RE: Any advice on dealing with extended family members?

[Guest guest]

I am so sorry your having " dumb " things said to you. I am so happy that you

DO know the difference & the real story about genes, etc, If you have

another with CF, then it is that you were chosen for this, WHY-----?? who

knows, BUT You are certainly a great person with it. .. Have you tried to

explain to the commanding officer about how it would be easier for you all &

the service if you were closer to folks in ALAska?? Perhaps he could make

" humanitaurim duty schedule for your husband. I did that years ago when My

husband was due back to sea(navy) & I was expecting my second(1 year

apart).....They sent him to teach at a school up north at Great Lakes,- BUT

I could go too. That was years ---years ago, but it was to their

benefit.........

Whatever happens , yes, distance yourself from occasions where you will

hear those remarks...or simply say out to her/them nicely,- I don't want to

discuss it--you just don't know that much about it........

I wish you all the best & let us hear when your wee ones arrives.

LOVE & HUGS, grandmomBEV

..

Any advice on dealing with exteneded family

members?

Hi, I haven't posted in awhile. We've been rather busy. Getting ready for

Orion and Phynix is starting to learn to walk. So far we've all been as

healthy as can be.

My husband and I have been having problems with certain family members

comments. Saying things like " I just know will die by the time she's

20 " and oogling over a friends brand new healthy baby. Saying how much he's

grown and how he eats. I've tried talking to this person about this but she

just won't listen. One of those types that read a pamphlet and knows

everything there is to know about cf. Also making remarks like " well since

your other kids have cf then this one will too " Even though we've told her

NUMEROUS times that it's always a 1 in 4 chance. I'm just so frusterated

and being pregnaunt isn't making this any easier. I " m practically to the

point of cutting off all contact untill she can see the light. How can

people be so freaking insensitive? It's not like we picked to have kids

that are sick, it just happened. Luck or unluck of the draw. Then to make

matters worse we were coded through the military and now we can't live any

place over seas and all our family and support is in Alaska. So there are

constant comments of " well if you would have moved up here (fill in the

blank) " or " well so and so is moving to Germany, I've always wanted to go

now I can to visit " I feel like ripping my hair out at times. Any

thoughts, suggestions, comments?

Thanks for listening.

Jen A. mom to 4, Yolo 3 and Phynix 9 months all w/cf. Baby Orion due

4-14-03 ??

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