Re: I saw the doctor - need advise (SOD + pancreatitis) ERCP

[Guest guest]

Hi - I have Sphincter of Oddi Dysfunction in addition to my

pancreatitis. I had several ERCPs where my common bile duct was cut and it's

not a very invasive type of surgery. It's outpatient and I was home a couple

hours later. There is a slight risk of an acute pancreatitis attack

afterwards, but that didn't happen to me and it did help that problem

tremendously. I've also had a sphincterotomy on my pancreatic duct and so far

(one month) it seems to be helping so I'm keeping my fingers crossed. No one

can tell you what to do as far as surgery goes - that's a very personal

decision - just letting you know my experience. I wish you all the best

whatever you decide - Anita

[Guest guest]

Hi,

I also have SOD along with Chronic Pancreatitis. I had my sphincter of

Oddi cut in 2000. I was told by my doctor that once cut, it need never

be cut again. I do still have problems with it, but not nearly as bad

as before the surgery. I did have a severe pancreatic attack after the

surgery that hospitalized me for 9 days. But I would have that done

again if need be. The pain from SOD is terrific. And I did/do have a

great deal of relief from it now.

Sandy

[Guest guest]

Hi! That's great that your SOD only had to be cut once, and that you are

feeling relief from it. Mine is alot better now, but that's after several cuts.

It kept either closing back up or getting scar tissue. My doc gave me

nitroglycerin tabs to put under my tongue when I got one of those attacks, which

relaxes the smooth muscles and it really helped, along with Stadol nasal spray

when it got really bad. I wonder if alot of others with pancreatitis also have

the sphincter of Oddi Dysfunction. The two ducts are so close together. I know

more about this than I ever wanted to, and I'm sure you do too!! Hope you're

doing well now. Take care - Anita

Re: I saw the doctor - need advise (SOD +

pancreatitis) ERCP

Hi,

I also have SOD along with Chronic Pancreatitis. I had my sphincter of

Oddi cut in 2000. I was told by my doctor that once cut, it need never

be cut again. I do still have problems with it, but not nearly as bad

as before the surgery. I did have a severe pancreatic attack after the

surgery that hospitalized me for 9 days. But I would have that done

again if need be. The pain from SOD is terrific. And I did/do have a

great deal of relief from it now.

Sandy

[Guest guest]

Hey all,

the Nitro under the tongue did not work so well for me but Levsin under the

tongue did LOTS better. I would not be able to survive my SOD if it was not for

my Clidinium every 6 hours ( yes I even have to set my alarm in the middle of

the night )and my Levsin. It has kept me from the dreaded ERCP so far. Still

keeping my fingers crossed too ! Does not mean that I don't get the " pain from

the sky " as Kay calls it upon occasion,but the levisn really helps.

Lily from Ohio

Re: I saw the doctor - need advise (SOD +

pancreatitis) ERCP

Hi,

I also have SOD along with Chronic Pancreatitis. I had my sphincter of

Oddi cut in 2000. I was told by my doctor that once cut, it need never

be cut again. I do still have problems with it, but not nearly as bad

as before the surgery. I did have a severe pancreatic attack after the

surgery that hospitalized me for 9 days. But I would have that done

again if need be. The pain from SOD is terrific. And I did/do have a

great deal of relief from it now.

Sandy

[Guest guest]

Hey all,

the Nitro under the tongue did not work so well for me but Levsin under the

tongue did LOTS better. I would not be able to survive my SOD if it was not for

my Clidinium every 6 hours ( yes I even have to set my alarm in the middle of

the night )and my Levsin. It has kept me from the dreaded ERCP so far. Still

keeping my fingers crossed too ! Does not mean that I don't get the " pain from

the sky " as Kay calls it upon occasion,but the levisn really helps.

Lily from Ohio

Re: I saw the doctor - need advise (SOD +

pancreatitis) ERCP

Hi,

I also have SOD along with Chronic Pancreatitis. I had my sphincter of

Oddi cut in 2000. I was told by my doctor that once cut, it need never

be cut again. I do still have problems with it, but not nearly as bad

as before the surgery. I did have a severe pancreatic attack after the

surgery that hospitalized me for 9 days. But I would have that done

again if need be. The pain from SOD is terrific. And I did/do have a

great deal of relief from it now.

Sandy