Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 In a message dated 5/5/03 11:45:52 AM Eastern Daylight Time, annapalazola@... writes: > . Tell us a little > bit about the medical protocol that your daughter is on, meaning what > kind of neb, any inhale ab, like Toby, etc. > > Well Kiersten is on pulomozyme albuteral and tobi nebs every other 28 days. She takes prilosec 2x a day, her enzyme is pancreacarb MS8, ADEK She also has a g-tube witch we use every night. She gets 3 cans of Nutren 2.0. She goes in for tune -ups every 4 to 6 months (thats the way it has been for the last 2 years) We were in and out of the hospital 4 times in March cause she kept on getting bowel blockages. So far knock on wood it has not happened again. I think thats about all for now Oh She was diagonised at birth with mecomium illues she had to have surgery to fix it. She spent 9 weeks in the nicu. mom to Y Kiersten Lee 2-13-98 w/cf Y Y Natasha Rose 2-24-00 w/o cf Y Y Trevor 10-18-01 w/o cf Y Y Noelle 11-29-02 w/o cf Y Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 I am also very new to the list but this is a place where you are going to find a lot of support and encouragement. Tell us a little bit about the medical protocol that your daughter is on, meaning what kind of neb, any inhale ab, like Toby, etc. mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf > > > > > Hi > > I thought I would give a little intro on us here. My Name is I am a > > sahm to 4 kiddos:) My oldest Kiersten who is 5 has cf. She has also > > cultured staph for as long as I can remember and Pseduomouns (sp?) .She > > recently cultured Mrsa in the last year or so and we can not get rid of > > it!! She will be starting school in the fall.(I am however dreading it) > > We live in the Northern Va area. W e are going to move to the Mesa > > Arizona area sometime next summer. > > My other 3 children do not have cf. My second child Natasha is a > > carrier. 18 months and 5 months are not even carriers. > > Thats about all here. I hope to chat with you all soon. > > > > mom to > > Y Kiersten Lee 2-13-98 w/cf Y > > Y Natasha Rose 2-24-00 w/o cf Y > > Y Trevor 10-18-01 w/o cf Y > > Y Noelle 11-29-02 w/o cf Y > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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