Re: new here (second try)--DEB

[Guest guest]

In a message dated 4/21/2003 3:06:02 PM Central Daylight Time,

codybug@... writes:

> Well, Deb--wish I'd known before you were in Iowa! Where in Iowa, and what

> clinic/hospital do you go to? We were just in Iowa over Easter weekend,

> and

> my daughter had helped pack Cody's big ThAirapy vest compressor (I have a

> bum ankle and couldn't carry it, and my husband had wrist and elbow surgery

> Wednesday, so he couldn't), and she forgot the plug!! OOOOOPPPPSSS!! So

> we

> ended up doing hand pounding for four days. Forgot how much work that

> is!!!!!!!!! My arms were sore the first day, but I got used to it again

> pretty quick.

>

> I would have called you to see if you knew where we could have called

> Friday

> morning to see if there was a way to " rent " one for a few days. We were in

> Ankeny.

>

> It was still a fun vacation, though! I have over 1000 e-mails to catch up

> on, though, from the last couple weeks. Between Cody being sick and Mark's

> surgery, I haven't been on the 'puter much!

>

> S., mom to Cody (7, pwcf), DJ (8, nocf), and a (14, nocf)

>

OH WOW!! We are about 13 miles from Iowa City so you weren't to far away. I

could of had Beth see if she could have found a cord for you. That's to bad I

wish I would have know you were so close I would have drove that far to meet

you. Do you have family in Ankeny? Deb A

[Guest guest]

Well, Deb--wish I'd known before you were in Iowa! Where in Iowa, and what

clinic/hospital do you go to? We were just in Iowa over Easter weekend, and

my daughter had helped pack Cody's big ThAirapy vest compressor (I have a

bum ankle and couldn't carry it, and my husband had wrist and elbow surgery

Wednesday, so he couldn't), and she forgot the plug!! OOOOOPPPPSSS!! So we

ended up doing hand pounding for four days. Forgot how much work that

is!!!!!!!!! My arms were sore the first day, but I got used to it again

pretty quick.

I would have called you to see if you knew where we could have called Friday

morning to see if there was a way to " rent " one for a few days. We were in

Ankeny.

It was still a fun vacation, though! I have over 1000 e-mails to catch up

on, though, from the last couple weeks. Between Cody being sick and Mark's

surgery, I haven't been on the 'puter much!

S., mom to Cody (7, pwcf), DJ (8, nocf), and a (14, nocf)

Re: new here (second try)

> In a message dated 3/27/2003 1:59:00 PM Central Standard Time,

> serein@... writes:

>

>

> >

> > For some reason my last message didn't post...

> >

> > I wish I could remember what I said...

> >

> > My 6-yr-old son was just diagnosed with cf last week. He has been

> > sick since he was five days old (failure to thrive, jaundice) and was

> > in ICU. at 9 months he started coughing and coughing and wheezing

> > and i kept telling dr after dr that i didn't think it was asthma, but

> > they never believed me. finally i decided i was going to figure it

> > out, and that's when i came across cf on the web. My son had every

> > symptom in the book. I got him into a pulmonologist and got a sweat

> > test (4 scores over 110). Now he's on creon 10, pulmozyme and

> > albuterol, plus cpt. this is actually a way easier regimine than the

> > 5 asthma meds they had him on plus otc stuff. What I'm really hoping

> > for is that he will start feeling better. He's been so sick for so

> > long. Has anyone had a child like this... pancreatic insufficient,

> > with lung involvement (his sputum culture came back with staph and

> > pseudomonas).... will he feel better?

>

> O Boy will he ever start feeling better!!! Now that you know thinks will

get

> much better for him! Hang in there I know that first year is a real roller

> coaster ride. But this is a great support group. I have three daughters

and 2

> have CF. Where do you live? We are in Iowa! Deb A

>

>

>

[Guest guest]

Yes we do have family there. Mark's dad lives there, along with his second

wife. Mark had surgery on his wrist (torn cartilage) and elbow (moved the

ulnar nerve) the day before we left, so I tried to talk him out of the trip,

but no luck! LOL He really wanted to see his dad. The kids really enjoyed

their visit with Grandpa and Grandma, too.

Hope you all had a nice Easter!

S., mom to Cody (7, pwcf), DJ (8, nocf), and a (14, nocf)

Re: new here (second try)--DEB

> In a message dated 4/21/2003 3:06:02 PM Central Daylight Time,

> codybug@... writes:

>

>

> > Well, Deb--wish I'd known before you were in Iowa! Where in Iowa, and

what

> > clinic/hospital do you go to? We were just in Iowa over Easter weekend,

> > and

> > my daughter had helped pack Cody's big ThAirapy vest compressor (I have

a

> > bum ankle and couldn't carry it, and my husband had wrist and elbow

surgery

> > Wednesday, so he couldn't), and she forgot the plug!! OOOOOPPPPSSS!!

So

> > we

> > ended up doing hand pounding for four days. Forgot how much work that

> > is!!!!!!!!! My arms were sore the first day, but I got used to it again

> > pretty quick.

> >

> > I would have called you to see if you knew where we could have called

> > Friday

> > morning to see if there was a way to " rent " one for a few days. We were

in

> > Ankeny.

> >

> > It was still a fun vacation, though! I have over 1000 e-mails to catch

up

> > on, though, from the last couple weeks. Between Cody being sick and

Mark's

> > surgery, I haven't been on the 'puter much!

> >

> > S., mom to Cody (7, pwcf), DJ (8, nocf), and a (14, nocf)

> >

>

> OH WOW!! We are about 13 miles from Iowa City so you weren't to far away.

I

> could of had Beth see if she could have found a cord for you. That's to

bad I

> wish I would have know you were so close I would have drove that far to

meet

> you. Do you have family in Ankeny? Deb A

>

>

>

[Guest guest]

In a message dated 4/21/2003 10:40:29 PM Central Daylight Time,

codybug@... writes:

> Yes we do have family there. Mark's dad lives there, along with his second

> wife. Mark had surgery on his wrist (torn cartilage) and elbow (moved the

> ulnar nerve) the day before we left, so I tried to talk him out of the

> trip,

> but no luck! LOL He really wanted to see his dad. The kids really

> enjoyed

> their visit with Grandpa and Grandma, too.

>

Well, next time you plan on going to Iowa maybe we can meet half way. Let me

know. Deb A