Re: nebulizers

[Guest guest]

I am kind of stupid about this things. What do you mean you were cut

down from 6 nebs to 2? What kind of nebs? a does albuterol,

prior to the vest and toby in the am; pulmozyme at around 4 pm and

albuterol,the vest and toby again in the pm. Next month she will only

do albuterol prior to the vest, pulmozyme and at night albuterol and

the vest again at night. On and off during cold months, so what nebs

are you talking about??

Mom of a 9 with cf, Venanzio 6 nocf, Pepe 3 nocf

> I was just thinking.......we only are allowed 2 nebulizers (down

from 6 )

> every other month.....we're expected to make them last that long.

Do they

> (ins. carriers) not know how often CFers use their nebs?? Why did

they cut

> us down by 4? Anyone have the same problem?

> from PA

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>

>

[Guest guest]

Now I see what you mean! Yeah, I had to deal with this too. Every

compressor that I have gotten from them (ins.) were old and would

stop working after a while, finally I told my cf doctor to get us one

from Apria (one of the approved dist) and to ask for a certain kind

and to make sure it was new (pari). We got a non disposable cup with

this compressor and we suppost to get a new one every six months. On

the disposable, I was informed that I could not get anymore because I

had the non-disposable now. I have Allied medical by my house and

they cost $5.25!! each disposable!! no mask.

Awful, well, if anybody knows were I can get them cheaper let me know.

Thank you for bringing up this issue.

mom of a 9 wcf, Venanzio 6 nocf, Pepe 3 nocf

> Nebulizers cups.

> from PA

>

>

>

[Guest guest]

Also when we had the old clunkers I had to beg for more neb cups, and

sometime they would let me have them other time they sold them to me.

Sad,

Mom of a 9wcf, Venanzio 6 nocf, Pepe, 3 nocf

> Nebulizers cups.

> from PA

>

>

>