Tumour has gone

[Guest guest]

Hi everyone,

I had my 5th ERCP in 3 months yesterday. The first of those ERCP's

they found a polyp in my pancreatic duct (I have a hereditary

illness, Familial Polyposis) which was 1 in a million not likely to

be a polyp there, but pathology results confirmed my luck at the

odds (sarcasm) to be that 1 in a million. Then the third ERCP, at MD

Cancer Center in Houston, they biopsied it and told me it

wasn't a polyp but a desmoid tumour, the same that I have growing on

the outside of my pancreas, liver, spleen, small intestine, and on

major blood vessels, making them all inoperable. They removed as

much as possible, but it was impossible to take all of it out. Then

yesterday, my local GI did another ERCP to change the stent I had

put in on the 3rd ERCP. My duct had opened up yet again, so they

kept the stent out (which happens every time, then 2 weeks later, it

usually closes again)and he went further in to check on the tumour

and it has completely gone. There is no record ever of one of these

tumours disappearing on it's own without any medication, chemo or

radiation to aid in shrinking them. Finally God is on my side for a

change. Now it would be wonderful if all the others will do the

same, but I do know that will never happen.

While it is good news about the tumour disappearing, where one has

grown, more will follow in the same place, and these have a high

chance of becoming malignant, and it isn't a good place for the

doctors to get to them. My GI thinks perhaps this tumour may have

been the cause for my pancreatitis, as well as the duct collapsing

at the opening. He congratulated me and said he hopes it doesn't

repeat itself again. Me too, but not having much luck, I can't get

my hopes up too high until i've gone a few months without any

problems.