Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 , That is one of the problems with the way the system is set up. When you manage to raise the income to a more comfortable level, you lose other benefits. Losing other benefits drop the income level below what it was before your income level was raised!!! It's a " Catch 22 " situation. Working with our local food bank we saw that happen a lot. Is there any possibility of getting a supplemental insurance policy? I know the cost can sometimes be prohibitive but, if it covers what your husband's insurance doesn't, it would be worth it to be able to stay home with the kids. And, daycare is soooooo expensive, too. It is a terrible feeling to think you are working for basically " nothing " . My heart goes out to you. You vent all you want on this list--that's what we're here for! Love to you and your family. Aunt B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 In a message dated 5/21/2003 8:44:37 AM Central Daylight Time, BKandul@... writes: > I got my oldest on a program that goes by her income which is nothing. So she was excepted but you have to prove the CF is a disability. I have not been able to prove that of my youngest because so far she does not have damage to her lungs. But at least they pay for the cost of carrying our insurance and what our insurance doesn't pay, transportation to the doctor, dental and eye coverage. So you might look to see in your state our country if they have such a program. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 In a message dated 5/21/03 10:07:17 AM Eastern Daylight Time, cyxty5rss@... writes: > Is there any possibility of getting a supplemental insurance policy? I know > > the cost can sometimes be prohibitive but, if it covers what your husband's > > insurance doesn't, it would be worth it to be able to stay home with the > kids. > We have looked into that and it won't cover tube feedings. Witch is really what we need the medicade for. mom to Y Kiersten Lee 2-13-98 w/cf Y Y Natasha Rose 2-24-00 w/o cf Y Y Trevor 10-18-01 w/o cf Y Y Noelle 11-29-02 w/o cf Y Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 thank for the info Deb. I will look into it mom to Y Kiersten Lee 2-13-98 w/cf Y Y Natasha Rose 2-24-00 w/o cf Y Y Trevor 10-18-01 w/o cf Y Y Noelle 11-29-02 w/o cf Y Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Dear , This should be a time in your life to celebrate, instead you are so worry, too sad. Is there anything you can do at home to supplement your income? Love, mom of a 9 wcf, Venanzio (almost) 7 nocf, Pepe 3 nocf > Kiertsten is doing well for now:)) She goes in for her next visit at the end > of the month. We are going through a rough time right now. My husband foound > out that he might be getting a promotion. Thats all nice and good but if he > gets it we will loose the ssi and medicade benefits for Kiersten I would > then be forced into going to work full time and pay for day care and I really > don't want Kiersten to go into daycare.On top of that our priviate insurance > will not cover her tube feedings so we would have to pay for that out of > pocket. We would also have to pay 60 dollars a month for each of her > percriptions. Along with hospital and Dr visit copays. > This is just such a hard place. My husband really wants this promotion > cause its getting him where he wants to go with the company he works for. I > would be working to only pay for daycare and hopefully cover Kiersten's > medical expenses the our priviate insurance won't cover. This sucks!!!!!!! > Thanks for letting me vent:))) > > mom to > Y Kiersten Lee 2-13-98 w/cf Y > Y Natasha Rose 2-24-00 w/o cf Y > Y Trevor 10-18-01 w/o cf Y > Y Noelle 11-29-02 w/o cf Y > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 What state do you live in? Do they possibly have another program such as CA's GHPP, which is for parents whose income is over $40,000/yr? Amber, Nick's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 We live in Va. As far as I know there is not another program out there. mom to Y Kiersten Lee 2-13-98 w/cf Y Y Natasha Rose 2-24-00 w/o cf Y Y Trevor 10-18-01 w/o cf Y Y Noelle 11-29-02 w/o cf Y Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 You might want to check with the hospital social worker. That is part of their position -to offer help to patients in all areas-- Also the accts Receivable dept.they know where to send folks to get help paying their bills there:):) If they don't have the same thing .call the Medicaid agency & ask what VA does have for the little ones......I know WIC is all states , so , maybe they just try to keep folks from using it by not telling them its there:):) GOOD LUCK, LOVE & HUGS, GrandmomBEV Re: UPDATE ON US:( We live in Va. As far as I know there is not another program out there. mom to Y Kiersten Lee 2-13-98 w/cf Y Y Natasha Rose 2-24-00 w/o cf Y Y Trevor 10-18-01 w/o cf Y Y Noelle 11-29-02 w/o cf Y Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 It has to be removed from the dishwasher soon after it stops, and drain any excess water that it may have collected. Air dry. About cutting the time to 15 mins., I do not know, we were so thrilled to go from 35-40 mins to 20-25 mins. We have never had a better time than that. mom of a 9 wcf, Venanzio almost 7 nocf, Pepe 3 nocf > > You might want to check with the hospital social worker. That is part > of their position -to offer help to patients in all areas-- Also the > accts Receivable dept.they know where to send folks to get help paying > their bills there:):) > If they don't have the same thing .call the Medicaid agency & ask > what VA does have for the little ones......I know WIC is all states , so > , maybe they just try to keep folks from using it by not telling them > its there:):) > GOOD LUCK, > LOVE & HUGS, > GrandmomBEV > > Re: UPDATE ON US:( > > > We live in Va. As far as I know there is not another program out there. > > mom to > Y Kiersten Lee 2-13-98 w/cf Y > Y Natasha Rose 2-24-00 w/o cf Y > Y Trevor 10-18-01 w/o cf Y > Y Noelle 11-29-02 w/o cf Y > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 In a message dated 5/22/2003 8:18:40 AM Central Daylight Time, BKandul@... writes: > We live in Va. As far as I know there is not another program out there. Talk to you social worker at the hospital she may recommend you to talk to someone else and they make recommend you to talk to someone else that is how we found out about the waiver program her in Iowa. Sometimes you just have to keep talking to people and eventually you will find the right person that know about new programs that start in you state. Hope this helps Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 In a message dated 5/25/2003 1:42:24 PM Eastern Daylight Time, gdattig5@... writes: > We live in Va. As far as I know there is not another program out there. > Try the Dept. of Health or Dept. of Family Services - something like that...if that does work ask e-mail Family Voices. Its a advocacy group of parents of children with special health care needs. Rosemary in NY with 3 children (12, 10 and 6) with CF. I have a dog named TOBI and coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
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