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Paige, MRSA and Juggling

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Hello everyone!

Paige is doing fine.. I was just reading about the eating, and the g

tube stuff. I LOVE her gtube, boy did I fight it when they first

wanted to do it.....but now, I just love it.

She became severely dehydrated on a plane trip last Tday, and it

literally SAVED her....I just pushed liquids in slowly, and she did

great....

I dont worry about her eating anymore...and she eats quite a bit

now..somedays, Although other days she just doesnt feel like eating

much..but I think that is standard for all kids. However, she would

rather have brocoli then chocolate..strange child.

I wanted to know..are there any other youngsters who are culturing

MRSA...I just wondered if MRSA is something that most culture

early..or what the norm is...

I just finished and copyrighted.. JUGGLING DOWN SYNDROME..thanks to

the converstation with the DS Association here.. I am so excited. The

woman who is the VP is WONDERFUL..she is very nice,..I think I may

have made a good friend in the process!!!! I am meeting the greatest

people doing these journals for sick kids. I just love it!!

Mom to KM 8 wocf, and Paige 3 wcf..and author of " Juggling CF, and

Juggling Down Syndrome, There's NO Place Like Home. A Hospital

Journal " and MORE he hehe YEAH.....

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