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Rosemary

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Happy Birthday!! (I won't remember to tell you next week.) That is too funny

about the snakes. Just think if you were 1341, you would look might good for

your age. :-)

Dawn mom of 4, 7 and under, the youngest wcf

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Were they REAL snakes????????????????

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...

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Was Dylan a preemie?

Kim

> Current Events

Things are pretty tense in NY. Thursday I took Dylan to CF Center at

Schneiders Children Hosp. security was tight -- due to a bomb threat!

FBI came and baracades etc. set up. It was weird walking in with such

security.

Dylan appt. was amazing. I only took him for PFTs and Blood work. I

ran into the Dr. in the hall by the gift shop and she told me she

wanted to see him for clearance (not pediatrition who I hoped for

since its so much quicker). Well, she did full exam in her

OFFICE.....he needed blood work she came down to the lab and help his

arm while I held him down with my arms and legs. He screamed blue

murder - you could hear up for 1 block. My 10 yr. said he heard him

in the gift shop and people were saying I am glad I am not him. I

was AWFUL!!!!!!!! That God for the Dr. she was amazing. She even

checked out my 10 yr. I dread Dylan's surgery. He has such sensory

issues and will freak at being away from home.

Thats where ONE DAY AT A TIME comes in. I won't think about til

then....I will just take it one day at a time.........

The stores around here have NO water - people are buying duck tape

like mad. I wish I owned stock in 3M (the duck tape manufacturer)...

They are making a fortune.. Personally, I love duck tape......

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6...... I coined the phrase " BREATHE DAMMIT " ; we

have a dog we named -are you ready for this - TOBI after their

medication!!! At least it wasn't albuterol or Coly...

>

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