Re: question and other notes

[Guest guest]

You should send a letter to the superintendent of the school district you are

in and request an IEP or 504 plan. If you have a social worker at the clinic

you attend, they should be well informed on how to go about this whole

procedure. you can and should stipulate any and all enzymes, breathing

treatments, etc... that could or are needed during the school day. Also

insist it be written into the plan that the school is to send out a home

teacher IMMEDIATELY, when your child is on home iv's or is out of school for

more than 1 or 2 days. Even though your child may only be sick for 3 days at

a time, several small absences over the school year will add up and the

child will fall behind. Aslo, on the CFF website there is a pamphlet you can

download and hand out to each of your child's teachers as well as the

principal, health aide, nurse and secretary of the school.

I also sit down before school starts and have a general meeting with all my

son's teachers. I go over CF in general, as well as specifics pertaining to

my son.

Also, have bathroom privileges, water by your child's side, etc.. written

into the 504 plan.

I also insist my son be placed in the fron of the class at either end of the

row. This way he is not in the middle of the class being coughed on, etc..

from the other classmates. Oh, also insist they change out the heating, a/c

filters for your child's classroom on a monthly basis, and make sure the room

is very clean, i.e. dusted and vacuumed a couple of times/week. Insist they

keep anti-bacterial soap by the wash basin in the class room, as well as

kleenex easily accessible by your child.

one of the best means of illness prevention is to teach your child to wash

his/her hands before and after eating, playing oin the playground.

be firm and insistent about everything being in writing in the 504 plan. If

they give you a hassle, you will have better means for correcting them if it

is all in writing fromthe beginning.

I hope this helps you,

Amber

nick's mom

[Guest guest]

You should send a letter to the superintendent of the school district you are

in and request an IEP or 504 plan. If you have a social worker at the clinic

you attend, they should be well informed on how to go about this whole

procedure. you can and should stipulate any and all enzymes, breathing

treatments, etc... that could or are needed during the school day. Also

insist it be written into the plan that the school is to send out a home

teacher IMMEDIATELY, when your child is on home iv's or is out of school for

more than 1 or 2 days. Even though your child may only be sick for 3 days at

a time, several small absences over the school year will add up and the

child will fall behind. Aslo, on the CFF website there is a pamphlet you can

download and hand out to each of your child's teachers as well as the

principal, health aide, nurse and secretary of the school.

I also sit down before school starts and have a general meeting with all my

son's teachers. I go over CF in general, as well as specifics pertaining to

my son.

Also, have bathroom privileges, water by your child's side, etc.. written

into the 504 plan.

I also insist my son be placed in the fron of the class at either end of the

row. This way he is not in the middle of the class being coughed on, etc..

from the other classmates. Oh, also insist they change out the heating, a/c

filters for your child's classroom on a monthly basis, and make sure the room

is very clean, i.e. dusted and vacuumed a couple of times/week. Insist they

keep anti-bacterial soap by the wash basin in the class room, as well as

kleenex easily accessible by your child.

one of the best means of illness prevention is to teach your child to wash

his/her hands before and after eating, playing oin the playground.

be firm and insistent about everything being in writing in the 504 plan. If

they give you a hassle, you will have better means for correcting them if it

is all in writing fromthe beginning.

I hope this helps you,

Amber

nick's mom

[Guest guest]

THanks Amber, I printed it out and will get a file together so I can

start this process! That did help. Christy-Wyatt's Mom

> You should send a letter to the superintendent of the school

district you are

> in and request an IEP or 504 plan. If you have a social worker at

the clinic

> you attend, they should be well informed on how to go about this

whole

> procedure. you can and should stipulate any and all enzymes,

breathing

> treatments, etc... that could or are needed during the school day.

Also

> insist it be written into the plan that the school is to send out a

home

> teacher IMMEDIATELY, when your child is on home iv's or is out of

school for

> more than 1 or 2 days. Even though your child may only be sick for

3 days at

> a time, several small absences over the school year will add up

and the

> child will fall behind. Aslo, on the CFF website there is a

pamphlet you can

> download and hand out to each of your child's teachers as well as

the

> principal, health aide, nurse and secretary of the school.

>

> I also sit down before school starts and have a general meeting

with all my

> son's teachers. I go over CF in general, as well as specifics

pertaining to

> my son.

>

> Also, have bathroom privileges, water by your child's side, etc..

written

> into the 504 plan.

>

> I also insist my son be placed in the fron of the class at either

end of the

> row. This way he is not in the middle of the class being coughed

on, etc..

> from the other classmates. Oh, also insist they change out the

heating, a/c

> filters for your child's classroom on a monthly basis, and make

sure the room

> is very clean, i.e. dusted and vacuumed a couple of times/week.

Insist they

> keep anti-bacterial soap by the wash basin in the class room, as

well as

> kleenex easily accessible by your child.

>

> one of the best means of illness prevention is to teach your child

to wash

> his/her hands before and after eating, playing oin the playground.

>

> be firm and insistent about everything being in writing in the 504

plan. If

> they give you a hassle, you will have better means for correcting

them if it

> is all in writing fromthe beginning.

>

> I hope this helps you,

> Amber

> nick's mom

>

>

>