Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 My daughter from the time she was born up until 5 years ago , only had stomache symptoms of the disease and we felt lucky . Since that time she was diagnoised with Diabeties in 2000 and liver disease in 2001 and ABPA yast year . she also had a g-tube and central port put in last year. In the last 14 months she has been hospitalized 7 times , for a average of two weeks at a time, all for her lungs even when she comes home on I.V. ,it seems she gets sick again as soon as the medicine stops . She is usualy on Tobi and Fortaz in I.V , my main concern is she is 13 and has not gone through her change yet and our Dr. says this is the worse time for girls with C.F. Any advice would be appreciated . I am so glad I can finaly talk about my daughters condition . Bless you all. Pat dad of two Dakota 15 no/cf 13 w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 For adolescents of both sexes maturation is usually later than pwocf. There are a few factors at work with adolescence being the worst time for kids with CF. Lots of teens just don't want to comply with therapy or taking their meds. Also they are growing a lot then and everything is changing. Nutrition is very important at this time too. tuff times My daughter from the time she was born up until 5 years ago , only had stomache symptoms of the disease and we felt lucky . Since that time she was diagnoised with Diabeties in 2000 and liver disease in 2001 and ABPA yast year . she also had a g-tube and central port put in last year. In the last 14 months she has been hospitalized 7 times , for a average of two weeks at a time, all for her lungs even when she comes home on I.V. ,it seems she gets sick again as soon as the medicine stops . She is usualy on Tobi and Fortaz in I.V , my main concern is she is 13 and has not gone through her change yet and our Dr. says this is the worse time for girls with C.F. Any advice would be appreciated . I am so glad I can finaly talk about my daughters condition . Bless you all. Pat dad of two Dakota 15 no/cf 13 w/cf Quote Link to comment Share on other sites More sharing options...
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