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make a wish

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I agree with all of you...But I have a big problem with " Make a Wish " You

see we approached them not once but 3 times and each time got the same

thing. They wanted my sons doc to sign a paper that stated that he..my

son would not live past the age of 18 then they would grant his wish this

was when DJ was 10, 11, & 12 when we called when he was 12 I was told that

there program had changed and that they were granting wishes of CF

kids......Wrong they told me that same thing again wanted the doc to sign a

paper that stated that DJ wouldn't live past his 18th birthday. I told her

I knew he wouldn't do that because our doc does not belive that and neither

do I Nor would i want to see that down on paper...so the lady told me if

my sons prognoses changed to call them back....ya right i told her what she

could do with her program and I will not support them at all....There was

one program that did grant my sons wish and that was " Full fill a Wish " and

it was out of FL...them I would support and recommend.....

Just my 2 cents worth

mother of DJ 17 y m/wcf

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