Re: make a wish, etc...RESPONSE

[Guest guest]

I know what you mean about the lump in your throat. I feel the same way. I

am probably the only one who now hates that giant rat in Orlando. 's

wish is Disney Cruise....I want to have fun as a family but knowing the

reason is the hard part. I know the key phrase is life threatening and that

may never, god willing, come to be, but just knowing that you qualify for

make a wish is depressing as all hell.

I try to stay positive and look at the joy and excitment in the kids. Thats

what its about them not me or you. Its their wish and their excitement.

God, knows they deserve it having to do all this medicine and

treatments...ughhhhh.

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...