make a wish, etc...

[Guest guest]

Hello everyone,

Well, we went to clinic yesterday and all in all it went good. The boys

talked to the social worker about make a wish. She said we should be getting

contacted from them shortly. I have to tell you, I was sitting there listening

to the kids talk to her and this big knot, about the size of a softball, hung in

my throat. I couldn't get rid of it. She asked me if it was all right with me,

I couldn't really talk. Basically shaking my head. I don't know why I have

such a hard time with this. It's like admitting defeat. If the boys do the

make a wish, I am saying " OK, my kids have cf & they are not going to get

better. " Does that make any sense at all?

I know, I am keeping it in my mind that they would enjoy it. Its a once in a

lifetime thing, something that I could never do for them. I just feel like I am

giving in to the idea that my kids have a disease that will take them,

eventually. Man, thats a hard one to swallow. I guess I live day by day not

thinking of cf. The meds, treatments, etc.... are just a normal part of life.

Maybe it is that I don't want to allow myself to think about it. I guess I am a

weak persoon, because I can't handle the thought of it.

Anyway, enough rambling from me.

wants to go play basketball with Shaq. Which I think is neat.

Although I am sure probably wouldn't come up to his knee caps. LOL He

is a little guy. If not he wants to meet the guy that plays on Like Mike. Has

anyone seen it? Who is the guy that plays (sp)? just idolizes

him.

doesn't really know what he wants. He has mentioned a 4 wheeler, which I

am not really liking. I think they are a bit too dangerous. He's only 11. I

know probably over protective and stupid of me, but what can I say. So, we'll

see.

Oh, I asked the team some about the vitamin D thing and sunlight. They said

that yes 20 minutes in the sun will give vitamin D, But, the problem is

absorption. They also said that ADEKS are a good vitamin. And not to

neccessarily give a multi vitamin with it. They said that that is why they

monitor vitamin levels. If they need something they give it, if the kids are

not low on some, that sometimes more is not a good thing. So, I guess I will

keep them on ADEKs, w/ extra K. s levels are fine.

Welp, I guess that is all for now. I need to get thing s done around here.

Vondie