Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 In a message dated 4/17/2003 1:57:54 PM Central Daylight Time, reamsfarm@... writes: > > Thanks to Lenora and Allel? for the encouragement. I have heard > about the modifiers (that's the explanation given by our docs) I just > wanted to hear from some who had the same CF mutations as Abby. I > can somehow read the messages on the board now so I must have > accidentally pressed the right button.?--- I don't want to sound > pessimistic at all. We are learning that this info stuff can be a > slippery slope. The most important thing is having a positive > setting for our family. We are just starting this and want to get > the basics straight. I believe once we get a decent hold on them, > we'll feel better. We don't want this to rule our lives or rob our > joy. Our children are doing great and we want that to continue. I > am going to get my wife on this site so she can participate. She > stays at home with our 2 youngest, including Abby (and 2yrold Chloe) > and I'm a farmer who is about to get very busy. Her name is Kathy > and she definitely struggles with being tied down here. Our 2-yr-old > had hip dysplasia and was in a body cast for 3 mos. and a brace for 6 > wks. (corrected and running around now)while Kathy was on bedrest > during her preg. w/ Abby. She's been tied down for a while but is a > very hard worker and a strong and devoted mom. She can't seem to > find decent help to help clean or keep kids - even while she's here. > Our families are into their own thing though we occasionally get a > night out. Thanks for ll the responses. > Joe Joe, You sound like a very caring husband Kathy is very lucky! She needs others to talk to it really helps. Where are you from? We are from Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
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