Dumb mistake. . . need help!

[Guest guest]

Do you get your medicine from the CF Services pharmacy in Bethesda? If so,

call Robin , she is the Vice President, and tell her of your

predicament. She will surely send you out a Pari Neb right away.

If not, look in your phone book for medical supply establishments. They

should at least have some disposal nebs that you could use in a pinch.

Also, I clean my son's nebs in a solution called Control III Disinfectant.

It is a concentrated cleaner. You only use one capful, diluted in water. I

have a tupperware container I mix it in. The solution is good for 2 weeks,

which is why one bottle lasts us a whole year. You just soak the nebs for at

least 10 minutes, I usually soak overnight, then rinse with water and allow

them to air dry.

I hope this helps you.

Amber,

mom of Nick (who turns 14 today!!!!!!)

[Guest guest]

What is your mailing addy . I will send you today .

LOVE & HUGS, grandmomBEV

Re: Dumb mistake. . . need help!

Do you get your medicine from the CF Services pharmacy in Bethesda? If

so,

call Robin , she is the Vice President, and tell her of your

predicament. She will surely send you out a Pari Neb right away.

If not, look in your phone book for medical supply establishments. They

should at least have some disposal nebs that you could use in a pinch.

Also, I clean my son's nebs in a solution called Control III

Disinfectant.

It is a concentrated cleaner. You only use one capful, diluted in

water. I

have a tupperware container I mix it in. The solution is good for 2

weeks,

which is why one bottle lasts us a whole year. You just soak the nebs

for at

least 10 minutes, I usually soak overnight, then rinse with water and

allow

them to air dry.

I hope this helps you.

Amber,

mom of Nick (who turns 14 today!!!!!!)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I did that with one of the kids baby bottles. It happens..

Except bottles are easier to replace.

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...