RE: Welcome Christal, and I hate Colonlytely

[Guest guest]

--

Don't try to impress us. We are all under the same black cloud. So sorry

about everything thats been going on. Damn. Its either all or nothing in

terms of luck it seems.

I hope that thinks start looking up for your friend, her baby and your

brother.

Hang in there!

Rosemary from New York with 3 children with CF -

they are 12.5, 10, 6......

I coined the phrase " BREATHE DAMMIT " ; we have a dog we named -are you ready

for this - TOBI after their medication!!! At least it wasn't albuterol or

Coly...

[Guest guest]

Well I am sending you my " special great thoughts & wishes " .....I know they

will help . Great vibes also headed your way.........AND, if you get to the

states, I'll keep the light on for you.......I am in Orlando, FL,USA,-- me &

Mickey Mouse, with friends live here.

It sounds like you made all that up----nobody has all that in one week

........right :):0

really gal, I do send my wishes from my heart for your days to be brighter

soon. Your sense of humor will hold you together until I can get there with

the glue...until then-know we love you & care........

LOVE & HUGS,

grandmoMBEV

Welcome Christal, and I hate Colonlytely

Hi Christal,

While I would rather that we had never met, 'cause then neither of our

children would have CF, I'm glad that you have found your way to cfparents.

If we must endure this voyage, at least we can do it together.

My name is , and I am a stay at home mum (or, as my husband would have

it, kept woman) with two beautiful girls. My eldest is Cathryn, known as

Cate. She doesn't have CF but she does have adolescence. My youngest is

Sian (pronounced " Sharn " ) who does have CF. She is double D508, but has

mainly gastric problems.

Speaking of Sian's gastro-intestinal extravaganzas - guess what group? Oh

yeah, she's blocked up again. Another lump the size of my little finger

inside her cecum. Back on Colonlytely for days - we started with one litre

late this afternoon. Would you believe she knocked it back in just over 2

hours! It's already started doing its stuff.

So yet again, my life is going down the toilet! I'm getting tired of this.

(I can't blame my whinging on just this though - my best friend had an

emergency C-section at 12.24am Friday morning. Both she and the baby nearly

died. Baby is doing really well now, even though he was 6 1/2 weeks

early. My friend is doing better now - her blood pressure is down

from 220/190 to 135/90. I have spent most of the last six days driving

backwards and forwards across town and looking after her 12 month old baby.

Her husband got back from the United Arab Emeritz when was two days

old. It's just been a whole couple of weeks like that over here. I got

knocked back by the University, Doug has had impossible deadlines to meet

and has been working 15-19 hour days, Rita died, Jill's marriage broke down,

my brother got second degree burns on his torso, arm and hip and so on and

so on rhubarb rhubarb rhubarb, whinge bitch moan.) I need to get over this.

Or I need a rest from reality for a while. Anybody want to join my little

complete lack of reality session?

Much love, and I will try to post something cheerful next time,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------