Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Curious why Beth says nasal feedings are the best way to go. Henry has had a J-tube - first below his stomach to rest his pancreas, now into his stomach to get him ready for eating -- since March. We haven't had too many problems, but as Dr. Pappas says " God didn't mean for us to have tubes in our bodies. " So it's a little hard to tolerate sometimes. Hopefully Monday when we go back to Duke for an appointment with Dr. Pappas he'll give Henry the green light for eating and take out the tubes. Of course, between now and then the discharge might increase again (he has a drainage tube also). So we're just hoping for the best. He's never been able to take more than about 1,800 calories a day without feeling terribly bloated. Ginny White Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Hi, Ginny! I was looking up what a J-tube is ... does it go directly into the jejunum through the abdomen? If so, it's basically the same thing as the nasal tube I was speaking about - both tubes end up in the jejunum where the small intestine can absorb the nutrition. My husband said what your husband has is probably more comfortable ... it was a little difficult being mobile while feeding through a tube hanging out of his nose. The tube running through his sinuses created a lot of uncomfortable sinus drainage. And he had to remain at a 30-degree angle while sleeping so no formula backed-up into his lungs. The reason these tubes are better ... they make the bowels work on their own. You don't want body functions to start shutting down. They by-pass the pancreas giving it total rest. When the doctor told him to start eating again, it was 'weird' for him to swallow again. He hadn't swallowed anything in months. You don't realize how 'weird' something you do every day becomes foreign. When he did swallow, the tube would shift and make him gag. He got sick of gagging and had the tube yanked out so he could eat again. Thank goodness he could eat ... otherwise he'd have to have it inserted all over again (and it wasn't a pretty picture)! GOOD FOR YOUR HUSBAND! Beth > Curious why Beth says nasal feedings are the best way to go. Henry has had a J-tube - first below his stomach to rest his pancreas, now into his stomach to get him ready for eating -- since March. We haven't had too many problems, but as Dr. Pappas says " God didn't mean for us to have tubes in our bodies. " So it's a little hard to tolerate sometimes. Hopefully Monday when we go back to Duke for an appointment with Dr. Pappas he'll give Henry the green light for eating and take out the tubes. Of course, between now and then the discharge might increase again (he has a drainage tube also). So we're just hoping for the best. He's never been able to take more than about 1,800 calories a day without feeling terribly bloated. > > Ginny White > > Quote Link to comment Share on other sites More sharing options...
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