Re: Question about the Great Strides Walk...

[Guest guest]

We also take my son.....it's outdoors I just try to persuade him to stay by

me and try to figure out who the people are that have CF. I'm sure the other

families do the same if they go....

from PA

[Guest guest]

,

The year that was diagnosed, we did not participate - I just

couldn't do it. This will mark our 4th year - and yes, has attended

all with me. I live in Louisville, KY and our walk is held at the

Louisville Zoo.

Take Care!

, Momma to (Holmes) (almost 5yow/cf)

" Palazola " on 04/09/2003 09:15:43 AM

Please respond to cfparents

To: cfparents

cc:

Subject: Question about the Great Strides Walk...

In Memphis we are having our Great Strides walk May 3. My question

is should I let a, 9 years old pwcf, go? All her aunts and best

friends are going to be there. What are you all doing for this

occassion?

Mom of a 9 wcf, Venanzio 6 nocf, Pepe 3nocf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

hi,

If she is in good health and doesn't have B.Cepacia they say it's ok to have

them there. I just keep my daughter (4 w/cf) away from other groups. We have

her walk with us or someone else in our group. Don't forget the 3 feet rule.

Good luck and happy walking!

Question about the Great Strides Walk...

In Memphis we are having our Great Strides walk May 3. My question

is should I let a, 9 years old pwcf, go? All her aunts and best

friends are going to be there. What are you all doing for this

occassion?

Mom of a 9 wcf, Venanzio 6 nocf, Pepe 3nocf

[Guest guest]

Here in Colorado Springs, the walk is a really fun event. We have

entertainment, food, goodies, prizes, games, etc. so it is very fun

for kids.

Because it is outdoors, I don't worry about cross-infection. Besides,

my son has lots of his school friends there, so he really doesn't

hang out with many other CF kids. It is a really special day for the

whole family.

Lenora

>In Memphis we are having our Great Strides walk May 3. My question

>is should I let a, 9 years old pwcf, go? All her aunts and best

>friends are going to be there. What are you all doing for this

>occassion?

>

> Mom of a 9 wcf, Venanzio 6 nocf, Pepe 3nocf

>

>

[Guest guest]

The walk that we go to also gives out ribbons to the people with CF so they

could adhere to the 3 ft. rule!

Re: Question about the Great Strides Walk...

We also take my son.....it's outdoors I just try to persuade him to stay by

me and try to figure out who the people are that have CF. I'm sure the other

families do the same if they go....

from PA

[Guest guest]

I would let her go, but maybe I am not the best person to ask about this

sort of thing. It is outdoors, just use the " three foot rule " when mingling

with other pwcf. I have almost always let be around other cwcf even

in the hospital. This freaks out some people, but I have always felt the

social benefits outweigh the small possiblility of cross contamination.

Maybe if Ang was sicker I would feel differently.

love,

M

Question about the Great Strides Walk...

> In Memphis we are having our Great Strides walk May 3. My question

> is should I let a, 9 years old pwcf, go? All her aunts and best

> friends are going to be there. What are you all doing for this

> occassion?

>

[Guest guest]

This is a terrific idea but what do you do about the people who won't or

don't do it? We always have our daughter at the walk. It is a fun day for

our whole family. She only walks part of the way and then my hubby picks

her up and brings her back to the walk site. We are the chairpeople of our

walk. We have a Chinese auction, hot dog roast, goodie bags etc... I

wouldn't want her to miss it for the world! It's for her!!! Hugs to all of

you! Kathy G. Mom to 8 w/ CF Springville, New York

Re: Question about the Great Strides Walk...

>

>

> We also take my son.....it's outdoors I just try to persuade him to stay

by

> me and try to figure out who the people are that have CF. I'm sure the

other

> families do the same if they go....

> from PA

>

>

>

[Guest guest]

May I ask what a Chinese auction is? I think the ribbon idea is great for the

people with cf. I am going to suggest that to our walk people.

Tina Mom to Christian 11 yowcf and 19 yowocf

[Guest guest]

A chinese auction is where items are donated and we raffle them off. Mostly

we make up baskets with a theme or gift certificates etc... Some really cool

items get to be our door prizes. You have your " guests " purchase tickets to

deposit and then you pull numbers. Kathy

Re: Question about the Great Strides Walk...

> May I ask what a Chinese auction is? I think the ribbon idea is great for

the

> people with cf. I am going to suggest that to our walk people.

>

>

> Tina Mom to Christian 11 yowcf and 19 yowocf

>

>

>