RE: Time to speak up...PLEASE READ

[Guest guest]

Well, said I agree completely.

Tina Mom to Christian 11 yowcf and 19 yowocf

[Guest guest]

> SORRY I DIDN'T MEAN TO LEAVE OFF MY SIGNATURE. I AM PROUD OF OF WROTE WHAT I

WROTE AND WILL ANSWER TO ANYONE WHO SAYS I SHOULD NOT HAVE.

>

> Date: 2003/03/21 Fri PM 12:38:13 EST

> To: cfparents

> Subject: Time to speak up...PLEASE READ

>

>

PROUD TO BE A SOLDIERS WIFE

Christal

mom of Tristan 6ncf, Zack 2wcf & asthma, Ki'a 4mthsncf

[Guest guest]

Very well said. Unless a topic is very offensive, I don't see any reason why

it can't be discussed on this list. I value all of the CF information that I

have learned here, but I don't allow CF to dominate my life. I haven't been

here all that long, but what has kept me here is everyone's genuine support

for each other no matter what the issue being discussed. I have heard

discussions about custody, divorce, weather, " cat's gone wild " and so many

other subjects. I get the feeling that for many this " list " has progressed

far beyond an support group and evolved into friendships. That is something

to be treasured.

In July my oldest son will be 18. He has already enlisted into the armed

forces. He did so 6 months ago before there was any serious talk of war. It

was one of my proudest moments (he was actually thinking about his

education!). Now I have mixed feelings. I'm an American, yet I'm also a mom.

I'd like to know that if at some time in the future, I need your support,

that it would be unconditional and not clouded by politics. I don't expect

everyone to agree. Just be respectful of each others views, and maybe a

little more free with the delete button on your keyboard if the issue

doesn't interest you.

Time to speak up...PLEASE READ

> >

> >

>

> PROUD TO BE A SOLDIERS WIFE

> Christal

> mom of Tristan 6ncf, Zack 2wcf & asthma, Ki'a 4mthsncf

>

>

>

[Guest guest]

Perfectly put!! I completly agree with you!

mom to Makenzie 6 w/o cf and Jaelyn 14 months wcf

> I have tried to avoid getting into this topic because it is one

close to my heart and close to home. There are some of you out there

that are all against discussing the war on this board(and you know

who you are) but what you don't realize is that for some of us (me

included and i am sure there are others out there)the war does effect

our CF families. My husband is a soldier in the U.S Army who gladly

fights to protect our rights and freedoms. Not to long ago ( I would

say about 1 year and 5 months ago) on 9-11 everyone in this country

wanted us to go find the people who attacked us. And we did, and now

we are going after the people who back him so that we can prevent it

from happening again. I am sure 9-11 had nothing to do with this

board either but I can almost gaurentee that is was disscussed.

>

> You see there are alot of families out there that have a parent

either over seas or going over and I am sure there has to be another

one who reads these boards. So in our cases the war and CF are

related. It affects how my family deals with CF and how my son

doesn't get to see his daddy very much. And I am sure that all of you

parents of children with CF know that every minute we get to spend

with our precious little boys and girls (and some not so little) is

important. This war, no matter how useless some see it to be,

affects my family deeply. And it affects our country, our healthcare

and our lifestyles.

>

> If you still don't see-think about this. Those of you who have

children in school know that they are not blind to what is going on

in the world. So this is directly affecting our CF children. No

matter how hard we are trying to shelter them at home from the images

of bombs going off they are still hearing about it in school- whether

it be from the teachers or other students- they are hearing it. And I

am sure they are afraid and frightened. My 6 year old, who doesn't

completely understand what a war is knows one thing- that his " daddy

Ty " ( his is my husbands step-son) wears the clothes of the " good

guys " (as he puts it) and that the " good guys " are over some place far

away fighting to keep us safe, and it is scary to look into those big

brown eyes when he asks why and I don't have an answer for him. BUt

do we tell our children and how can we help them through what they

are feeling if we are selfs are confussed and want to talk about it

with the people that help us with our most devasting problems

(hospitalizations, deaths of our children, the multiple surgeries)

and they don't want to hear it.

>

> I joined this group to get support and to help others if I could

and I don't plan leaving just because someones views/lifestyles,

whatever are different then mine. But I would like to know that I can

come here and talk about ANYTHING that affects my family, especially

when it directly affects my little boy with CF. That is what this

board is here for right? TO help us with our problem, trials, and

fears? To support us.

>

> Just to clarify- I am not saying that this war is right, but

neither am I saying it is wrong. I am just saying that for some of us

it affects us just as much as the CF does. For the mear fact that my

husband is infantry and when he goes over he is front lines and is

risking his life and his son could loose him just as easily as we

could loose our son to this damn disease, only without warning.

>

> I appreciate everyone for taking the time to read this and

hopefully now we can all understand why it is important for us to

discuss this here. I can go to military support groups and talk

about my sick son all day long but they don't understand the disease

that is why I come here. Ya'll know what it is like to have a child

sick with something that could kill them next month, next year, or in

10 years and you should also understand that we need support for the

everyday things too, expecially when it affects our sicks kids.

>

> I would like to add this idea- if we want to post something about

the war and how it is affecting us then we should state it in the

topic so those of you who are sick of hearing about it don't have to

read them. I didn't do so this time for the fact that I wanted

EVERYONE to read this and see why it is important that we beable to

discuss this if it affects our family and our children (because it

does affect them whether we see it or not).

> Thank you.

[Guest guest]

Well said, well said. I give you a standing ovation and a great big hug. You

staed pretty much what I did but I said it in shorter terms, I was rather

upset at the time.

>

>Reply-To: cfparents

>To: cfparents

>Subject: Time to speak up...PLEASE READ

>Date: Fri, 21 Mar 2003 12:38:13 -0500

>

>I have tried to avoid getting into this topic because it is one close to my

>heart and close to home. There are some of you out there that are all

>against discussing the war on this board(and you know who you are) but what

>you don't realize is that for some of us (me included and i am sure there

>are others out there)the war does effect our CF families. My husband is a

>soldier in the U.S Army who gladly fights to protect our rights and

>freedoms. Not to long ago ( I would say about 1 year and 5 months ago) on

>9-11 everyone in this country wanted us to go find the people who attacked

>us. And we did, and now we are going after the people who back him so that

>we can prevent it from happening again. I am sure 9-11 had nothing to do

>with this board either but I can almost gaurentee that is was disscussed.

>

>You see there are alot of families out there that have a parent either over

>seas or going over and I am sure there has to be another one who reads

>these boards. So in our cases the war and CF are related. It affects how my

>family deals with CF and how my son doesn't get to see his daddy very much.

>And I am sure that all of you parents of children with CF know that every

>minute we get to spend with our precious little boys and girls (and some

>not so little) is important. This war, no matter how useless some see it

>to be, affects my family deeply. And it affects our country, our healthcare

>and our lifestyles.

>

>If you still don't see-think about this. Those of you who have children in

>school know that they are not blind to what is going on in the world. So

>this is directly affecting our CF children. No matter how hard we are

>trying to shelter them at home from the images of bombs going off they are

>still hearing about it in school- whether it be from the teachers or other

>students- they are hearing it. And I am sure they are afraid and

>frightened. My 6 year old, who doesn't completely understand what a war is

>knows one thing- that his " daddy Ty " ( his is my husbands step-son) wears

>the clothes of the " good guys " (as he puts it) and that the " good guys " are

>over some place far away fighting to keep us safe, and it is scary to look

>into those big brown eyes when he asks why and I don't have an answer for

>him. BUt do we tell our children and how can we help them through what they

>are feeling if we are selfs are confussed and want to talk about it with

>the people that help us with our most devasting problems (hospitalizations,

>deaths of our children, the multiple surgeries) and they don't want to hear

>it.

>

>I joined this group to get support and to help others if I could and I

>don't plan leaving just because someones views/lifestyles, whatever are

>different then mine. But I would like to know that I can come here and talk

>about ANYTHING that affects my family, especially when it directly affects

>my little boy with CF. That is what this board is here for right? TO help

>us with our problem, trials, and fears? To support us.

>

>Just to clarify- I am not saying that this war is right, but neither am I

>saying it is wrong. I am just saying that for some of us it affects us just

>as much as the CF does. For the mear fact that my husband is infantry and

>when he goes over he is front lines and is risking his life and his son

>could loose him just as easily as we could loose our son to this damn

>disease, only without warning.

>

>I appreciate everyone for taking the time to read this and hopefully now we

>can all understand why it is important for us to discuss this here. I can

>go to military support groups and talk about my sick son all day long but

>they don't understand the disease that is why I come here. Ya'll know what

>it is like to have a child sick with something that could kill them next

>month, next year, or in 10 years and you should also understand that we

>need support for the everyday things too, expecially when it affects our

>sicks kids.

>

>I would like to add this idea- if we want to post something about the war

>and how it is affecting us then we should state it in the topic so those of

>you who are sick of hearing about it don't have to read them. I didn't do

>so this time for the fact that I wanted EVERYONE to read this and see why

>it is important that we beable to discuss this if it affects our family and

>our children (because it does affect them whether we see it or not).

>Thank you.

>

>

_________________________________________________________________

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[Guest guest]

Very well said. I hope your husband doesn't need to go .

(Australia)

Time to speak up...PLEASE READ

I have tried to avoid getting into this topic because it is one close to

my heart and close to home. There are some of you out there that are

all against discussing the war on this board(and you know who you are)

but what you don't realize is that for some of us (me included and i am

sure there are others out there)the war does effect our CF families. My

husband is a soldier in the U.S Army who gladly fights to protect our

rights and freedoms. Not to long ago ( I would say about 1 year and 5

months ago) on 9-11 everyone in this country wanted us to go find the

people who attacked us. And we did, and now we are going after the

people who back him so that we can prevent it from happening again. I am

sure 9-11 had nothing to do with this board either but I can almost

gaurentee that is was disscussed.

You see there are alot of families out there that have a parent either

over seas or going over and I am sure there has to be another one who

reads these boards. So in our cases the war and CF are related. It

affects how my family deals with CF and how my son doesn't get to see

his daddy very much. And I am sure that all of you parents of children

with CF know that every minute we get to spend with our precious little

boys and girls (and some not so little) is important. This war, no

matter how useless some see it to be, affects my family deeply. And it

affects our country, our healthcare and our lifestyles.

If you still don't see-think about this. Those of you who have children

in school know that they are not blind to what is going on in the world.

So this is directly affecting our CF children. No matter how hard we

are trying to shelter them at home from the images of bombs going off

they are still hearing about it in school- whether it be from the

teachers or other students- they are hearing it. And I am sure they are

afraid and frightened. My 6 year old, who doesn't completely understand

what a war is knows one thing- that his " daddy Ty " ( his is my husbands

step-son) wears the clothes of the " good guys " (as he puts it) and that

the " good guys " are over some place far away fighting to keep us safe,

and it is scary to look into those big brown eyes when he asks why and I

don't have an answer for him. BUt do we tell our children and how can we

help them through what they are feeling if we are selfs are confussed

and want to talk about it with the people that help us with our most

devasting problems (hospitalizations, deaths of our children, the

multiple surgeries) and they don't want to hear it.

I joined this group to get support and to help others if I could and I

don't plan leaving just because someones views/lifestyles, whatever are

different then mine. But I would like to know that I can come here and

talk about ANYTHING that affects my family, especially when it directly

affects my little boy with CF. That is what this board is here for

right? TO help us with our problem, trials, and fears? To support us.

Just to clarify- I am not saying that this war is right, but neither am

I saying it is wrong. I am just saying that for some of us it affects us

just as much as the CF does. For the mear fact that my husband is

infantry and when he goes over he is front lines and is risking his life

and his son could loose him just as easily as we could loose our son to

this damn disease, only without warning.

I appreciate everyone for taking the time to read this and hopefully now

we can all understand why it is important for us to discuss this here.

I can go to military support groups and talk about my sick son all day

long but they don't understand the disease that is why I come here.

Ya'll know what it is like to have a child sick with something that

could kill them next month, next year, or in 10 years and you should

also understand that we need support for the everyday things too,

expecially when it affects our sicks kids.

I would like to add this idea- if we want to post something about the

war and how it is affecting us then we should state it in the topic so

those of you who are sick of hearing about it don't have to read them.

I didn't do so this time for the fact that I wanted EVERYONE to read

this and see why it is important that we beable to discuss this if it

affects our family and our children (because it does affect them whether

we see it or not).

Thank you.

[Guest guest]

I'm not sure who cowgrl178 is but thank you for your email. I have

not been on in awhile b/c of all of the chaos of things right now.

You see, my husband is a US NAVY SEABEE and may be leaving as early

as first of May so instead of getting on the computer after working

all day I've been spending it w/ my family. I do love and miss this

group which is why I'm back but I wanted to say thanks because

what you say is 100% true

ALL MY LOVE AND SUPPORT to you and your family and your husband and

his unit. May he be home safely very soon!

Christy Mom of Wyatt 7wcf and Hunter 3wocf

ALSO PROUD TO BE A MILITARY WIFE!

-- In cfparents , " Baxter " <scottie@a...> wrote:

> Very well said. I hope your husband doesn't need to go .

>

> (Australia)

>

> Time to speak up...PLEASE READ

>

>

> I have tried to avoid getting into this topic because it is one

close to

> my heart and close to home. There are some of you out there that

are

> all against discussing the war on this board(and you know who you

are)

> but what you don't realize is that for some of us (me included and

i am

> sure there are others out there)the war does effect our CF

families. My

> husband is a soldier in the U.S Army who gladly fights to protect

our

> rights and freedoms. Not to long ago ( I would say about 1 year

and 5

> months ago) on 9-11 everyone in this country wanted us to go find

the

> people who attacked us. And we did, and now we are going after the

> people who back him so that we can prevent it from happening again.

I am

> sure 9-11 had nothing to do with this board either but I can almost

> gaurentee that is was disscussed.

>

> You see there are alot of families out there that have a parent

either

> over seas or going over and I am sure there has to be another one

who

> reads these boards. So in our cases the war and CF are related. It

> affects how my family deals with CF and how my son doesn't get to

see

> his daddy very much. And I am sure that all of you parents of

children

> with CF know that every minute we get to spend with our precious

little

> boys and girls (and some not so little) is important. This war, no

> matter how useless some see it to be, affects my family deeply. And

it

> affects our country, our healthcare and our lifestyles.

>

> If you still don't see-think about this. Those of you who have

children

> in school know that they are not blind to what is going on in the

world.

> So this is directly affecting our CF children. No matter how hard

we

> are trying to shelter them at home from the images of bombs going

off

> they are still hearing about it in school- whether it be from the

> teachers or other students- they are hearing it. And I am sure they

are

> afraid and frightened. My 6 year old, who doesn't completely

understand

> what a war is knows one thing- that his " daddy Ty " ( his is my

husbands

> step-son) wears the clothes of the " good guys " (as he puts it) and

that

> the " good guys " are over some place far away fighting to keep us

safe,

> and it is scary to look into those big brown eyes when he asks why

and I

> don't have an answer for him. BUt do we tell our children and how

can we

> help them through what they are feeling if we are selfs are

confussed

> and want to talk about it with the people that help us with our most

> devasting problems (hospitalizations, deaths of our children, the

> multiple surgeries) and they don't want to hear it.

>

> I joined this group to get support and to help others if I could

and I

> don't plan leaving just because someones views/lifestyles, whatever

are

> different then mine. But I would like to know that I can come here

and

> talk about ANYTHING that affects my family, especially when it

directly

> affects my little boy with CF. That is what this board is here for

> right? TO help us with our problem, trials, and fears? To support

us.

>

> Just to clarify- I am not saying that this war is right, but

neither am

> I saying it is wrong. I am just saying that for some of us it

affects us

> just as much as the CF does. For the mear fact that my husband is

> infantry and when he goes over he is front lines and is risking his

life

> and his son could loose him just as easily as we could loose our

son to

> this damn disease, only without warning.

>

> I appreciate everyone for taking the time to read this and

hopefully now

> we can all understand why it is important for us to discuss this

here.

> I can go to military support groups and talk about my sick son all

day

> long but they don't understand the disease that is why I come here.

> Ya'll know what it is like to have a child sick with something that

> could kill them next month, next year, or in 10 years and you should

> also understand that we need support for the everyday things too,

> expecially when it affects our sicks kids.

>

> I would like to add this idea- if we want to post something about

the

> war and how it is affecting us then we should state it in the topic

so

> those of you who are sick of hearing about it don't have to read

them.

> I didn't do so this time for the fact that I wanted EVERYONE to read

> this and see why it is important that we beable to discuss this if

it

> affects our family and our children (because it does affect them

whether

> we see it or not).

> Thank you.

>

>

>

>

>