Oprah and I'm sorry

April 19, 2003

HELLO- IM SORRY I SOUNDED SO NEG. ABOUT OPRAH, I WAS JUST A LITTLE

DOWN AFTER TALKING TO SOME PEOPLE ABOUT GETTING INVOLVED IN CF

FUNDRAISING AND SEEING SOME OF THEIR RESPONSES. DONT GET ME WRONG I

HAVE BEEN GETTING A LOT OF GOOD RESPONSES BUT THERE IS ALOT OF PEOPLE

OUT THEIR THAT JUST DONT CARE AT ALL IF IT DONT EFFECT THEM DIRECTLY.

THAT IS VERY SAD TO ME. THATS WHY I FEEL THE WORD NEEDS TO GET OUT

THERE. ONCE I GET TALKING AND GET THEM TO UNDERSTAND IS WHEN THEY

WANT TO GET INVOLVED. I HAVE TO BE HONEST THOUGH I NEVER WAS INVOLVED

INTILL NOW THAT MY SON IS SICK, BUT I WAS NEVER APPROCHED ABOUT CF

EITHER. ANYHOW I AM SORRY TO SOUND SO NEG. I NEVER SAW THAT ROSIE

EPISODE AND I AM A BIG ROSIE FAN BUT I WAS VERY SAD TO LEARN JUST

RECENTLY THAT HER NEPHEW HAS CF AND SHE DIDNT DO VERY MUCH PROMOTING

ON HER SHOW. EVEN THOUGH IT WAS A E.T. SHOW SHE COULD OF DID THOSE

PSA'S AT THE END OF THE SHOW OR COMMERCIALS OR SOMETHING. SHE SURE

DID GET THE WORD OF BREAST CANCER OUT THERE (WHICH I THINK IS GOOD)

AND ALSO ADOPTION (WHICH I ALSO THINK IS VERY GOOD) AND SO I THINK

SHE COULD OF DONE ALOT MORE ON CF. THATS JUST MY OPINION AND I KNOW

EVERY ONE ISINT GOING TO AGREE AND THATS OK TOO. i GUESS IM JUST

TRYING TO SAY IM SAD THAT NOT VERY MANY PEOPLE WILL GET INVOLVED! SO

INTILL I SEE THOSE PAPER ROSES AND G.S. SNEAKERS ALL OVER MY GROCERY

STORES AND BANK'S AND WALMARTS LIKE I SEE THE MARCH OF DIMES AND

DIABETES ONES ALL OVER, I WILL STILL TRY. THANKS KARI

April 19, 2003

You go Kari! What a great attitude on spreading the word. Keep it up

and remember that we're all pulling with you!

Take care - Michele

> HELLO- IM SORRY I SOUNDED SO NEG. ABOUT OPRAH, I WAS JUST A LITTLE

> DOWN AFTER TALKING TO SOME PEOPLE ABOUT GETTING INVOLVED IN CF

> FUNDRAISING AND SEEING SOME OF THEIR RESPONSES. DONT GET ME WRONG I

> HAVE BEEN GETTING A LOT OF GOOD RESPONSES BUT THERE IS ALOT OF

PEOPLE

> OUT THEIR THAT JUST DONT CARE AT ALL IF IT DONT EFFECT THEM

DIRECTLY.

> THAT IS VERY SAD TO ME. THATS WHY I FEEL THE WORD NEEDS TO GET OUT

> THERE. ONCE I GET TALKING AND GET THEM TO UNDERSTAND IS WHEN THEY

> WANT TO GET INVOLVED. I HAVE TO BE HONEST THOUGH I NEVER WAS

INVOLVED

> INTILL NOW THAT MY SON IS SICK, BUT I WAS NEVER APPROCHED ABOUT CF

> EITHER. ANYHOW I AM SORRY TO SOUND SO NEG. I NEVER SAW THAT ROSIE

> EPISODE AND I AM A BIG ROSIE FAN BUT I WAS VERY SAD TO LEARN JUST

> RECENTLY THAT HER NEPHEW HAS CF AND SHE DIDNT DO VERY MUCH

PROMOTING

> ON HER SHOW. EVEN THOUGH IT WAS A E.T. SHOW SHE COULD OF DID

THOSE

> PSA'S AT THE END OF THE SHOW OR COMMERCIALS OR SOMETHING. SHE SURE

> DID GET THE WORD OF BREAST CANCER OUT THERE (WHICH I THINK IS GOOD)

> AND ALSO ADOPTION (WHICH I ALSO THINK IS VERY GOOD) AND SO I THINK

> SHE COULD OF DONE ALOT MORE ON CF. THATS JUST MY OPINION AND I KNOW

> EVERY ONE ISINT GOING TO AGREE AND THATS OK TOO. i GUESS IM JUST

> TRYING TO SAY IM SAD THAT NOT VERY MANY PEOPLE WILL GET INVOLVED!

SO

> INTILL I SEE THOSE PAPER ROSES AND G.S. SNEAKERS ALL OVER MY

GROCERY

> STORES AND BANK'S AND WALMARTS LIKE I SEE THE MARCH OF DIMES AND

> DIABETES ONES ALL OVER, I WILL STILL TRY. THANKS KARI

April 19, 2003

Hi Kari,

I know you didn't want to sound really negative about the Oprah thing, you don't

have to appologize.

I know what you mean about people not caring unless it effects them. One thing

that I have noticed is that people are more willing to donate money to the CFF

when I have my daughter with me. I always include a photo of her in my

letter that I send out inviting people to walk with us, or sponsor us. I must

be honest too. I didn't really know what CF was before my daughter was

diagnosed and I had no idea that there was a walk for CF. I certainly wasn't

involved. I did walk for the march of dimes when I was in college, though.

Rosie didn't do a lot on her show about CF. She did donate $$$ and time as well

as her name to the CFF though and has a charity " for all children " but I don't

know if she still does anything with CF. You probably know about Celine Dion's

involvement. Her niece died from CF (I think it was in the 80's?) and she has

spoken about CF in interviews and I think she is involved with the CFF in

Canada.

I know what you mean about the paper roses and the GS sneakers. All I see in my

area is the Children's Miracle Network Balloons. No Roses or GS Sneakers. I'll

have to mention that to the foundation people here.....