Re: ???????? to all and anyone. !!!!

[Guest guest]

Ralph,

I am not diagnosed with chronic pancreatitis but I have been

diagnosed with some kind of pancreas disease - maybe the

acute relapsing type (?) (I do not have signs of CP - only

symptoms). The doctor ruled cp out by doing an ERCP with a

pancreatogram and an endoscopic ultrasound. My

understanding is that this is a very, very sensitive way to rule out

or diagnose CP (the gold standard is to do a biopsy, but not

many MDs advocate doing this).

An MRCP that I had in May, suggested that I have pancreas

divisum and the ERCP / EUS that I had two weeks ago

confirmed this along with a stenotic minor papilla. This is

consistent with my chronic pain of pancreatic origin, weight loss

and generalized " sick " feeling. As far as lab tests are concerned,

mine have been relatively normal exept for elevated liver function

tests over the last year or so. But I was told that that had nothing

to do with my pancreas problems - that it was a result of my SOD

and functional biliary block.

I had one documented case of acute pancreatitis three years

ago and possibly one other two years ago.....otherwise, I have

just had the symptoms of pancreatitis, fairly constant over the

last three years. MRCPs, CTs, USs and numerous lab tests

have all been negative for chronic or acute pancreatitis. The only

way that I was recogized to have pancreatic disease was to see

a GI doctor who specializes in that - the " run of the mill " GIs that I

saw previously hadn't a clue, and never considered it in my case.

So that is my story of how I got here.

Laurie

[Guest guest]

Hi Ralph,

I was diagnosed with AP but continued tohave pain and diarrhea especially

after eating. I continued calling the doctor until he decided to schedule me

for

an ERCP. It was then that I was diagnosed with CP. I hope this is helpful.

Patty J

[Guest guest]

Ralph,

I was diagnosed with CP in 1996, right after I had my gall bladder taken

out. They think that I had pancreatitis since I was a young child and

didn't catch it until I was almost 26. Just this past year I was diagnosed

with diabetes type 2 but am not on meds for it as of yet. I have sphincter

of Oddi dysfunction. I have a feeding tube right now and since there has

been a change in my doctor's appt. I will be going back to see the doctor on

the 20th. Hope things work out for you and my prayers are with you.

Nobles

Sumter, SC

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.524 / Virus Database: 321 - Release Date: 10/6/03

[Guest guest]

Ralph,

I was diagnosed with CP in 1996, right after I had my gall bladder taken

out. They think that I had pancreatitis since I was a young child and

didn't catch it until I was almost 26. Just this past year I was diagnosed

with diabetes type 2 but am not on meds for it as of yet. I have sphincter

of Oddi dysfunction. I have a feeding tube right now and since there has

been a change in my doctor's appt. I will be going back to see the doctor on

the 20th. Hope things work out for you and my prayers are with you.

Nobles

Sumter, SC

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.524 / Virus Database: 321 - Release Date: 10/6/03

[Guest guest]

This is directed to Ralph, I think you are looking for guidance at

where to being with this subject Pancreatitis, ask your family Dr.

to refer you to a GI. It is possible for your family Dr to have labs

done such as amylase and lipase. There are some people that have

elevated levels and others don't. Once you are referred to a

Gastroeneterologlist they may want to do an endoscopy and an ERCP to

evaluate pancreatic structure along with the biliary tree. A

physician trained in these types of proceedures will be able to

determine if your symptoms are related to a pancreatic process,

although it is possible for a physician to diagnosis according to

history, it is depending on the Dr. Hope this helps you.

Atwell LPN

[Guest guest]

Ralph,

I posted a message on the board in regards to the Gastroenterology

and internal medicine departments for the hospital at NH...Did you

not see it? or have you tried them? They might accept a self

referral from yourself, or ask your PCP if she could refer you to

them. They at least might be able to direct you to a GI who could

give you a second or third opinion...if not, I shall find my last

post to you and give it to you again.

Regards,