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Re: /Joey TP-ICT

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Suzanne

Cassie and I have been discussing this procedure more and more the last few

months. I know at this point in time she is not anywhere as server as either

one of your boys but if this prevents her from getting to that point it's

worth checking into. She has had a say in her care from the start and though

she

was aprehensive she did agree to both procedures she's already had. She

really has a big interest in this but has lots of questions from a a kids point

of

view, could you get me a little input from your boys. She wants to know how

long they were away from schoolwork. how many tubes did they have and for how

long. How long after procedure till they could eat " real " food. Prior to

eating real food how'd they get feed. Pain, pain pain. How much pain, how

long, how does it compare to pancreatitis pain. Would they do it all over again

if they had to. She also reads many of the posts and wants to know what the

took out besides the pancreas and if they had any problems. And she wants to

know what its like to eat french fries again and pepperoni pizza.

Did both boys have procedure done at Mass General? Who were the surgeons?

Thanks. God bless

Patty Hurst

Bangor, ME

Maine State Rep

PAI

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