Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 February 9, 2003 Sunday HEADLINE: Sick teen will get her dolphin fantasy swim BYLINE: Staff Kramarik wants to swim with the dolphins. " I've wanted to do that for about ... forever, " she said. This spring, she'll get her chance. Kramarik and her family will fly to Hawaii, where she will get to swim with dolphins. For Kramarik, it's a bittersweet thing to see his daughter's dream come true. He wants her to go. He wants her to have the time of her life, but accepting this trip is one more piece in the pile of evidence he doesn't like to face. The trip is being arranged by the Make-A-Wish Foundation. " You know what that means, " said with a heavy sigh. It means that is very ill. The Make-A-Wish Foundation grants wishes for children with serious or fatal illnesses. has cystic fibrosis, a disease that causes thick, sticky deposits of mucus on the linings of her lungs. These deposits can lead to scarring of the tissues on which they settle. As the scarring builds up over time, the lungs don't work as effectively. The disease also interferes with the digestion of important nutrients. " If you're lucky, life expectancy is 30, " said 's mom, Amy Kramarik. Amy and first noticed their daughter coughing often and struggling to breathe when she was 5. Doctors had trouble diagnosing the problem, Amy said, treating her instead for asthma and allergies. Her cystic fibrosis wasn't detected until she was 12. Until she was treated, life was pretty difficult for her. " She couldn't participate in activities that normal kids do, " Amy said " She had to sit out. She couldn't go swimming or riding a bike. She had a chronic cough, a continuous cough. She would get winded easily. " " I knew it was serious when I took her to Hershey Park, and she couldn't get from ride to ride, " said. " She'd have to sit on a bench and cough. " With treatment, is able to live a more active life. A freshman at Southside High School, she enjoys skiing and dancing. " She's pretty active right now because her lungs right now are pretty good, " Amy said. Every year, has to visit a Rochester hospital for two weeks of intense antibiotic treatments that battle the bacteria that build up in the mucus in her lungs. She's on medication and takes strong vitamins. Every morning and evening, she puts on a vest for chest percussion therapy. The vest vibrates her lungs, which helps break up the mucus deposits. doesn't like the treatments, but she realizes they are a must. " I just know I have to do it, or I won't live until I'm 20, " she said. 's doctor contacted the Make-A-Wish Foundation, which organized the trip. 's trip is being sponsored by the Valu Home Center in Southport Plaza in Elmira. Donations to help pay for the trip are being accepted at the store. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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