Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 My Son, Jack (now 2 years old) has had positive Staph results since he was 18 months old. Once he cultured Staph and Klebsiella, I demanded from our CF Center that we do sputum cultures every three months when we see them (they only routinely do sputum cultures once per year). Alarmingly, his recent culture came back with " HEAVY " Staph colonization and his CF Pulmonologist is poo-pooing the whole thing with this explanation: Jack's culture this time might have contained " more sputum than spit " thus resulting in the higher Staph count. I understand that the sputum cultures are done more on a qualitative (what bugs are actually there) than quantitative measure but I'm scared that I might be in the dark about what's actually going on in Jack's lungs. His CF Doc said that the " Staph that Jack habours would have an ordinary person in the ICU, but since he's a HOST, he's living with it amicably " . I had his lab results faxed to me and I don't get ANY of it. What I hope to learn from those that have ANYTHING to offer is primarily: Can the colonized Staph do damage to Jack's lungs, even when he appears to be well? Any advice will be GREATLY appreciated! Paige (scared Mum to Jack, now 2 with CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 His CF Doc said that the " Staph that Jack habours would have an ordinary person in the ICU, but since he's a HOST, he's living with it amicably " . > My son is growing two different types of staph. No one seems overly concerned either. jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Paige, I am curious about this, too, as Philip has always cultured staph. I never seems to be a concern with our doctors, who are very conscientious and thorough. But I always wonder about it. Also, CFF guidelines from a few years ago, I think, said that all centers should do cultures at each 3-month visit. Ask your clinic about it. Lenora >My Son, Jack (now 2 years old) has had positive Staph results since >he was 18 months old. Once he cultured Staph and Klebsiella, I >demanded from our CF Center that we do sputum cultures every three >months when we see them (they only routinely do sputum cultures once >per year). Alarmingly, his recent culture came back with " HEAVY " >Staph colonization and his CF Pulmonologist is poo-pooing the whole >thing with this explanation: Jack's culture this time might have >contained " more sputum than spit " thus resulting in the higher Staph >count. > >I understand that the sputum cultures are done more on a qualitative >(what bugs are actually there) than quantitative measure but I'm >scared that I might be in the dark about what's actually going on in >Jack's lungs. His CF Doc said that the " Staph that Jack habours >would have an ordinary person in the ICU, but since he's a HOST, >he's living with it amicably " . > >I had his lab results faxed to me and I don't get ANY of it. What I >hope to learn from those that have ANYTHING to offer is primarily: >Can the colonized Staph do damage to Jack's lungs, even when he >appears to be well? > >Any advice will be GREATLY appreciated! > >Paige (scared Mum to Jack, now 2 with CF) > > > Quote Link to comment Share on other sites More sharing options...
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