RE: make a wish KAREN U

[Guest guest]

,

Gee I am so surprised to hear that. We got the wish granted in a few

weeks and EIlish is 100% healthy, minus Cf. I saw the forms her

specialist had to fill in and it didn't mention any of that. We also

had forms to fill in and all we had to do was to write about her. Never

did it mention dying etc.

Of course I am in another country, but loads of people have had a wish

on this list, maybe they have faces similar problems.

(Australia)

make a wish

I agree with all of you...But I have a big problem with " Make a Wish "

You

see we approached them not once but 3 times and each time got the same

thing. They wanted my sons doc to sign a paper that stated that he..my

son would not live past the age of 18 then they would grant his wish

this

was when DJ was 10, 11, & 12 when we called when he was 12 I was told

that

there program had changed and that they were granting wishes of CF

kids......Wrong they told me that same thing again wanted the doc to

sign a

paper that stated that DJ wouldn't live past his 18th birthday. I told

her

I knew he wouldn't do that because our doc does not belive that and

neither

do I Nor would i want to see that down on paper...so the lady told me

if

my sons prognoses changed to call them back....ya right i told her what

she

could do with her program and I will not support them at all....There

was

one program that did grant my sons wish and that was " Full fill a Wish "

and

it was out of FL...them I would support and recommend.....

Just my 2 cents worth

mother of DJ 17 y m/wcf