Vondie

[Guest guest]

Vondie,

When the people came out about 6 weeks ago for Eilish's wish I was fine.

But when I kissed her abd put her to bed I felt so sad. I was such a

awful feeling like my child 'is' sick enough to get this. I had a good

cry and the next morning I felt much better. Now I feel she deserves

her wish. I look at it like a reward for everything she goes through.

But yes I know, as do many many others exactly how your felt.

(Australia)

make a wish, etc...

Hello everyone,

Well, we went to clinic yesterday and all in all it went good. The

boys talked to the social worker about make a wish. She said we should

be getting contacted from them shortly. I have to tell you, I was

sitting there listening to the kids talk to her and this big knot, about

the size of a softball, hung in my throat. I couldn't get rid of it.

She asked me if it was all right with me, I couldn't really talk.

Basically shaking my head. I don't know why I have such a hard time

with this. It's like admitting defeat. If the boys do the make a wish,

I am saying " OK, my kids have cf & they are not going to get better. "

Does that make any sense at all?

I know, I am keeping it in my mind that they would enjoy it. Its a

once in a lifetime thing, something that I could never do for them. I

just feel like I am giving in to the idea that my kids have a disease

that will take them, eventually. Man, thats a hard one to swallow. I

guess I live day by day not thinking of cf. The meds, treatments,

etc.... are just a normal part of life. Maybe it is that I don't want

to allow myself to think about it. I guess I am a weak persoon, because

I can't handle the thought of it.

Anyway, enough rambling from me.

wants to go play basketball with Shaq. Which I think is neat.

Although I am sure probably wouldn't come up to his knee caps.

LOL He is a little guy. If not he wants to meet the guy that plays on

Like Mike. Has anyone seen it? Who is the guy that plays (sp)?

just idolizes him.

doesn't really know what he wants. He has mentioned a 4 wheeler,

which I am not really liking. I think they are a bit too dangerous.

He's only 11. I know probably over protective and stupid of me, but

what can I say. So, we'll see.

Oh, I asked the team some about the vitamin D thing and sunlight.

They said that yes 20 minutes in the sun will give vitamin D, But, the

problem is absorption. They also said that ADEKS are a good vitamin.

And not to neccessarily give a multi vitamin with it. They said that

that is why they monitor vitamin levels. If they need something they

give it, if the kids are not low on some, that sometimes more is not a

good thing. So, I guess I will keep them on ADEKs, w/ extra K.

s levels are fine.

Welp, I guess that is all for now. I need to get thing s done around

here.

Vondie