To Lily

[Guest guest]

Hey Lily

Thanks for the info. I am going to do some research also. I have

to be very careful though, because my blood does NOT clot

correctly. I have type I VonWillebrand's disease on top of

everything else! So I have to be careful about stuff that might

cause the blood not to clot. When I had the SVC syndrome with the

port, I did not have a clot, the vein just collapsed. At the time

that I had the port, instead of pushing Heparin through it several

times a day, they were making me actually put the syringe in the

line and pull back to pull the Heparin out. We think that doing

that so much, just collapsed the SVC right at the point where the

end of the line went into the SVC. Only thing anybody can come up

with . It had to have been going on quite a while because I had

lots of collateral veins taking over blood flow (as much as they can

anyway) and they did venoplasty with balloons and its fine, no

scarring nothing. No other reason for the collapse. Makes sense you

could still push fluid through but couldn't draw blood, etc, etc.

Never could draw blood from any line I had. Once in awhile but 95%

of the time could not.

We found out later that the advise to pull back on that syringe and

take the Heparin out before giving another pain shot and then

loading it with more Heparin to lock the line, should not have been

given to us because those ports cannot take that kind of pressure

several times a day. Hind sight, aint it great?

Take care and thanks for the info

Kaye