Sort of new to the list

[Guest guest]

Hi, I just thought I would introduce myself to the list. My name is

Tammy. I have an 8 year old daughter with cf. Her name is . I

was a memember of this list about 2 yrs ago but found it to hard to

keep up. I was working full time. I am now only working part time

now so I wil give this a try again. has had a pretty rough

couple of years being on Iv's every 3 months due to decreased pft's

and lung infections. Her pft's dropped from 140% to in the 50% in a

matter of months. They can't seem to get them to come back up but

have no anwsers as to why the are down. They have been down almost a

years. I am not even sure as to what her base line is at this point.

We haven't had a moment where some thing isn't going on to see what

she is like when her lungs are good. As soon as you think she is

doing better, she is sick again. I have another daughter who is 13

she does not have cf. I am married to a wonderful man. He is such a

huge help. I don't think I could do this without him. Well, I guess

that is about it. I look forward to reading the post again.

[Guest guest]

Welcome back Tammy!

that is one nice thing about these lists, you can always come back and be

welcomed! I have been on and off a few times myself. I think I remember

you. I'm , my daughter w/cf is 19 now (!?!!). She has been in

general doing very well but just last week caught some bug and got a high

fever, bad cough, lots of yellow crud etc, we got her on Augmentin XL (there

is a new Augmentin, ;s doc said it causes less side effects, such as

diarreah. doesn't usually get that anyway, but plus it is stronger,

1000 mg, and she is to take 2 pills twice daily. Hopefully it kicks butt on

her staph.

Anyway, good to see you back, hope gets back on track, I'll be

thinking of you all.

love,

M

Sort of new to the list

> Hi, I just thought I would introduce myself to the list. My name is

> Tammy. I have an 8 year old daughter with cf. Her name is . I

> was a memember of this list about 2 yrs ago but found it to hard to

> keep up. I was working full time. I am now only working part time

> now so I wil give this a try again. has had a pretty rough

> couple of years being on Iv's every 3 months due to decreased pft's

> and lung infections. Her pft's dropped from 140% to in the 50% in a

> matter of months. They can't seem to get them to come back up but

> have no anwsers as to why the are down. They have been down almost a

> years. I am not even sure as to what her base line is at this point.

> We haven't had a moment where some thing isn't going on to see what

> she is like when her lungs are good. As soon as you think she is

> doing better, she is sick again. I have another daughter who is 13

> she does not have cf. I am married to a wonderful man. He is such a

> huge help. I don't think I could do this without him. Well, I guess

> that is about it. I look forward to reading the post again.

>

>

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> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

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