Re: Hi, --good post, in response to Toni

[Guest guest]

n,

When I was on the Marilu Henner diet, I did try

soy milk, but just could not drink it. Soy icecream

was pretty good though. I tried the Rice Dream milk

and though it didn't taste like milk, it was rather

nice tasting - kind of nutty - and had the extra D,

and calcium I needed. My mother thought I was nuts,

but I'm always game for learning more about nutrition

and giving reasonable diets a chance. Her diet just

didn't make a difference for me - so I'm back to dairy

and happy about it.

C

Mommy to Mick and Alli, 3 yo twins wcf

--- Mcesana@... wrote:

> I am (or was when I arose this morning!) n

> Rojas, wcf, CFRD.

> I do very well on whole milk, yogurt, some cheeses,

> most all milk pro

> ducts. However, my middle child--mine are all

> carriers, including the

> one wcf, too--is both lactose (one of the sugars in

> milk) and galactose

> (one of the other ones) intolerant AND allergic to

> milk. The rest of us

> could keep the cows in our state going strong. The

> one who is allergic

> to milk develops asthma, coughing, hives, itching

> and heaven only knows what

> else. It IS a myth that milk produces mucus.

> However, if

> one is milk sugar intolerant, one has the same type

> of steatorrhea as

> do most of us with cystic fibrosis and there is no

> rule that says that you

> cannot have the whole bag of tricks. I think the

> myth arose from the all

> ergy thing. There are many ethnic populations,

> usually not originating in

> Westerrn Europe that are congenitally lactose and/or

> galactose intoler

> ant, whereas allergy can hit anyone.

> That said, it is also the case that milk sugar

> intolerance is not to the fats

> in dairy products, but to the milk itself, and the

> more fat they take out,

> the more lactose and galactose there is in and

> vice-versa. Cfeam, milk

> fat, butterfat, do not have milk sugars in them

> except very minimally in

> the usa where we add milk powder to our butter--do

> not ask me why---

> makes Danish butter a bargain for those folks. Most

> of us with cystic

> fibrosis have trouble with the fat, which causes

> steatorrhea, or what ap

> pears to be diarrrhea but is actually excretion of

> fat through failure to ab

> sorb it into the gut and digest it.

> I think you did a very wise thing in consulting your

> dietician, and the rest

> will just be up to you to see what works and what

> doesn't. As a last re

> sort, allergy elimination diets can be tried under

> the guidance of an aller

> gist, but usually one just goes by what works for

> the individual.

> For me, I cannot even think about lobster, crab or

> scallops--all of which

> I adore, without having true diarrhea, where water

> leaves the gut. My

> middle one uses soy products and other protein

> products such as gluten, and

> the obvious, meat, fish (which she can eat) and

> shellfish for

> protein. There is also a product called Rice Dream

> which is fortified with

> more than the A, D, and calcium in milk which works

> for many.

> Teach YOU to put an issue to this list!!!!!

> Love and good luck to Toni and to you,

> n Rojas, wcf, CFRD, who has been round robin

> with this with the

> NON-cf kids!

>

>

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