Re: staph question/we go to Memphis

[Guest guest]

Unfortunaly, that is correct. We only saw him once and if I ever see

him again I won't be as nice. That one and only time we were scared

to death our precious child was so sick and he did not have the

compassion to feel our pain or the willingness to treat her with the

right medicine. We go to Dr. Greg Hanissian at Baptist East, his dad

has been doing this (treating cf) for years. We can call him any

time of the week or weekend, if he is out of town his dad will return

the call. His number is , his nurse Bobbie has a 13 year

with cf and she is also a wonderful support. Call me if you need me

(home) or (cell). Take her to birmingham or

to Dr. Hanissian but do not go back to downtown Memphis, that place

is any parents worst nightmare!!!!

Palazola mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf

-

> Let me guess, was it Tutor? Just wondering. We also go to the CF

Clinic in

> Memphis, TN. As of right now, I am seriously considering taking

to

> UAB CF Center in Birmingham, Alabama. It is one and half hours

further away

> but....

> just got out of the hospital. Dr. Bob put her in before he

had to go

> on a vacation with his family. I understand that. I have

absolutely no

> problem with that. Tutor released her from the hospital, per Dr.

Bob's

> orders. I asked Dr. Tutor at the time was he aware that

was being

> sent home before the culture results were in. I wanted to be sure

we were on

> the right meds. Well, guess what. We were on the right meds for

pseudomonis

> (sp) but not MRSA. I did not even know had grown MRSA

before she was

> admitted to the hospital. The resident told me. They said Dr. Bob

wanted to

> give her vancomycin. I had a fit. I had heard so many negative

things about

> that drug I was scared to death. I wanted to try ANYTHING else

first. Dr.

> Bob called, we talked, and he agreed that we should do another

culture since

> the other culture was 3 months old. (or so we thought, we found

out later it

> was a year old, the dates were confused by whoever gave the results

to Dr.

> Bob). Anyway, to make a long story short, went back after

being home

> on home ivs 8 days or so, and Tutor had the picc line removed. I

told him

> she was not well. He said sometimes it takes a few days after

taking the

> meds. I told him she had to have an oral antibiotic after ivs.

She always

> has. She will get very sick if she doesn't. He told me he doesn't

give oral

> meds to pts. after ivs but he would call Dr. Bob. Dr. Bob was not

in clinic

> that day and was unavailable for any near appointments. That is

another

> problem I have with that clinic. They only do CF Clinic visits on

certain

> days. They only have two doctors, and they both rotate. We will

not see

> Tutor in clinic anymore because of the way he talked to a

year or so

> ago. She was 8 or 9 at the time and when we left clinic she was

scared to

> death. She thought she was fixing to die that day. We had agreed

to see him

> in the hospital this time and for the follow-up visit only because

we had no

> choice. I really like Dr. Bob and I don't think he is aware of how

> frustrating it is to get to talk to him. I called the office last

Friday and

> left a message ( is never at her desk when I call except maybe

one time

> out of 10 and I don't call more than 4 times a year.) I wanted

either Dr. to

> call me back. I left my cell phone number and have had it with me

ever

> since. I have yet to receive a call back. I left the message that

> is very sick, she is worse than she was before the hospital stay

last month.

> You would think they would call me back. I don't believe it is Dr.

Bob. I

> don't think he ever got the message. I finally called a local

pediatrician

> and explained what was going on and read him the culture results

from our

> last culture. I told him which antibiotic we wanted and he sent

it. Dr.

> Tutor was not concerned about the fact that we were treating

with an

> antibiotic she was resistant to for what she was growing. He just

said we

> could talk to Dr. Bob when we saw him. Well, Tutor told us to

schedule an

> appointment in a month. Well, of course we couldn't get in to see

Dr. Bob

> then. He is too booked up. The appointment we have is May 21.

School gets

> out May 22, and I am a teacher. I realize my child's health is

very

> important, that is one reason I have kept that appointment date for

now. I

> also know though, that if they weren't so booked up we would have

been able

> to be seen when we were supposed to and by the Doctor we choose.

is

> going to wait a month and a half after when she is supposed to see

the

> doctor.

> So, am I right? Is it Tutor?

> Just wondering....where are you taking your child now?

>

> Sue Pettit

> mom to (16 wocf), (12 wocf), and (11 wcf)

diagnosed at

> 8 days of age at LeBonheur Childrens Medical Center in Memphis,

Tennessee

[Guest guest]

Whatever you do get her out of Tutor hands I do not trust him in fact

he is very scary, I think I already said that a thousand times.

Palazola mom of a 9 wcf, Venanzio 6 nocf and Pepe 3 nocf

> Yes, I know Dr. Hanissian, Sr. We saw him when was first

born

> because they did not have a CF DR at LeBonheur at the time. This

is another

> option for us to consider. Thank you. You may be hearing from me

soon.

>

>

> Sue Pettit

> mom to (16 wocf), (12 wocf), and (11 wcf)

diagnosed at

> 8 days of age at LeBonheur Childrens Medical Center in Memphis,

Tennessee

[Guest guest]

You know grandmomBev a few times a has been to Hanissian Clinic

and Dr. Greg has not been there( a goes for allergy shots every

week) and we would ask questions to Dr. Aram, his dad and he has

always been so helpful and concerned. Also one time Dr. Greg had a

question and he call his dad (Dr. Aram) into the examining room and

again very concerned very helpful. After our experience at the other

place this is heaven on earth for us.

Palazola mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf

> > Let me guess, was it Tutor? Just wondering. We also go to the CF

> Clinic in

> > Memphis, TN. As of right now, I am seriously considering taking

> to

> > UAB CF Center in Birmingham, Alabama. It is one and half hours

> further away

> > but....

> > just got out of the hospital. Dr. Bob put her in before

he

> had to go

> > on a vacation with his family. I understand that. I have

> absolutely no

> > problem with that. Tutor released her from the hospital, per Dr.

> Bob's

> > orders. I asked Dr. Tutor at the time was he aware that

> was being

> > sent home before the culture results were in. I wanted to be sure

> we were on

> > the right meds. Well, guess what. We were on the right meds for

> pseudomonis

> > (sp) but not MRSA. I did not even know had grown MRSA

> before she was

> > admitted to the hospital. The resident told me. They said Dr.

Bob

> wanted to

> > give her vancomycin. I had a fit. I had heard so many negative

> things about

> > that drug I was scared to death. I wanted to try ANYTHING else

> first. Dr.

> > Bob called, we talked, and he agreed that we should do another

> culture since

> > the other culture was 3 months old. (or so we thought, we found

> out later it

> > was a year old, the dates were confused by whoever gave the

results

> to Dr.

> > Bob). Anyway, to make a long story short, went back after

> being home

> > on home ivs 8 days or so, and Tutor had the picc line removed. I

> told him

> > she was not well. He said sometimes it takes a few days after

> taking the

> > meds. I told him she had to have an oral antibiotic after ivs.

> She always

> > has. She will get very sick if she doesn't. He told me he

doesn't

> give oral

> > meds to pts. after ivs but he would call Dr. Bob. Dr. Bob was not

> in clinic

> > that day and was unavailable for any near appointments. That is

> another

> > problem I have with that clinic. They only do CF Clinic visits on

> certain

> > days. They only have two doctors, and they both rotate. We will

> not see

> > Tutor in clinic anymore because of the way he talked to a

> year or so

> > ago. She was 8 or 9 at the time and when we left clinic she was

> scared to

> > death. She thought she was fixing to die that day. We had agreed

> to see him

> > in the hospital this time and for the follow-up visit only because

> we had no

> > choice. I really like Dr. Bob and I don't think he is aware of

how

> > frustrating it is to get to talk to him. I called the office last

> Friday and

> > left a message ( is never at her desk when I call except

maybe

> one time

> > out of 10 and I don't call more than 4 times a year.) I wanted

> either Dr. to

> > call me back. I left my cell phone number and have had it with me

> ever

> > since. I have yet to receive a call back. I left the message

that

>

> > is very sick, she is worse than she was before the hospital stay

> last month.

> > You would think they would call me back. I don't believe it is

Dr.

> Bob. I

> > don't think he ever got the message. I finally called a local

> pediatrician

> > and explained what was going on and read him the culture results

> from our

> > last culture. I told him which antibiotic we wanted and he sent

> it. Dr.

> > Tutor was not concerned about the fact that we were treating

> with an

> > antibiotic she was resistant to for what she was growing. He just

> said we

> > could talk to Dr. Bob when we saw him. Well, Tutor told us to

> schedule an

> > appointment in a month. Well, of course we couldn't get in to see

> Dr. Bob

> > then. He is too booked up. The appointment we have is May 21.

> School gets

> > out May 22, and I am a teacher. I realize my child's health is

> very

> > important, that is one reason I have kept that appointment date

for

> now. I

> > also know though, that if they weren't so booked up we would have

> been able

> > to be seen when we were supposed to and by the Doctor we choose.

> is

> > going to wait a month and a half after when she is supposed to see

> the

> > doctor.

> > So, am I right? Is it Tutor?

> > Just wondering....where are you taking your child now?

> >

> > Sue Pettit

> > mom to (16 wocf), (12 wocf), and (11 wcf)

> diagnosed at

> > 8 days of age at LeBonheur Childrens Medical Center in Memphis,

> Tennessee

>

>

>

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> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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