sweat test results - what number is concerning?

[Guest guest]

Hi I am on a parenting list and a mother there just had her dd

tested for CF. The test cam back with a result of 28. Should she be

concerned, or does this result mean there is no reason for concern.

Her daughter has had lung problems also, and is underweight. When my

son wcf was tested, his result was 89 - and when my dd wocf was

tested, her result was 8. I'd like to give her some advice. Thanks

Wendi

Mom to Keira (3wocf) and (18mos wcf)

[Guest guest]

In the sweat test, anything between 40 and 60 is considered

borderline, anything under 40 is negative for cf, anything above 60

is positive for cf. BUT, there are several mutations that do not

cause a positive sweat test, so if this mother feels that the child

has symptoms of cf that can not be diagnosed as something else, she

can request genetic testing for cf mutations. Genetic testing, also,

is not 100% accurate, but may find two mutations and result in a

diagnosis of cf even with the low sweat test score. Also, if the

child exhibits symptoms of cf that cannot be explained with some

other diagnosis, but has no identifiable mutations and low sweat test

scores, there is still a possiblility that it is cf. If that is the

case, she should get an appointment at a cf clinic and press for the

doctors to treat the child as if she has cf and see if that improves

her condition. If it doesn't, she will just have to keep searching

for an explanation for the symptoms and find a treatment plan that

works.

~

> Hi I am on a parenting list and a mother there just had her dd

> tested for CF. The test cam back with a result of 28. Should she be

> concerned, or does this result mean there is no reason for concern.

> Her daughter has had lung problems also, and is underweight. When my

> son wcf was tested, his result was 89 - and when my dd wocf was

> tested, her result was 8. I'd like to give her some advice.

Thanks

>

> Wendi

> Mom to Keira (3wocf) and (18mos wcf)

[Guest guest]

Thanks I'll pass on the info.

Wendi

> > Hi I am on a parenting list and a mother there just had her dd

> > tested for CF. The test cam back with a result of 28. Should she be

> > concerned, or does this result mean there is no reason for concern.

> > Her daughter has had lung problems also, and is underweight. When my

> > son wcf was tested, his result was 89 - and when my dd wocf was

> > tested, her result was 8. I'd like to give her some advice.

> Thanks

> >

> > Wendi

> > Mom to Keira (3wocf) and (18mos wcf)