Re: LOOKING FOR ADVICE AND INFORMATION AND A GOOD DR

[Guest guest]

> Hello, my name is Ralph and I am from NH and looking for a

good DR.

I have no idea what EUS Assisted Nerve Block DR is.?

Also another thing, is chronic pancreatitis heredity?

Ralph

Dear Ralph,

Unfortunately I don't know of any specialists in your area. One

thing you might do is call the NH medical board and ask for a

referral to a gastroenterolgist, then when you get a list of names,

call these physicians and ask if any of them specialize in

pancreatic problems.

We do have some members in the group that had used

physicians in Mass., but they haven't listed their names on our

doctor's database, unfortunately. Maybe one of our Mass. or

Maine members could help out here???

An EUS assisted nerve block is where they use an endoscopy

procedure to locate the nerves in the spinal column to inject

alcohol into the nerves to block the pancreas pain. This

procedure is supposed to be very effective and long lasting, but it

is highly specialized and there are only a handful of doctor's in

the country that do it. There are other types of nerve blocks that

are done with x-rays used to located the nerves which are not

always that successful.

Yes, chronic pancreatitis can be heriditary? Do you have

someone else in your bloodline that has chronic pancreatitis?

If you can tell us a little more about yourself, perhaps we can

help you with other questions.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

> Hello, my name is Ralph and I am from NH and looking for a

good DR.

I have no idea what EUS Assisted Nerve Block DR is.?

Also another thing, is chronic pancreatitis heredity?

Ralph

Dear Ralph,

Unfortunately I don't know of any specialists in your area. One

thing you might do is call the NH medical board and ask for a

referral to a gastroenterolgist, then when you get a list of names,

call these physicians and ask if any of them specialize in

pancreatic problems.

We do have some members in the group that had used

physicians in Mass., but they haven't listed their names on our

doctor's database, unfortunately. Maybe one of our Mass. or

Maine members could help out here???

An EUS assisted nerve block is where they use an endoscopy

procedure to locate the nerves in the spinal column to inject

alcohol into the nerves to block the pancreas pain. This

procedure is supposed to be very effective and long lasting, but it

is highly specialized and there are only a handful of doctor's in

the country that do it. There are other types of nerve blocks that

are done with x-rays used to located the nerves which are not

always that successful.

Yes, chronic pancreatitis can be heriditary? Do you have

someone else in your bloodline that has chronic pancreatitis?

If you can tell us a little more about yourself, perhaps we can

help you with other questions.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

Hello, My name is Ralph and I am 34 years old and over weight. I am having a

BIG PROBLEM.!!

I am having a hard time with my DR to listen to me and understand the pain I am

going threw and I am having a big concern about my pain that it is due to my

stomach or my Pancreases.

I am having LOTS of pain on my right side around and near my liver, gallbladder,

pancreases. They have done a Ultrasound and on the Ultrasound, they said that

my liver was enlarged but on the CT it shows my liver Normal. They did the

Ultrasound to look at my gallbladder and stones. They found nothing. They did

blood work on my liver and kidneys and they all came back normal. They also did

a hepatitis test, just because they said, I think it was cause of the ultrasound

but the CT said different and so didn't the liver function test was all normal.

I am not having no luck on them doing any other blood work or maybe doing a

endoscopy and I really think I need it. I have been suffering for a month now

and it is getting worse.

I have lots of pain and tightness in the middle of my abdomen and then around my

liver,gallbladder,pancreases, and having pain go right around my side into my

back and around my kidneys, (flank pain) and I will get spasms in my back. I

belch allot and I do have a greasy looking stool and just not right on the

smell, not to say I smell it much but it is different, I think. I have some

difficulty swallowing and pass gas allot.

I am looking for help and some advice. I am so scared and don't want to wait

until it becomes a 911 matter. but I am hurting so bad and need help and anytime

I go to the ER, I get crap from them and for me to follow up with my PCP, they

tell me and then get no where with that.

I was not sure if there is anything maybe you could do to help me out and

suggest anything or something. Please get back to me.

I don't have a blood line of chronic pancreatitis , but had a grandmother with

stomach cancer, but she was 71 and my grandfather was 86 with prostrate cancer.

That is it for cancer that I am totally unaware of in my family, from my mothers

side and father side and both cancer people was from my dad's side..

Thanks so very much,

Ralph

Re: LOOKING FOR ADVICE AND INFORMATION AND A GOOD DR

> Hello, my name is Ralph and I am from NH and looking for a

good DR.

I have no idea what EUS Assisted Nerve Block DR is.?

Also another thing, is chronic pancreatitis heredity?

Ralph

Dear Ralph,

Unfortunately I don't know of any specialists in your area. One

thing you might do is call the NH medical board and ask for a

referral to a gastroenterolgist, then when you get a list of names,

call these physicians and ask if any of them specialize in

pancreatic problems.

We do have some members in the group that had used

physicians in Mass., but they haven't listed their names on our

doctor's database, unfortunately. Maybe one of our Mass. or

Maine members could help out here???

An EUS assisted nerve block is where they use an endoscopy

procedure to locate the nerves in the spinal column to inject

alcohol into the nerves to block the pancreas pain. This

procedure is supposed to be very effective and long lasting, but it

is highly specialized and there are only a handful of doctor's in

the country that do it. There are other types of nerve blocks that

are done with x-rays used to located the nerves which are not

always that successful.

Yes, chronic pancreatitis can be heriditary? Do you have

someone else in your bloodline that has chronic pancreatitis?

If you can tell us a little more about yourself, perhaps we can

help you with other questions.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

Also they did do some blood work and all my liver functions was normal, and my

kidney test they did was normal and they did do a CBC and that was Normal, but

did have a elevated white count of 10.9 and it is not suppose to be over 10 but

I have had a elevated white count for the past 3 years or so I would say. My red

count and that all was normal and my LIPA WAS 21 and my Amy was 43.

Does this help out any ?

Thanks and hugs,

Ralph

Re: LOOKING FOR ADVICE AND INFORMATION AND A GOOD DR

> Hello, my name is Ralph and I am from NH and looking for a

good DR.

I have no idea what EUS Assisted Nerve Block DR is.?

Also another thing, is chronic pancreatitis heredity?

Ralph

Dear Ralph,

Unfortunately I don't know of any specialists in your area. One

thing you might do is call the NH medical board and ask for a

referral to a gastroenterolgist, then when you get a list of names,

call these physicians and ask if any of them specialize in

pancreatic problems.

We do have some members in the group that had used

physicians in Mass., but they haven't listed their names on our

doctor's database, unfortunately. Maybe one of our Mass. or

Maine members could help out here???

An EUS assisted nerve block is where they use an endoscopy

procedure to locate the nerves in the spinal column to inject

alcohol into the nerves to block the pancreas pain. This

procedure is supposed to be very effective and long lasting, but it

is highly specialized and there are only a handful of doctor's in

the country that do it. There are other types of nerve blocks that

are done with x-rays used to located the nerves which are not

always that successful.

Yes, chronic pancreatitis can be heriditary? Do you have

someone else in your bloodline that has chronic pancreatitis?

If you can tell us a little more about yourself, perhaps we can

help you with other questions.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

Ralph,

it sounds like you may need to get another doctor completely, if your

current doctor is doing nothing to stop the pain or even find out what

is causing the pain. Have you looked into finding a new PCP who is

willing to refer you to a pancreas specialist.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Nope, nothing is getting done to stop the pain and they tell me to take advill

or 4 times daily doubel strength Tylenol..WOW huh. I am not getting no where and

if I find a new PCP , it is like starting over and got to suffer more and more.

I can't win I guess.

Re: Re: LOOKING FOR ADVICE AND INFORMATION AND A GOOD

DR

Ralph,

it sounds like you may need to get another doctor completely, if your

current doctor is doing nothing to stop the pain or even find out what

is causing the pain. Have you looked into finding a new PCP who is

willing to refer you to a pancreas specialist.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Ralph,

unfortunately, sometimes it is necessary to find a new doctor when the

current one is refusing to do anything about your pain. I had this

problem and finally had to fire the doctor and look for another one. The

next doctor I got was really good and helped me a great deal in dealing

with CP. I know it's scary to think about having to go through all of

this again, but, considering how your doctor isn't helping you now, what

have you got to lose? This is the best advise I can give you. There is

now way any of us can MAKE your current doctor change his mind.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Ralph,

Kimber's advice for you to find a new doctor really is constructive

advice. She nailed on the head by saying if this one isn't doing

anything for you to treat your pain, you really have no choice but to

find another who is more compassionate and willing to dig

deeper into finding out what's causing it.

I've had to fire a GI, too, and find another one. And yes, the new

one made me go through all the tests, and it was like starting out

all over again. By that time I had a burned out pancreas, new

pseudocysts, insulin dependent brittle diabetes and some other

medical problems, plus tons of x-rays, ultrasounds, lab reports

and ct-scans evidencing all of this, yet he still wanted all the

tests done over. It was okay with me though, because it proved

to me that he was ready for some hands on, attentive care, and

that's truly what I've gotten from him.

You owe it to yourself to find another doctor for a second opinion

and a chance for better treatment.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC and SE Regional Representative

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

Ralph,

I did a search on the internet, and don't know how far you are from

this hospital, but you might be able to contact them and get the

name of a GI nearer to you. Some hospitals (major Medical Centers)

allow patients to refer themselves, that is something you could ask.

http://www.nashuamedicalgroup.org/imstaff.html

One of them is listed as a Gastroenterologist, the others are

internal medicine doctors. I would be contacting the hospital and

asking to be put through to the Gastroenterology Department and

starting from there.

Good Luck,