Christal

[Guest guest]

I am not able to check emails as often as I usually do but saw that you

had joined the list and thought since I also live in Florida I should say

hello. My six-year-old daughter has CF, and I also have two other

children. We live in Tallahassee but go to the clinic in Atlanta 'cause it

is so fantastic. I hope you are happy with the care in ville. I

have always thought it would be harder to have an " older " child diagnosed

with CF than one at birth. My daughter was about six weeks old when we

found out she had CF, so basically it is all we have known for her as far

as her health. It is probably all we thought about for her first year. We

still think about CF now, but not as much because we are busy thinking

about where her ballet shoes are, and whether to let her audition for the

gymnastics team and what time she has choir practice and on and on with all

of her normal activities. She is active, happy, funny, cute, smart and

basically very healthy.

Hang in there. It does get better. And worse. And better again, and

worse and better---but I promise you, that one day, you will actually go

for hours without thinking about CF. It becomes a part of your " normal "

life and you will be in control rather than the feelings right now that it

controls you and your son's life.

Lori in Florida

grosehsd@...

[Guest guest]

Christal,

Yes she is 50% on the weight chart, but for a long time she was 75%.

Her height is still 70%. I saw a x-mas photo of her with Santa from

2001, and she a chubby faced thing then. Now she is a lean, mean

fighting machine!

(Australia)

W

>

> Elisjah is about 42 lbs. how old is she? I am not sure on her height

but I think it is appx. 3 ft. 6in. I can not recall how tall you

said she was I believe it was 110cm? Any that seems so small but then I

consider the fact that I have a healthy 6 yo who is 48+ pounds and

almost 4 feet tall. Then I look at my 2yo who doesn't eat and has CF

and reliexe that he is very tiny (27lbs, and 2ft. 9in.) His baby sister

at 4 months is 11lbs and 26in long. She will easily be bigger than him

by 1 yo.

But I believe as long as your daughter is staying on the growth chart

(do they use that there) than she is ok.

christal

mom of Tristan 6yoncf, Zack 2wcf, Ki'a 4mths ncf