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Re: thank you to Kim

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Thank you for your post.

I am feeling a little blue right now. Adam turned one on Sunday and

yesterday had a fundo and a g-tube placed. He's only 14 pounds. I

feel like I should have been able to do something to avoid this.

Anyway, I liked your entire post, thank you. I've left the following

paragraph attached because it's that specific detail that I needed to

hear most of all. I don't want my son to be an 80 pound weakling all

his life. You've reminded me that that's not a necessary outcome of

this disease and modern medicine can do a lot.

Thank you from the bottom of my heart,

Crystal

mom to Adam 1yr wcf, le 3yr nocf

>

> Today, my son is 6 ft. tall, weighs 165 lbs., and in December he

> graduated from Loyola University of Chicago with a bachelor of fine

> arts. He achieved his childhood dream of attending an out-of-state

> college -- this one was over 700 miles away from the home where he

> grew up.

>

>

> Lots of hugs and understanding,

> Kim

> Mom of (23 1/2 with cf and asthma) and (asthma no cf)

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>

> >

> > Today, my son is 6 ft. tall, weighs 165 lbs., and in December he

> > graduated from Loyola University of Chicago with a bachelor of

fine

> > arts. He achieved his childhood dream of attending an out-of-

state

> > college -- this one was over 700 miles away from the home where

he

> > grew up.

> >

> >

> > Lots of hugs and understanding,

> > Kim

> > Mom of (23 1/2 with cf and asthma) and (asthma no

cf)

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