50%-90%. So if you're giving

your

> > kids a

> > > multivitmain/mineral at the same time as you're giving

> > antibiotics,

> > > stop now! You MUST space them MINIMUM two hours apart!

> > >

> > > Many antibiotics shouldn't be taken with calcium either, so

it's

> > just

> > > a good idea to dose antibiotics away from vitamin/mineral

> > supplements

> > > and antacids (i.e., Tums, Rolaids, etc.). And this is also why

you

> > > shouldn't drink calcium-fortified juices with your antibiotics!

> > >

> > > You can go to www.houseofnutrition.com if you're interested in

> > buying

> > > Solgar magnesium amino acid chelate (magnesium glycinate) at a

> > good

> > > price. I buy it locally at Whole Foods Store when it goes on

sale

> > and

> > > stock up.

> > >

> > > Kim

> > > Mom of (23 1/2 with cf and asthma) and (20 asthma

no

> > cf)

[Guest guest]

Kim - can I please have a copy of it too. My son Eddie is definately

lacking something. I just joined this group today, and I have never

heard of the magnesium deficiency before. Thank you.

, mom of Eddie 8 and Greg 6, both w/cf

> > > > Hey Deb,

> > > >

> > > > I also meant to comment on the joint pain. Yes, Cipro can

> cause

> > > pain,

> > > > especially leg pain. Quinolone antibiotics, such as Cipro,

can

> > > cause

> > > > tendon weakening and rupture. There have been cases reported

> in

> > > which

> > > > achilles tendon rupture occured months after using Cipro

> because

> > > the

> > > > tendon was weakend by the antibiotic.

> > > >

> > > > I remember the first time a friend of mine gave Cipro to her

> > > daughter

> > > > (with CF). This was maybe 1999, so she would have been around

> 12

> > > years

> > > > old.

> > > >

> > > > Her legs hurt so bad that she'd cry in pain; she couldn't

> walk --

> > > they

> > > > had to carry her to the bathroom (she was a tiny girl then

and

> is

> > > tiny

> > > > teen now -- but then, her parents are both quite small too!).

> > > They'd

> > > > give her Tylenol 'round the clock but it didn't help.

> > > >

> > > > If there is joint/bone pain and you're not using a quinolone

> > > > antibiotic, please be sure they're getting enough magnesium

in

> > > their

> > > > diets. This is so crucial, Deb.

> > > >

> > > > Magnesium is necessary for keeping calcium IN the teeth and

> bones

> > > > where most of it belongs. When you're low on magnesium, then

> > > calcium

> > > > leaches out of teeth and bones and deposits in joints and

> tissues,

> > > > causing arthritic pain.

> > > >

> > > > I believe the reason we're seeing a rise in " CF-related

> diabetes "

> > > and

> > > > " CF-related arthritis " is because many (many, many!) of the

> meds

> > > we

> > > > take deplete the body of magnesium.

> > > >

> > > > Additionally, our soils are now so depleted of minerals that

> our

> > > > foods are inferior. And if you have a water softener in your

> > > house,

> > > > then you're not getting minerals in your drinking water --

all

> the

> > > > minerals have been removed to make the water soft.

> > > >

> > > > Aside from the cellular importance of magnesium (regulates

> ATP,

> > > cell

> > > > signaling, etc.,) magnesium is crucial for regulating glucose

> and

> > > > maintaining calcium in bone.

> > > >

> > > > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > > > magnesium work together so you need a balance. Calcium

> contracts

> > > the

> > > > muscle, magnesium relaxes muscle. You can drink milk until

the

> > > cows

> > > > come home, but if you're not getting enough magnesium then

all

> > > that

> > > > calcium in dairy products is just wasted.

> > > >

> > > > If you or family members have digestive and malabsorption

> > > problems,

> > > > severe menstrual cramps, migraine or vascular headaches,

> asthma,

> > > heart

> > > > disease, hypertension, diabetes -- then you need to increase

> your

> > > > magnesium.

> > > >

> > > > Most magnesium sold today is magnesium oxide. Look at your

> > > > multivitamin/mineral label. If it's magnesium oxide don't

> count on

> > > it

> > > > working well; magnesium oxide is the least bioavailable form

> of

> > > all

> > > > magnesiums.

> > > >

> > > > You have to be careful to get the right type. Some magnesium

> are

> > > > magnesium salts, such as magnesium gluconate and magnesium

> > > citrate,

> > > > etc. These can cause loose stools, which further depletes the

> body

> > > in

> > > > minerals.

> > > >

> > > > After I discovered a magnesium deficiency in my son in

January

> > > 2002

> > > > (no thanks to his doctor!), I started him on magnesium

> chloride.

> > > He

> > > > did fine with this. I also started taking it but didn't

notice

> an

> > > > improvement. I switched to magnesium citrate but still wasn't

> > > seeing

> > > > improvement that I hoped for, so last August I switched to

> > > magnesium

> > > > glycinate. In TWO days I noticed a huge difference! I can now

> fall

> > > > asleep as soon as my head hits the pillow and I sleep

> restfully

> > > all

> > > > night and wake up well rested. I still get migraines but

> frequency

> > > > has decreased again.

> > > >

> > > > One big thing I learned is that I can't take magnesium after

> 5:00

> > > pm

> > > > or it peps me up so much that I'm up working until 2:00 am.

So

> > > don't

> > > > give it to your kids in the evening if you expect them to

> sleep

> > > >

> > > > Since August, has been taking 200 mg. magnesium oxide

> (it

> > > was in

> > > > his GNC multivitamin/mineral) and another 200 mg. magnesium

> > > glycinate.

> > > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > > >

> > > > But last month (Jan. 18), he switched to a different

> > > > multi-vitamin/mineral (Glycentials by Mannatech). It has 500

> mg.

> > > > magnesium oxide and magnesium glycinate (I don't know the

> break

> > > down

> > > > of how much of each). And he still takes an additional 100-

200

> mg.

> > > > Solgar magnesium glycinate.

> > > >

> > > > If you or your kids are using TOBI, albuterol, theophylline,

> > > Cipro,

> > > > Zithromax, etc. -- and drink caffeine beverages -- then

you're

> > > losing

> > > > magnesium and need to supplement. If you aren't getting a

> daily

> > > supply

> > > > of fish, dried beans, some dark green veggies then you're not

> > > getting

> > > > enough magnesium from foods. There are only a couple fruits

> that

> > > > contain any good amount of magnesium.

> > > >

> > > > The most important thing to remember: DON'T take antibiotics

> > > within

> > > > two hours of taking magnesium or vitamin/mineral tablets

> > > containing

> > > > magnesium!

> > > >

> > > > Antibiotics (including Zithromax and Cipro) and magnesium

> compete

> > > for

> > > > the same receptor site. If you take them together then you

cut

> the

> > > > potency of the antibiotics by 50%-90%. So if you're giving

> your

> > > kids a

> > > > multivitmain/mineral at the same time as you're giving

> > > antibiotics,

> > > > stop now! You MUST space them MINIMUM two hours apart!

> > > >

> > > > Many antibiotics shouldn't be taken with calcium either, so

> it's

> > > just

> > > > a good idea to dose antibiotics away from vitamin/mineral

> > > supplements

> > > > and antacids (i.e., Tums, Rolaids, etc.). And this is also

why

> you

> > > > shouldn't drink calcium-fortified juices with your

antibiotics!

> > > >

> > > > You can go to www.houseofnutrition.com if you're interested

in

> > > buying

> > > > Solgar magnesium amino acid chelate (magnesium glycinate) at

a

> > > good

> > > > price. I buy it locally at Whole Foods Store when it goes on

> sale

> > > and

> > > > stock up.

> > > >

> > > > Kim

> > > > Mom of (23 1/2 with cf and asthma) and (20

asthma

> no

> > > cf)

[Guest guest]

I would love to have the info that you gave to cystic-l on this. My home addy

is johndawn@... if you'd rather send it there.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

Margo,

I don't know about Sporanox, but Prednisone -- any corticosteroid --

will further deplete magnesium levels. So between TOBI and Prednisone

lowering magnesium, it's little wonder your horse-rider has joint

aches. Perhaps increasing magnesium will help her. It's worth a try.

When cultured aspergillus, I didn't want to think about him

going on any anti-fungal med such as Sporanox, and he's only had one

round of prednisone before -- with horrible results -- so I knew we

didn't want to revisit that route.

I'll send you the info. It's in four separate Microsoft Word

documents. If you have trouble downloading, let me know and I'll send

them one at a time.

Kim

> > > > Hey Deb,

> > > >

> > > > I also meant to comment on the joint pain. Yes, Cipro can

> cause

> > > pain,

> > > > especially leg pain. Quinolone antibiotics, such as Cipro, can

> > > cause

> > > > tendon weakening and rupture. There have been cases reported

> in

> > > which

> > > > achilles tendon rupture occured months after using Cipro

> because

> > > the

> > > > tendon was weakend by the antibiotic.

> > > >

> > > > I remember the first time a friend of mine gave Cipro to her

> > > daughter

> > > > (with CF). This was maybe 1999, so she would have been around

> 12

> > > years

> > > > old.

> > > >

> > > > Her legs hurt so bad that she'd cry in pain; she couldn't

> walk --

> > > they

> > > > had to carry her to the bathroom (she was a tiny girl then and

> is

> > > tiny

> > > > teen now -- but then, her parents are both quite small too!).

> > > They'd

> > > > give her Tylenol 'round the clock but it didn't help.

> > > >

> > > > If there is joint/bone pain and you're not using a quinolone

> > > > antibiotic, please be sure they're getting enough magnesium in

> > > their

> > > > diets. This is so crucial, Deb.

> > > >

> > > > Magnesium is necessary for keeping calcium IN the teeth and

> bones

> > > > where most of it belongs. When you're low on magnesium, then

> > > calcium

> > > > leaches out of teeth and bones and deposits in joints and

> tissues,

> > > > causing arthritic pain.

> > > >

> > > > I believe the reason we're seeing a rise in " CF-related

> diabetes "

> > > and

> > > > " CF-related arthritis " is because many (many, many!) of the

> meds

> > > we

> > > > take deplete the body of magnesium.

> > > >

> > > > Additionally, our soils are now so depleted of minerals that

> our

> > > > foods are inferior. And if you have a water softener in your

> > > house,

> > > > then you're not getting minerals in your drinking water -- all

> the

> > > > minerals have been removed to make the water soft.

> > > >

> > > > Aside from the cellular importance of magnesium (regulates

> ATP,

> > > cell

> > > > signaling, etc.,) magnesium is crucial for regulating glucose

> and

> > > > maintaining calcium in bone.

> > > >

> > > > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > > > magnesium work together so you need a balance. Calcium

> contracts

> > > the

> > > > muscle, magnesium relaxes muscle. You can drink milk until the

> > > cows

> > > > come home, but if you're not getting enough magnesium then all

> > > that

> > > > calcium in dairy products is just wasted.

> > > >

> > > > If you or family members have digestive and malabsorption

> > > problems,

> > > > severe menstrual cramps, migraine or vascular headaches,

> asthma,

> > > heart

> > > > disease, hypertension, diabetes -- then you need to increase

> your

> > > > magnesium.

> > > >

> > > > Most magnesium sold today is magnesium oxide. Look at your

> > > > multivitamin/mineral label. If it's magnesium oxide don't

> count on

> > > it

> > > > working well; magnesium oxide is the least bioavailable form

> of

> > > all

> > > > magnesiums.

> > > >

> > > > You have to be careful to get the right type. Some magnesium

> are

> > > > magnesium salts, such as magnesium gluconate and magnesium

> > > citrate,

> > > > etc. These can cause loose stools, which further depletes the

> body

> > > in

> > > > minerals.

> > > >

> > > > After I discovered a magnesium deficiency in my son in January

> > > 2002

> > > > (no thanks to his doctor!), I started him on magnesium

> chloride.

> > > He

> > > > did fine with this. I also started taking it but didn't notice

> an

> > > > improvement. I switched to magnesium citrate but still wasn't

> > > seeing

> > > > improvement that I hoped for, so last August I switched to

> > > magnesium

> > > > glycinate. In TWO days I noticed a huge difference! I can now

> fall

> > > > asleep as soon as my head hits the pillow and I sleep

> restfully

> > > all

> > > > night and wake up well rested. I still get migraines but

> frequency

> > > > has decreased again.

> > > >

> > > > One big thing I learned is that I can't take magnesium after

> 5:00

> > > pm

> > > > or it peps me up so much that I'm up working until 2:00 am. So

> > > don't

> > > > give it to your kids in the evening if you expect them to

> sleep

> > > >

> > > > Since August, has been taking 200 mg. magnesium oxide

> (it

> > > was in

> > > > his GNC multivitamin/mineral) and another 200 mg. magnesium

> > > glycinate.

> > > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > > >

> > > > But last month (Jan. 18), he switched to a different

> > > > multi-vitamin/mineral (Glycentials by Mannatech). It has 500

> mg.

> > > > magnesium oxide and magnesium glycinate (I don't know the

> break

> > > down

> > > > of how much of each). And he still takes an additional 100-200

> mg.

> > > > Solgar magnesium glycinate.

> > > >

> > > > If you or your kids are using TOBI, albuterol, theophylline,

> > > Cipro,

> > > > Zithromax, etc. -- and drink caffeine beverages -- then you're

> > > losing

> > > > magnesium and need to supplement. If you aren't getting a

> daily

> > > supply

> > > > of fish, dried beans, some dark green veggies then you're not

> > > getting

> > > > enough magnesium from foods. There are only a couple fruits

> that

> > > > contain any good amount of magnesium.

> > > >

> > > > The most important thing to remember: DON'T take antibiotics

> > > within

> > > > two hours of taking magnesium or vitamin/mineral tablets

> > > containing

> > > > magnesium!

> > > >

> > > > Antibiotics (including Zithromax and Cipro) and magnesium

> compete

> > > for

> > > > the same receptor site. If you take them together then you cut

> the

> > > > potency of the antibiotics by 50%-90%. So if you're giving

> your

> > > kids a

> > > > multivitmain/mineral at the same time as you're giving

> > > antibiotics,

> > > > stop now! You MUST space them MINIMUM two hours apart!

> > > >

> > > > Many antibiotics shouldn't be taken with calcium either, so

> it's

> > > just

> > > > a good idea to dose antibiotics away from vitamin/mineral

> > > supplements

> > > > and antacids (i.e., Tums, Rolaids, etc.). And this is also why

> you

> > > > shouldn't drink calcium-fortified juices with your

antibiotics!

> > > >

> > > > You can go to www.houseofnutrition.com if you're interested in

> > > buying

> > > > Solgar magnesium amino acid chelate (magnesium glycinate) at a

> > > good

> > > > price. I buy it locally at Whole Foods Store when it goes on

> sale

> > > and

> > > > stock up.

> > > >

> > > > Kim

> > > > Mom of (23 1/2 with cf and asthma) and (20 asthma

> no

> > > cf)

[Guest guest]

Margo,

I don't know about Sporanox, but Prednisone -- any corticosteroid --

will further deplete magnesium levels. So between TOBI and Prednisone

lowering magnesium, it's little wonder your horse-rider has joint

aches. Perhaps increasing magnesium will help her. It's worth a try.

When cultured aspergillus, I didn't want to think about him

going on any anti-fungal med such as Sporanox, and he's only had one

round of prednisone before -- with horrible results -- so I knew we

didn't want to revisit that route.

I'll send you the info. It's in four separate Microsoft Word

documents. If you have trouble downloading, let me know and I'll send

them one at a time.

Kim

> > > > Hey Deb,

> > > >

> > > > I also meant to comment on the joint pain. Yes, Cipro can

> cause

> > > pain,

> > > > especially leg pain. Quinolone antibiotics, such as Cipro, can

> > > cause

> > > > tendon weakening and rupture. There have been cases reported

> in

> > > which

> > > > achilles tendon rupture occured months after using Cipro

> because

> > > the

> > > > tendon was weakend by the antibiotic.

> > > >

> > > > I remember the first time a friend of mine gave Cipro to her

> > > daughter

> > > > (with CF). This was maybe 1999, so she would have been around

> 12

> > > years

> > > > old.

> > > >

> > > > Her legs hurt so bad that she'd cry in pain; she couldn't

> walk --

> > > they

> > > > had to carry her to the bathroom (she was a tiny girl then and

> is

> > > tiny

> > > > teen now -- but then, her parents are both quite small too!).

> > > They'd

> > > > give her Tylenol 'round the clock but it didn't help.

> > > >

> > > > If there is joint/bone pain and you're not using a quinolone

> > > > antibiotic, please be sure they're getting enough magnesium in

> > > their

> > > > diets. This is so crucial, Deb.

> > > >

> > > > Magnesium is necessary for keeping calcium IN the teeth and

> bones

> > > > where most of it belongs. When you're low on magnesium, then

> > > calcium

> > > > leaches out of teeth and bones and deposits in joints and

> tissues,

> > > > causing arthritic pain.

> > > >

> > > > I believe the reason we're seeing a rise in " CF-related

> diabetes "

> > > and

> > > > " CF-related arthritis " is because many (many, many!) of the

> meds

> > > we

> > > > take deplete the body of magnesium.

> > > >

> > > > Additionally, our soils are now so depleted of minerals that

> our

> > > > foods are inferior. And if you have a water softener in your

> > > house,

> > > > then you're not getting minerals in your drinking water -- all

> the

> > > > minerals have been removed to make the water soft.

> > > >

> > > > Aside from the cellular importance of magnesium (regulates

> ATP,

> > > cell

> > > > signaling, etc.,) magnesium is crucial for regulating glucose

> and

> > > > maintaining calcium in bone.

> > > >

> > > > Muscle cramps are a sign of magnesium deficiency. Calcium and

> > > > magnesium work together so you need a balance. Calcium

> contracts

> > > the

> > > > muscle, magnesium relaxes muscle. You can drink milk until the

> > > cows

> > > > come home, but if you're not getting enough magnesium then all

> > > that

> > > > calcium in dairy products is just wasted.

> > > >

> > > > If you or family members have digestive and malabsorption

> > > problems,

> > > > severe menstrual cramps, migraine or vascular headaches,

> asthma,

> > > heart

> > > > disease, hypertension, diabetes -- then you need to increase

> your

> > > > magnesium.

> > > >

> > > > Most magnesium sold today is magnesium oxide. Look at your

> > > > multivitamin/mineral label. If it's magnesium oxide don't

> count on

> > > it

> > > > working well; magnesium oxide is the least bioavailable form

> of

> > > all

> > > > magnesiums.

> > > >

> > > > You have to be careful to get the right type. Some magnesium

> are

> > > > magnesium salts, such as magnesium gluconate and magnesium

> > > citrate,

> > > > etc. These can cause loose stools, which further depletes the

> body

> > > in

> > > > minerals.

> > > >

> > > > After I discovered a magnesium deficiency in my son in January

> > > 2002

> > > > (no thanks to his doctor!), I started him on magnesium

> chloride.

> > > He

> > > > did fine with this. I also started taking it but didn't notice

> an

> > > > improvement. I switched to magnesium citrate but still wasn't

> > > seeing

> > > > improvement that I hoped for, so last August I switched to

> > > magnesium

> > > > glycinate. In TWO days I noticed a huge difference! I can now

> fall

> > > > asleep as soon as my head hits the pillow and I sleep

> restfully

> > > all

> > > > night and wake up well rested. I still get migraines but

> frequency

> > > > has decreased again.

> > > >

> > > > One big thing I learned is that I can't take magnesium after

> 5:00

> > > pm

> > > > or it peps me up so much that I'm up working until 2:00 am. So

> > > don't

> > > > give it to your kids in the evening if you expect them to

> sleep

> > > >

> > > > Since August, has been taking 200 mg. magnesium oxide

> (it

> > > was in

> > > > his GNC multivitamin/mineral) and another 200 mg. magnesium

> > > glycinate.

> > > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > > >

> > > > But last month (Jan. 18), he switched to a different

> > > > multi-vitamin/mineral (Glycentials by Mannatech). It has 500

> mg.

> > > > magnesium oxide and magnesium glycinate (I don't know the

> break

> > > down

> > > > of how much of each). And he still takes an additional 100-200

> mg.

> > > > Solgar magnesium glycinate.

> > > >

> > > > If you or your kids are using TOBI, albuterol, theophylline,

> > > Cipro,

> > > > Zithromax, etc. -- and drink caffeine beverages -- then you're

> > > losing

> > > > magnesium and need to supplement. If you aren't getting a

> daily

> > > supply

> > > > of fish, dried beans, some dark green veggies then you're not

> > > getting

> > > > enough magnesium from foods. There are only a couple fruits

> that

> > > > contain any good amount of magnesium.

> > > >

> > > > The most important thing to remember: DON'T take antibiotics

> > > within

> > > > two hours of taking magnesium or vitamin/mineral tablets

> > > containing

> > > > magnesium!

> > > >

> > > > Antibiotics (including Zithromax and Cipro) and magnesium

> compete

> > > for

> > > > the same receptor site. If you take them together then you cut

> the

> > > > potency of the antibiotics by 50%-90%. So if you're giving

> your

> > > kids a

> > > > multivitmain/mineral at the same time as you're giving

> > > antibiotics,

> > > > stop now! You MUST space them MINIMUM two hours apart!

> > > >

> > > > Many antibiotics shouldn't be taken with calcium either, so

> it's

> > > just

> > > > a good idea to dose antibiotics away from vitamin/mineral

> > > supplements

> > > > and antacids (i.e., Tums, Rolaids, etc.). And this is also why

> you

> > > > shouldn't drink calcium-fortified juices with your

antibiotics!

> > > >

> > > > You can go to www.houseofnutrition.com if you're interested in

> > > buying

> > > > Solgar magnesium amino acid chelate (magnesium glycinate) at a

> > > good

> > > > price. I buy it locally at Whole Foods Store when it goes on

> sale

> > > and

> > > > stock up.

> > > >

> > > > Kim

> > > > Mom of (23 1/2 with cf and asthma) and (20 asthma

> no

> > > cf)

[Guest guest]

--- Yes Kim this Prednisone episode has been a tough one, she is now

tapering off, TG. She cultured Aspergillus 3 months ago and it has

taken that long to see the count go down. She is taking 500 mg of

Calcium + Vit D morning and night.

Thank you for all the info on this.

Margo

In cfparents , " paynekimj <kimpayne@c...> "

<kimpayne@c...> wrote:

> Margo,

>

> I don't know about Sporanox, but Prednisone -- any corticosteroid -

-

> will further deplete magnesium levels. So between TOBI and

Prednisone

> lowering magnesium, it's little wonder your horse-rider has joint

> aches. Perhaps increasing magnesium will help her. It's worth a

try.

>

> When cultured aspergillus, I didn't want to think about him

> going on any anti-fungal med such as Sporanox, and he's only had

one

> round of prednisone before -- with horrible results -- so I knew

we

> didn't want to revisit that route.

>

> I'll send you the info. It's in four separate Microsoft Word

> documents. If you have trouble downloading, let me know and I'll

send

> them one at a time.

>

> Kim

>

>

>

>

> > > > > Hey Deb,

> > > > >

> > > > > I also meant to comment on the joint pain. Yes, Cipro can

> > cause

> > > > pain,

> > > > > especially leg pain. Quinolone antibiotics, such as Cipro,

can

> > > > cause

> > > > > tendon weakening and rupture. There have been cases

reported

> > in

> > > > which

> > > > > achilles tendon rupture occured months after using Cipro

> > because

> > > > the

> > > > > tendon was weakend by the antibiotic.

> > > > >

> > > > > I remember the first time a friend of mine gave Cipro to

her

> > > > daughter

> > > > > (with CF). This was maybe 1999, so she would have been

around

> > 12

> > > > years

> > > > > old.

> > > > >

> > > > > Her legs hurt so bad that she'd cry in pain; she couldn't

> > walk --

> > > > they

> > > > > had to carry her to the bathroom (she was a tiny girl then

and

> > is

> > > > tiny

> > > > > teen now -- but then, her parents are both quite small

too!).

> > > > They'd

> > > > > give her Tylenol 'round the clock but it didn't help.

> > > > >

> > > > > If there is joint/bone pain and you're not using a

quinolone

> > > > > antibiotic, please be sure they're getting enough

magnesium in

> > > > their

> > > > > diets. This is so crucial, Deb.

> > > > >

> > > > > Magnesium is necessary for keeping calcium IN the teeth

and

> > bones

> > > > > where most of it belongs. When you're low on magnesium,

then

> > > > calcium

> > > > > leaches out of teeth and bones and deposits in joints and

> > tissues,

> > > > > causing arthritic pain.

> > > > >

> > > > > I believe the reason we're seeing a rise in " CF-related

> > diabetes "

> > > > and

> > > > > " CF-related arthritis " is because many (many, many!) of

the

> > meds

> > > > we

> > > > > take deplete the body of magnesium.

> > > > >

> > > > > Additionally, our soils are now so depleted of minerals

that

> > our

> > > > > foods are inferior. And if you have a water softener in

your

> > > > house,

> > > > > then you're not getting minerals in your drinking water --

all

> > the

> > > > > minerals have been removed to make the water soft.

> > > > >

> > > > > Aside from the cellular importance of magnesium (regulates

> > ATP,

> > > > cell

> > > > > signaling, etc.,) magnesium is crucial for regulating

glucose

> > and

> > > > > maintaining calcium in bone.

> > > > >

> > > > > Muscle cramps are a sign of magnesium deficiency. Calcium

and

> > > > > magnesium work together so you need a balance. Calcium

> > contracts

> > > > the

> > > > > muscle, magnesium relaxes muscle. You can drink milk until

the

> > > > cows

> > > > > come home, but if you're not getting enough magnesium then

all

> > > > that

> > > > > calcium in dairy products is just wasted.

> > > > >

> > > > > If you or family members have digestive and malabsorption

> > > > problems,

> > > > > severe menstrual cramps, migraine or vascular headaches,

> > asthma,

> > > > heart

> > > > > disease, hypertension, diabetes -- then you need to

increase

> > your

> > > > > magnesium.

> > > > >

> > > > > Most magnesium sold today is magnesium oxide. Look at your

> > > > > multivitamin/mineral label. If it's magnesium oxide don't

> > count on

> > > > it

> > > > > working well; magnesium oxide is the least bioavailable

form

> > of

> > > > all

> > > > > magnesiums.

> > > > >

> > > > > You have to be careful to get the right type. Some

magnesium

> > are

> > > > > magnesium salts, such as magnesium gluconate and magnesium

> > > > citrate,

> > > > > etc. These can cause loose stools, which further depletes

the

> > body

> > > > in

> > > > > minerals.

> > > > >

> > > > > After I discovered a magnesium deficiency in my son in

January

> > > > 2002

> > > > > (no thanks to his doctor!), I started him on magnesium

> > chloride.

> > > > He

> > > > > did fine with this. I also started taking it but didn't

notice

> > an

> > > > > improvement. I switched to magnesium citrate but still

wasn't

> > > > seeing

> > > > > improvement that I hoped for, so last August I switched to

> > > > magnesium

> > > > > glycinate. In TWO days I noticed a huge difference! I can

now

> > fall

> > > > > asleep as soon as my head hits the pillow and I sleep

> > restfully

> > > > all

> > > > > night and wake up well rested. I still get migraines but

> > frequency

> > > > > has decreased again.

> > > > >

> > > > > One big thing I learned is that I can't take magnesium

after

> > 5:00

> > > > pm

> > > > > or it peps me up so much that I'm up working until 2:00

am. So

> > > > don't

> > > > > give it to your kids in the evening if you expect them to

> > sleep

> > > > >

> > > > > Since August, has been taking 200 mg. magnesium

oxide

> > (it

> > > > was in

> > > > > his GNC multivitamin/mineral) and another 200 mg.

magnesium

> > > > glycinate.

> > > > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > > > >

> > > > > But last month (Jan. 18), he switched to a different

> > > > > multi-vitamin/mineral (Glycentials by Mannatech). It has

500

> > mg.

> > > > > magnesium oxide and magnesium glycinate (I don't know the

> > break

> > > > down

> > > > > of how much of each). And he still takes an additional 100-

200

> > mg.

> > > > > Solgar magnesium glycinate.

> > > > >

> > > > > If you or your kids are using TOBI, albuterol,

theophylline,

> > > > Cipro,

> > > > > Zithromax, etc. -- and drink caffeine beverages -- then

you're

> > > > losing

> > > > > magnesium and need to supplement. If you aren't getting a

> > daily

> > > > supply

> > > > > of fish, dried beans, some dark green veggies then you're

not

> > > > getting

> > > > > enough magnesium from foods. There are only a couple

fruits

> > that

> > > > > contain any good amount of magnesium.

> > > > >

> > > > > The most important thing to remember: DON'T take

antibiotics

> > > > within

> > > > > two hours of taking magnesium or vitamin/mineral tablets

> > > > containing

> > > > > magnesium!

> > > > >

> > > > > Antibiotics (including Zithromax and Cipro) and magnesium

> > compete

> > > > for

> > > > > the same receptor site. If you take them together then you

cut

> > the

> > > > > potency of the antibiotics by 50%-90%. So if you're giving

> > your

> > > > kids a

> > > > > multivitmain/mineral at the same time as you're giving

> > > > antibiotics,

> > > > > stop now! You MUST space them MINIMUM two hours apart!

> > > > >

> > > > > Many antibiotics shouldn't be taken with calcium either,

so

> > it's

> > > > just

> > > > > a good idea to dose antibiotics away from vitamin/mineral

> > > > supplements

> > > > > and antacids (i.e., Tums, Rolaids, etc.). And this is also

why

> > you

> > > > > shouldn't drink calcium-fortified juices with your

> antibiotics!

> > > > >

> > > > > You can go to www.houseofnutrition.com if you're

interested in

> > > > buying

> > > > > Solgar magnesium amino acid chelate (magnesium glycinate)

at a

> > > > good

> > > > > price. I buy it locally at Whole Foods Store when it goes

on

> > sale

> > > > and

> > > > > stock up.

> > > > >

> > > > > Kim

> > > > > Mom of (23 1/2 with cf and asthma) and (20

asthma

> > no

> > > > cf)

[Guest guest]

--- Yes Kim this Prednisone episode has been a tough one, she is now

tapering off, TG. She cultured Aspergillus 3 months ago and it has

taken that long to see the count go down. She is taking 500 mg of

Calcium + Vit D morning and night.

Thank you for all the info on this.

Margo

In cfparents , " paynekimj <kimpayne@c...> "

<kimpayne@c...> wrote:

> Margo,

>

> I don't know about Sporanox, but Prednisone -- any corticosteroid -

-

> will further deplete magnesium levels. So between TOBI and

Prednisone

> lowering magnesium, it's little wonder your horse-rider has joint

> aches. Perhaps increasing magnesium will help her. It's worth a

try.

>

> When cultured aspergillus, I didn't want to think about him

> going on any anti-fungal med such as Sporanox, and he's only had

one

> round of prednisone before -- with horrible results -- so I knew

we

> didn't want to revisit that route.

>

> I'll send you the info. It's in four separate Microsoft Word

> documents. If you have trouble downloading, let me know and I'll

send

> them one at a time.

>

> Kim

>

>

>

>

> > > > > Hey Deb,

> > > > >

> > > > > I also meant to comment on the joint pain. Yes, Cipro can

> > cause

> > > > pain,

> > > > > especially leg pain. Quinolone antibiotics, such as Cipro,

can

> > > > cause

> > > > > tendon weakening and rupture. There have been cases

reported

> > in

> > > > which

> > > > > achilles tendon rupture occured months after using Cipro

> > because

> > > > the

> > > > > tendon was weakend by the antibiotic.

> > > > >

> > > > > I remember the first time a friend of mine gave Cipro to

her

> > > > daughter

> > > > > (with CF). This was maybe 1999, so she would have been

around

> > 12

> > > > years

> > > > > old.

> > > > >

> > > > > Her legs hurt so bad that she'd cry in pain; she couldn't

> > walk --

> > > > they

> > > > > had to carry her to the bathroom (she was a tiny girl then

and

> > is

> > > > tiny

> > > > > teen now -- but then, her parents are both quite small

too!).

> > > > They'd

> > > > > give her Tylenol 'round the clock but it didn't help.

> > > > >

> > > > > If there is joint/bone pain and you're not using a

quinolone

> > > > > antibiotic, please be sure they're getting enough

magnesium in

> > > > their

> > > > > diets. This is so crucial, Deb.

> > > > >

> > > > > Magnesium is necessary for keeping calcium IN the teeth

and

> > bones

> > > > > where most of it belongs. When you're low on magnesium,

then

> > > > calcium

> > > > > leaches out of teeth and bones and deposits in joints and

> > tissues,

> > > > > causing arthritic pain.

> > > > >

> > > > > I believe the reason we're seeing a rise in " CF-related

> > diabetes "

> > > > and

> > > > > " CF-related arthritis " is because many (many, many!) of

the

> > meds

> > > > we

> > > > > take deplete the body of magnesium.

> > > > >

> > > > > Additionally, our soils are now so depleted of minerals

that

> > our

> > > > > foods are inferior. And if you have a water softener in

your

> > > > house,

> > > > > then you're not getting minerals in your drinking water --

all

> > the

> > > > > minerals have been removed to make the water soft.

> > > > >

> > > > > Aside from the cellular importance of magnesium (regulates

> > ATP,

> > > > cell

> > > > > signaling, etc.,) magnesium is crucial for regulating

glucose

> > and

> > > > > maintaining calcium in bone.

> > > > >

> > > > > Muscle cramps are a sign of magnesium deficiency. Calcium

and

> > > > > magnesium work together so you need a balance. Calcium

> > contracts

> > > > the

> > > > > muscle, magnesium relaxes muscle. You can drink milk until

the

> > > > cows

> > > > > come home, but if you're not getting enough magnesium then

all

> > > > that

> > > > > calcium in dairy products is just wasted.

> > > > >

> > > > > If you or family members have digestive and malabsorption

> > > > problems,

> > > > > severe menstrual cramps, migraine or vascular headaches,

> > asthma,

> > > > heart

> > > > > disease, hypertension, diabetes -- then you need to

increase

> > your

> > > > > magnesium.

> > > > >

> > > > > Most magnesium sold today is magnesium oxide. Look at your

> > > > > multivitamin/mineral label. If it's magnesium oxide don't

> > count on

> > > > it

> > > > > working well; magnesium oxide is the least bioavailable

form

> > of

> > > > all

> > > > > magnesiums.

> > > > >

> > > > > You have to be careful to get the right type. Some

magnesium

> > are

> > > > > magnesium salts, such as magnesium gluconate and magnesium

> > > > citrate,

> > > > > etc. These can cause loose stools, which further depletes

the

> > body

> > > > in

> > > > > minerals.

> > > > >

> > > > > After I discovered a magnesium deficiency in my son in

January

> > > > 2002

> > > > > (no thanks to his doctor!), I started him on magnesium

> > chloride.

> > > > He

> > > > > did fine with this. I also started taking it but didn't

notice

> > an

> > > > > improvement. I switched to magnesium citrate but still

wasn't

> > > > seeing

> > > > > improvement that I hoped for, so last August I switched to

> > > > magnesium

> > > > > glycinate. In TWO days I noticed a huge difference! I can

now

> > fall

> > > > > asleep as soon as my head hits the pillow and I sleep

> > restfully

> > > > all

> > > > > night and wake up well rested. I still get migraines but

> > frequency

> > > > > has decreased again.

> > > > >

> > > > > One big thing I learned is that I can't take magnesium

after

> > 5:00

> > > > pm

> > > > > or it peps me up so much that I'm up working until 2:00

am. So

> > > > don't

> > > > > give it to your kids in the evening if you expect them to

> > sleep

> > > > >

> > > > > Since August, has been taking 200 mg. magnesium

oxide

> > (it

> > > > was in

> > > > > his GNC multivitamin/mineral) and another 200 mg.

magnesium

> > > > glycinate.

> > > > > We use Solgar's " amino acid chelate, magnesium glycinate. "

> > > > >

> > > > > But last month (Jan. 18), he switched to a different

> > > > > multi-vitamin/mineral (Glycentials by Mannatech). It has

500

> > mg.

> > > > > magnesium oxide and magnesium glycinate (I don't know the

> > break

> > > > down

> > > > > of how much of each). And he still takes an additional 100-

200

> > mg.

> > > > > Solgar magnesium glycinate.

> > > > >

> > > > > If you or your kids are using TOBI, albuterol,

theophylline,

> > > > Cipro,

> > > > > Zithromax, etc. -- and drink caffeine beverages -- then

you're

> > > > losing

> > > > > magnesium and need to supplement. If you aren't getting a

> > daily

> > > > supply

> > > > > of fish, dried beans, some dark green veggies then you're

not

> > > > getting

> > > > > enough magnesium from foods. There are only a couple

fruits

> > that

> > > > > contain any good amount of magnesium.

> > > > >

> > > > > The most important thing to remember: DON'T take

antibiotics

> > > > within

> > > > > two hours of taking magnesium or vitamin/mineral tablets

> > > > containing

> > > > > magnesium!

> > > > >

> > > > > Antibiotics (including Zithromax and Cipro) and magnesium

> > compete

> > > > for

> > > > > the same receptor site. If you take them together then you

cut

> > the

> > > > > potency of the antibiotics by 50%-90%. So if you're giving

> > your

> > > > kids a

> > > > > multivitmain/mineral at the same time as you're giving

> > > > antibiotics,

> > > > > stop now! You MUST space them MINIMUM two hours apart!

> > > > >

> > > > > Many antibiotics shouldn't be taken with calcium either,

so

> > it's

> > > > just

> > > > > a good idea to dose antibiotics away from vitamin/mineral

> > > > supplements

> > > > > and antacids (i.e., Tums, Rolaids, etc.). And this is also

why

> > you

> > > > > shouldn't drink calcium-fortified juices with your

> antibiotics!

> > > > >

> > > > > You can go to www.houseofnutrition.com if you're

interested in

> > > > buying

> > > > > Solgar magnesium amino acid chelate (magnesium glycinate)

at a

> > > > good

> > > > > price. I buy it locally at Whole Foods Store when it goes

on

> > sale

> > > > and

> > > > > stock up.

> > > > >

> > > > > Kim

> > > > > Mom of (23 1/2 with cf and asthma) and (20

asthma

> > no

> > > > cf)