Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 Hi everyone, I want to thank everyone who responded to my coping issue. It gets hard but sometimes family is the only thing that matters......and that includes all of you. Well, my son's psuedomonas are resistant to TOBI. Now we will start on Colistin (SP). I don't know if I should feel that they're trying to punish us or they feel confident that I'll be able to handle all of these meds. that he's on. What type of nebulizer do you use for this drug? He will also start the cipro along with the colistin and zithromax. I feel so overwhelmed now...I'm probably making a mountain out of a mole hill....but until I get things under control and fall into a different routine I'll be nervous about all of this. Thanks for your support, from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 We have used the pari lc jet + for coly just like Tobi. I have heard and used a few tips. Mix a day or two worth of it in advance and store in refrig, this helps to cut down on the foaming. I have also heard but never tried putting 1 drop of Everclear (yes the 100 % alcohol) in the neb with the coly. I have heard that from more than one person, its been awhile since Ang has been on coly but I have thought I'd try it next time. Cipro and Zithromax are just a couple of new pills but they do need to be taken without milk, well at least the cipro does, there are some instructions about both but they aren't difficult. You'll be OK. Hang in there, I hope your boy feels better soon. love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 In a message dated 4/9/2003 11:47:10 AM Central Daylight Time, ck570@... writes: > Hi everyone, > I want to thank everyone who responded to my coping issue. It gets hard > but > sometimes family is the only thing that matters......and that includes all > of > you. > > Well, my son's psuedomonas are resistant to TOBI. Now we will start on > Colistin (SP). I don't know if I should feel that they're trying to punish > > us or they feel confident that I'll be able to handle all of these meds. > that > he's on. What type of nebulizer do you use for this drug? > He will also start the cipro along with the colistin and zithromax. I feel > > so overwhelmed now...I'm probably making a mountain out of a mole > hill....but > until I get things under control and fall into a different routine I'll be > nervous about all of this. > Thanks for your support, > from PA Collistin was the first drug they put my girls on. The only differents between the two is that you have to do collistin 3 times a day compared to Tobi 2 times a day and it takes only 15 to 20 minutes to do the treatments compared to tobi doing 30 to 40 minutes. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 We only do colistin(coly-myicin) 2 times a day. We alternate it every 28 days with TOBI Lynette Mom to Traci 7w/cf and 11w/ocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 In a message dated 4/10/2003 4:09:56 AM Central Daylight Time, brmorey@... writes: > Cipro and Zithromax are just a couple of new pills but they do need to be > taken without milk, well at least the cipro does, there are some > instructions about both but they aren't difficult. You'll be OK. Hang in > there, I hope your boy feels better soon. why can't you take cipro with milk? That is what my daughter likes to get rid of the taste of cipro it has to be chocolate milk. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Milk affects the absorption of the drug. If you read the fine print it says not to take within 2 hrs of dairy products or calcium supplements. but some people were saying its the only thing that keeps them from throwing up on the cipro so if that's the case take it with milk anyway.. love, M Re: here we go > In a message dated 4/10/2003 4:09:56 AM Central Daylight Time, > brmorey@... writes: > > > > Cipro and Zithromax are just a couple of new pills but they do need to be > > taken without milk, well at least the cipro does, there are some > > instructions about both but they aren't difficult. You'll be OK. Hang in > > there, I hope your boy feels better soon. > > why can't you take cipro with milk? That is what my daughter likes to get rid > of the taste of cipro it has to be chocolate milk. Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 If memory serves me correctly, (it's been a long time since Nick was on coly) you can nebulize coly through an ultrasonic neb, as it will froth less that way. If you don't hve an ultrasonic machine, then any old neb will work, and Pari nebulizer bowls seem to do a great job with regular machines. Amber Nick's mom Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.