Re: Re: anita (have Dr. call ahead?)

[Guest guest]

Anita

It's funny that you mention this. I have been trying for 1 1/2 years to get

standing order for her lab work. You know amylase and lipase levels when I

call and say I want her seen I think it's her pancreas. No luck there. My

husband and I were just discussing the overall attitude at her pediatricians

office regarding anything I bring up about her care. They just seem to ignore

it

or come back with that's not what Dr' fox in Boston said. I wish we could get

more cooperation and understanding. Even with her dx we still play stupid

games every time. " oh it cant be pancreatitis again, she must have strep " well

after that comes back negative then we have to do a unrine test cause it could

be a " bladder infection " , which she has never ever had.

Like everyone else who suffers from this we have or own problems with the DR.

Thanks for your odeas and concern.

I hope today finds you pain free, God bless

Patty Hurst

Bangor, ME

Maine State Rep

PAI

[Guest guest]

Hi Patty - I'd hate to wish this disorder on anyone, but don't you sometimes

wish the doctors would get it just for a little while so they could know what it

feels like. I know some are great -but others have that doctor complex, like we

dont know what our own bodies feel like or are telling us. Keep insisting and

standing up for your rights and your daughter's! Remember, the doctors work for

YOU! All my best. Keep in touch and let me know how things are going -

Anita

Re: Re: anita (have Dr. call ahead?)

Anita

It's funny that you mention this. I have been trying for 1 1/2 years to get

standing order for her lab work. You know amylase and lipase levels when I

call and say I want her seen I think it's her pancreas. No luck there. My

husband and I were just discussing the overall attitude at her pediatricians

office regarding anything I bring up about her care. They just seem to ignore

it

or come back with that's not what Dr' fox in Boston said. I wish we could get

more cooperation and understanding. Even with her dx we still play stupid

games every time. " oh it cant be pancreatitis again, she must have strep "

well

after that comes back negative then we have to do a unrine test cause it could

be a " bladder infection " , which she has never ever had.

Like everyone else who suffers from this we have or own problems with the DR.

Thanks for your odeas and concern.

I hope today finds you pain free, God bless

Patty Hurst

Bangor, ME

Maine State Rep

PAI