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Hi all

Well for the last 2 months Liam has not grown taller at all, he is still the

same. He is putting on weight slowly but no the height. We have a CF clinic

next tuesday and I want some blood tests what minerals/vitamins/fatty acids

should I request for inquiry.

Can fatty acid defiency cause stunted growth??

Is it true that there is too much Calcium in PWCF so lack of Calcim wouldnt be

the cause??

Is it true that there is too much Iron so lack of Iron wouldnt be the cause??

Thanks

mum to Liam 9 months old

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I have never heard that CFer's have too much calcium or iron. As a matter of

fact, I was told by a CF nutritionist to add powdered milk to 's whole

milk to increase her calcium (and calorie) intake.

stunted growth question

Hi all

Well for the last 2 months Liam has not grown taller at all, he is still the

same. He is putting on weight slowly but no the height. We have a CF clinic

next tuesday and I want some blood tests what minerals/vitamins/fatty acids

should I request for inquiry.

Can fatty acid defiency cause stunted growth??

Is it true that there is too much Calcium in PWCF so lack of Calcim wouldnt be

the cause??

Is it true that there is too much Iron so lack of Iron wouldnt be the cause??

Thanks

mum to Liam 9 months old

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My son Nick saw the endocrinologist last month. He did several blood tests,

plus bone density test, DEXA, glucid tolerance test, and family height

history. His height prediction came out far below our family history, and all

blood

work came back fine, so the doc is starting Nick on HGH, or growth hormone, in

order for him to reach his maximum stature. Nick is 14 yrs. old.

Perhaps you could ask your CF docs to send you to an endocrinologist, and

inquire about HGH.

Amber,

Nick's mom

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> work came back fine, so the doc is starting Nick on HGH, or growth

hormone, in

> order for him to reach his maximum stature. Nick is 14 yrs. old.

>

> Perhaps you could ask your CF docs to send you to an

endocrinologist, and

> inquire about HGH.

HGH treatment is very expensive. I am glad they are willing to get

a referral for it. It can make a big difference

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Is it possible that Liam was measured wrong two months ago? Do you know

what line he has been following on his growth chart? I think that I'd

look at the growth chart and see where he fits. If there is a big

deviation then the clinic may make some changes.

Pat father of Camerons (2.5 yo wcf) and Claire 6 mo. Wcf.

stunted growth question

Hi all

Well for the last 2 months Liam has not grown taller at all, he is still

the same. He is putting on weight slowly but no the height. We have a

CF clinic next tuesday and I want some blood tests what

minerals/vitamins/fatty acids should I request for inquiry.

Can fatty acid defiency cause stunted growth??

Is it true that there is too much Calcium in PWCF so lack of Calcim

wouldnt be the cause?? Is it true that there is too much Iron so lack of

Iron wouldnt be the cause??

Thanks

mum to Liam 9 months old

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