Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi Theresa, welcome to the list! I would ask your doc to prescribe Xopenex instead of albuterol. Works the same but without the side-effects of albuterol. Becoming hyper is a known side-effect. Peace Torsten, dad of Fiona 6wcf > Hi I am new to this board. I have an 8 month old daughter with cf. > she is very healthy right now. we are really lucky. I was just > wondering if anyone else has a problem with albuterol. It makes her > absoutley crazy. does any one have any suggestions. she takes it > twice a day. thank you so much in advance. I am glad I found this > board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 When a was younger Albuterol used to make her throw up, so she was put on Xopenex and did really well. She is back on Albuterol but she is 9 now. mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf -- In cfparents , " Theresa " <tlanave@c...> wrote: > Hi I am new to this board. I have an 8 month old daughter with cf. > she is very healthy right now. we are really lucky. I was just > wondering if anyone else has a problem with albuterol. It makes her > absoutley crazy. does any one have any suggestions. she takes it > twice a day. thank you so much in advance. I am glad I found this > board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 WELCOME .You will love it here too!! You might try asking the doc if you all could try Xopenex .It is abit easier on many . At least a try. Best wishes LOVE & HUGS, grandmomBEV albuterol Hi I am new to this board. I have an 8 month old daughter with cf. she is very healthy right now. we are really lucky. I was just wondering if anyone else has a problem with albuterol. It makes her absoutley crazy. does any one have any suggestions. she takes it twice a day. thank you so much in advance. I am glad I found this board. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi Theresa, Maybe you and other parents out there can help answer this because I've always been curious about this... I wondering if your doctor prescribed albuterol breathing treatments because your daughter absolutely needs them -- or whether the doctor prescribed them as a standard CF protocol? You said she's very healthy right now, so why is she doing twice daily bronchodialator treatments? If she has an asthma component, perhaps that's different and that's the reason for the breathing treatments. My son was diagnosed with CF at age 4, but his CF doctor didn't prescribe albuterol until a couple years later, and then it was only in a puffer inhaler to use just prior to sports. However, he did take a daily asthma medication, a syrup called Alupent. It worked well and as I recall it didn't have any hyper side effects. Just to add to Torsten's note, I know some people do well with Xopenex, but some don't. My son tried it back in 2000 and it didn't work for him, so he switched back to albuterol (he's always mixed his with Intal). So I'd ask your doctor if the albuterol treatment is something she needs every day even on healthy days, or just days when she's having exacerbations. And as a reminder, albuterol will deplete the body of magnesium, calcium, postassiou, and phosphorus. So be sure she gets a good multivitamin/mineral supplement and magnesium-rich foods every day. Kim Mom of (23 1/2 with CF and asthma) and (20 asthma no CF) > Hi I am new to this board. I have an 8 month old daughter with cf. > she is very healthy right now. we are really lucky. I was just > wondering if anyone else has a problem with albuterol. It makes her > absoutley crazy. does any one have any suggestions. she takes it > twice a day. thank you so much in advance. I am glad I found this > board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 In a message dated 4/29/2003 4:27:48 PM Central Daylight Time, tlanave@... writes: > My daughter currently has no breathing problems. Apparently the > respone that I have gotten from my daughters docs is that there is > two approaches in treating cf. They are going at it aggressively. > they belive that all this medicine will help in fighting off lung > infections. We have known basically from when she was born that > there was a possibility that she had cf. so she has had these > treaments along with intal and pulmozyne ever since. thanks for > your help > theresa > We have never used albuterol. I always thought that was used only if you are having a hard time breathing. Once when I told them my youngest was having a hard time catching her breath they suggested that we should have called them and they would have put her on albuterol. But that was when we were first diagnosed. We do Tobi treatments but so far nothing else. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Kim My daughter currently has no breathing problems. Apparently the respone that I have gotten from my daughters docs is that there is two approaches in treating cf. They are going at it aggressively. they belive that all this medicine will help in fighting off lung infections. We have known basically from when she was born that there was a possibility that she had cf. so she has had these treaments along with intal and pulmozyne ever since. thanks for your help theresa -- In cfparents , " paynekimj " <kimpayne@c...> wrote: > Hi Theresa, > > Maybe you and other parents out there can help answer this because > I've always been curious about this... > > I wondering if your doctor prescribed albuterol breathing treatments > because your daughter absolutely needs them -- or whether the doctor > prescribed them as a standard CF protocol? > > You said she's very healthy right now, so why is she doing twice daily > bronchodialator treatments? If she has an asthma component, perhaps > that's different and that's the reason for the breathing treatments. > > My son was diagnosed with CF at age 4, but his CF doctor didn't > prescribe albuterol until a couple years later, and then it was only > in a puffer inhaler to use just prior to sports. However, he did take > a daily asthma medication, a syrup called Alupent. It worked well and > as I recall it didn't have any hyper side effects. > > Just to add to Torsten's note, I know some people do well with > Xopenex, but some don't. My son tried it back in 2000 and it didn't > work for him, so he switched back to albuterol (he's always mixed his > with Intal). > > So I'd ask your doctor if the albuterol treatment is something she > needs every day even on healthy days, or just days when she's having > exacerbations. > > And as a reminder, albuterol will deplete the body of magnesium, > calcium, postassiou, and phosphorus. So be sure she gets a good > multivitamin/mineral supplement and magnesium-rich foods every day. > > Kim > Mom of (23 1/2 with CF and asthma) and (20 asthma no CF) > > > > Hi I am new to this board. I have an 8 month old daughter with cf. > > > she is very healthy right now. we are really lucky. I was just > > wondering if anyone else has a problem with albuterol. It makes her > > absoutley crazy. does any one have any suggestions. she takes it > > twice a day. thank you so much in advance. I am glad I found this > > board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Oh, yeah! My four year old gets pretty wound up with the albuterol. So do a few other kids I know who have asthma and use the Albuterol. Sorry I don't have any real suggestions though. albuterol Hi I am new to this board. I have an 8 month old daughter with cf. she is very healthy right now. we are really lucky. I was just wondering if anyone else has a problem with albuterol. It makes her absoutley crazy. does any one have any suggestions. she takes it twice a day. thank you so much in advance. I am glad I found this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 ---Hi- thats weird cuz it does the opposit for -J, My daughter used to go to sleep w/ a binky and he goes to sleep with his treatments, I put that mask on and once that smoke starts he's out. Now that he's getting older and sleeping less he somtimes tries to fight them. But I was told by the dr. that it might cause hyperness, so I think its normal if it does happen. Kari In cfparents , " ANDREA FITTING " <drea@m...> wrote: > Oh, yeah! > My four year old gets pretty wound up with the albuterol. So do a few other kids I know who have asthma and use the Albuterol. Sorry I don't have any real suggestions though. > > albuterol > > > Hi I am new to this board. I have an 8 month old daughter with cf. > she is very healthy right now. we are really lucky. I was just > wondering if anyone else has a problem with albuterol. It makes her > absoutley crazy. does any one have any suggestions. she takes it > twice a day. thank you so much in advance. I am glad I found this > board. > > > > Quote Link to comment Share on other sites More sharing options...
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