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Re: ERCP to Beth

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Dear Beth,

I was reading your letter to Karyn and wanted to comment on

your statement:

" ... the more reading I do, it almost seems as though Barry

endures less pain with dead tissue of a pancreas than what

people with live pancreases deal with. Could this be true? "

I have to concurr with this based on my experience. I have had

considerably less pain since my pancreas burn-out. In fact, I

think if my two pseudocysts were not there, I would be relatively

pain-free. After going through 18 months of chronic pancreatitis

with a much calcified, yet still functioning pancreas, I suffered

many and frequent pain episodes on a routine basis. It started

slowly at first, every three weeks, then after several months, every

two weeks, then week by week, then eventually the pain became

a daily event.

Since my DKA and pancreas burn-out, I no longer have those

daily pain episodes, and when I do have pain it seems to be

directly connected to the areas where my pseudocysts are, not

generalized throughout as it was before.

I wanted to say how sorry I was that your husband was so

unfortunate to end up being one of those rare cases that this had

to happen to. Although it doesn't make his present situation any

less traumatic or unfair, at least he didn't have to go through

several years prior to this of the horrible daily unrelenting pain of

CP. I pray that he will stay well and care well for his remaining

pancreas and will be spared from future complications.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments and advice are personal opinion only, and

should not be substituted for professional medical consultation.

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