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Re: Karyn/Elavil

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Hi Karyn,

Do you take the Elavil for pain control or depression or both? My GI put me

on it for pain control, and I haven't noticed that it makes me calmer in any

way. Although I have never taken any anti depressants before so I am not

sure if I am supposed to feel " different " as far as emotions go. I always

assumed that when taking an anti depressant for depression that you just felt

better without realizing it...does that make sense?

All this talk lately about Total Pancreatectomy and Auto-Islet Cell

Transplants has really started my wheels turning. I am one of the ones that

says " I am not sick enough to do that. " But yet the disease has enough hold

on me already that planning trips isn't as fun as it used to be because I

never know when an attack is on the horizon. My fiancee and I love going to

the desert to do off-road activities. We hardly go anymore because if an

attack comes I am at least 1.5 hours from a hospital. Or I am panicked if I

leave the house without my pain killers. I was talking to my Mom today and I

told her I can't imagine eating without it causing some kind of discomfort.

This sad to me, I am only 29 years old. Believe me most of you are in WAY

more pain then I am, but since May of last year my health has steadily been

on the decline. Since November I have lost close to 40 lbs. Thankfully I

had it to lose, but I am fearful of the day when I don't. I am really going

to start researching my surgical options and then talk to my GI about. Even

though he has given me the dx, I still doubt that he totally believes me.

Sometimes I feel he just did it to shut me up, I know I am probably wrong.

He gives me Pancrease enzymes, my pain meds but I always have this little

voice in the back of my head saying " It's not CP. " I think that is a result

of the 3 years of doctors not knowing why I was having pain. I guess I never

realized how psychologically damaging those years were. I am definately

coming to the Symposium this year. A chance to hear Dr. Sutherland lecture

cannot be missed. Opps...didn't mean to make this such a long e-mail!

Thanks for listening.

Sending lots of happy thoughts your way...

Marisa~San Diego, CA

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