update

[Guest guest]

hi everyone,

I've been on this list since my son was 3. he's going to be 7 now.

this list has been a savior for me when things were really bad and a

wealth of information.

I have some really good news, is getting a dynovox!!! so excited

and hope he takes to it. He's been doing so well in the program in

his district school. his language had really expanded and so has his

cognitive abilities. His speech is still very poor, hence the

dynovox.

does have fine and gross motor issues as well. we just found

out that he favors the left side of his body. he does not lead off

with the right foot when he goes down stairs. he used to run with

his right shoulder slightly up and hand on his chest. now he is

doing well because of this excellent pt. she really works with him

doing all kind of excercises to strengthen him. i see some much

improvement.

his fine motor he has some writing issues but they seem ok. his

biggest problem is lack of focus and impulsivity. its what he uses

to get out of a hard thing. he still has behavior but its sooo

manageable now. The more work he accomlishes the more confident he

becomes. he still needs maturity too learn to stick to it and he will

get better. he wants to get it right away. " don't we all "

Just my little update on . i responded to bonnie e-mail that more

people with older kids should speak up. so here we are

just a note to all the new parents with children who are apraxic.

the piece of advice i give all who get the dx is that you have to be

patient. its a long road ahead and progress at least for me has been

slow. its hard to patient when you see your child suffering but we

are all they have to look to for the love and caring they need at the

time. it does take its toll I did go through some rough times with

myself dealing with the problem but remember there is always help for

us parents too. remember to take care of yourself because no one

else will. if we are not well our children will not be. Also you

don't have to alone in getting help for child,please reach out I

tried to do it all and failed. since i reached out i have a lot of

help.

Remember our children are remarkable. I feel if a typical child had

what my son had all of sudden they would go crazy. he has his issues

but he is remarkable with what he can do with his disorder. he is

amazing at telling you stories with pantamime. if all else fails for

him he could be a street mime and make lots of $.(LOL)

Happy new year everyone

chris(mom to a remarkable paul with apraxia and emma my diva 4 year

old