Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 In a message dated 9/29/2003 9:50:14 PM Eastern Daylight Time, chamberslm@... writes: Thank you so much for the link. This may explain why I have been so bad since I started the Nurontin. I will call my DR in the morning and discuss this with him. I hope your mom is doing well. Thank you again. Please send the link again. Thank you, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 , Regarding Vioxx ( http://www.rxlist.com/cgi/generic/rofecox_ad.htm ) and Nurontin http://www.rxlist.com/cgi/generic/gabapent_ad.htm ), if you look on rxlist.com and look at side effects, it will tell you that in RARE occurances or less than 2% of patients for Vioxx and in 1/1000 patients for nurontin, it has caused pancreatitis. I have refused to take either for just those reasons. I realize there is a long list of medicinesd out there that can cause pancreatitis...like motrin in large doses, but for my own self, I won't take anything that can give me what I already have. I worry that those may even cause an attack to happen. This is just my opinion. I am glad that you got your SSDI in such a short time and if these drugs help you and your fine with them, then good for you! I have taken 1 nurontin before I looked at the side effects and it works to take away the pain and make you sleepy. My mom, a breast cancer survivor, is on Nurontin on my advice for her lymphodema for the pain. It is helping her a great deal. There has only been 1 ERCP where I haven't ended up in the hospital for an acute attack afterward. In my opinion they go hand in hand. But that is for me. As far as a drug making me hyper, that would be the Percocet I take. But I have finally found a drug to take with it that makes me sleepy enough that it takes away the percocet making me wired. It is also a good pain releaver. It is Ativan 1 mg. With the Percocet, I take 2 of the Ativan. Good luck to you and I hope some of what I have said helps. Please remember that these are facts you can look up, but the part about not taking them is my choice only. Not on doctor reccomendation. Sandy California chamberslm2003 wrote: > I am new to this group so this question may have already been asked > by someone else but I am going to ask it anyway. I was diagnosed with > CP in June of 2002. I geuss I am one of the lucky ones. I receieved > my SSDI benefits the first try but it took 8 months. I called and > bugged them every week and also faxed them my medical records every > time I saw the Doctor, to make sure they always had the most up to > date info to base their decision. I had one ERCP done in Aug. of > 2002 and ended up in the hosp. from it. I've had CT scans and MRCP's > done since then. My L & A are almost always in the thousands when > they are checked, sometimes I am not even in pain and they are high. > I have been having alot of pain lately and the Norco just isn't > cutting it, also the Norco makes me hyper (like I just drank 2 pots > of coffee) so it makes pretty to rest when I take it. My doctor also > has me Neurontin twice a day which does seem to help. When I saw the > doctor today he suggested taking Vioxx for inflamation. Has anyone > else taken this for CP? I know my pancrease is inflammed, you > actually feel a bulge on the right side of my abdomin. I was > wondering if the Voixx has anyone. I know it doesn't hurt to try but > I am not so sure because I know it can cause bleeding problems and > sometimes when my CP is really bad I get bloody diareah. My doctor > says this from irratation in the pancrease. Also after my ERCP I had > a really bad time and now the doctor wants to a colonoscpy and an > upper GI Endoscopy. Has anyone had a bad reaction after these test? > > I am thankful for all of you out there that make it a point to help > those of us " newbies " with information. The support that this group > offers and the knowledge that you are not alone with this terrible > disease is priceless. I wish you pain free days and May God Bless > all of you and your families. I know this disease is tough on only > the patient but hte families as well. > > Thank you > > Simi Valley, CA > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 > > > Date: 2003/09/29 Mon PM 06:42:03 PDT > To: pancreatitis > Subject: Re: Vioxx? > > SAndy, Thank you so much for the link. This may explain why I have been so bad since I started the Nurontin. I will call my DR in the morning and discuss this with him. I hope your mom is doing well. Thank you again. Simi Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 , Thank you. My mom is doing better with the lymphodema since getting on the nurontin. My pancreatic specialist was the one that prescribed the nurontin for me and thinks I am " silly " for not taking it. He also said the same for me not taking the Vioxx. He told me that if I was going to be that way with those drugs, then I would probably never take another drug again since there are alot of drugs out there that can cause pancreatitis in RARE occurances. So be prepared for that. Also, I printed out this info on the drugs for the doctor and brought it to him when I decided not to take the drugs and he dismissed it. So be prepared for that also. Sandy Fairfield, Ca chamberslm@... wrote: >> >>Date: 2003/09/29 Mon PM 06:42:03 PDT >>To: pancreatitis >>Subject: Re: Vioxx? >> >>SAndy, > > > Thank you so much for the link. This may explain why I have been so bad since I started the Nurontin. I will call my DR in the morning and discuss this with him. I hope your mom is doing well. Thank you again. > > > Simi Valley, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 > > > Date: 2003/09/29 Mon PM 07:08:01 PDT > To: pancreatitis > Subject: Re: Vioxx? > > thank you I'll keep that in mind, but my doctor seems to be pretty open to my opinion. Best wishes Simi Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 , I have regular endoscopies and colonoscopies due to another illness I suffer from, and never have any side affects from these, except for gas pains later on, but that will happen with ERCP's also. The only reaction I could think that someone would have would be if any dyes are used, or the stuff one has to take to clean out the colon if you have an allergy to that (which would be rare), and the last being if you suffer a reaction to the anaesthetic, which having had an ERCP, you would already know if that has happened. As to pancreatitis after both of those tests, I have never had an attack from a basic endoscopy and colonoscopy, only when I have an ERCP, which in my case is every 6-8 weeks for stent changes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 > > > Date: 2003/09/30 Tue AM 06:58:22 PDT > To: pancreatitis > Subject: Re: Vioxx? > > thank you so much for your response this has helped to my mind at ease. Simi Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 , for the upper GI endoscopy, about half the time it would cause an attack of pancreatitis. This is a known possible complication of upper GI's. I just wanted to warn you. In my case, it always depended upon if they got into the pancreatic ducts or not. If they got in the ducts, I'd have an attack of pancreatitis. My ducts are smaller than normal though and that may be why I had the attacks of pancreatitis when they got into the ducts. I know that others have also had attacks of pancreatitis after the upper Endoscopys (ERCP's). Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 > > > Date: 2003/09/30 Tue PM 02:12:23 PDT > To: pancreatitis > Subject: Re: Vioxx? > >Kimber thank you for telling me this. I also has have small ducts so I was real concerned. I will do just about anything to stay out of the hospital so I think I will only let them do the colonoscopy and leave it at that. My 5 year old freaks out if I have go to the ER for anything so I know he'll be nervous when I go in for the colonoscopy, I don't want anything to happen and have to stay there. Thank you again, Simi Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 , if you ever have any questions or anything, please feel free to contact me as I am the California State and Southwest US representative of Pancreatitis Association, Internation (this group) and I will do the best I can to answer your questions or help connect you to the person who can answer it. My email address is: hominid2@.... I'm usually online early in the morning (like now), also, if you have MSN, Yahoo or AOL Instant messengers, you can reach me that way as I have all three opened whenever I'm online. My screen name is: for MSN hominid2, for Yahoo & AOL: hominidtwo. Kimber -- Kimber Vallejo, CA hominid2@... California State and Southwest US Representative Pancreatitis Association, International Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 > > > Date: 2003/10/01 Wed AM 07:54:22 PDT > To: pancreatitis > Subject: Re: Vioxx? > > thank you so much. You are so helpful and caring. Simi Valley, CA Quote Link to comment Share on other sites More sharing options...
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